I meant when I was refering to the portable O2-the kind he could carry on his back-we have the tanks for outside the house-opps I didnt mean to start a riot. ha ha ha ha ha

My Story

Curtis loving called curtman -has what they call Neuro-Degentive Dystrophy with global Neuropathy along with Childhood Dementia .there is no cure there is no treatment -but there is always F.R.O.G.'n Curtis is now being followed by Footprints -pallative care. I have started a quest for stuffed frogs-my goal is to fill his room!


Journal

Friday, July 3, 2009 2:51 PM, CDT


Happy Almost 4th of July. I hope everyone has a great and safe time tommrow. I know our nieghborhood will be loud-it has been all week! Id say at least tommrow it'll be over but if past shows any signs of the future-it'll go on for weeks. I wouldnt mind so much if they would quit at a reasonable hour(like 11p) Its really against the city to shoot them off but no one really pays attention to that or inforces it. Oh well let them hae thier fun-as long as they dont sit my house on fire. Curtis didnt sleep well last night every time he'd roll on his right side he'd wake up(the side with the bruise) And this morning he woke up limping and whining. He also has a small bruise on his knee-poor baby :( He's been having alot of brain freezes and just not himself(or maybe this is himself) more droopy then usual and he looks so tired. But he has his moments where he's got some energy back and thats ok. Ive spent alot of time snuggling and just talking to him-Im not sure what he understands anymore-but that doesnt really matter to me. He even curled up in my arms while we were on the bed-like he use to when he was a baby. I like the snuggles!!!!!!!! Paul has to work today and tommrow-so we will BBQ on Sunday. Besides the boys are going to bio-dads for the w/e. They will porably do the fire-work thing over there-even though neither one are all that thrilled with the noise. Me I'll probably go to bed early if Curtis lets me. I may even go to sleep in his bed till Paul gets home-that sounds nice-me,my baby and Molly of course. Speaking of Molly that dog has grown so much-just since she's been home from school. Ive already put 2 new links in her collar-one more link and I have to buy a new collar. She's a big baby-everytime Aaron takes his puppy(they re named it Marvin) out she'll cry at the door cause she's alone. Please! Well thats basiclly it from here-not much planned for tommrow except try to keep from getting a headache. Can you tell I dont like fireworks! sending hugs and prayers F.R.O.G. sharon and crew  Oh Amy thanks for the energy vibes-I can use them!

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Please let us know you were here-happy mail (and frogs)can be sent to Curtis Shubert 229 St. Christopher,Cahokia,Il 62206 (last count on frogs were 235-love it)

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HOSPITAL INFORMATION

Pallitive care-Footprints
CGCH