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Cullen’s Story

Welcome to our CaringBridge site. We've created it to keep friends and family updated. We appreciate your support and words of hope and encouragement during this time when it matters most.

Latest Journal Update

Good news

Over the past few days Cullen had endured a basiliximab infusion, blood work, chest x-ray, clinic check-up, chest CT and a bronchoscopy. The results came in this evening that there has been improvement. He is still in rejection but a grade lower. He's dropped from an A2 to A1 status which is the lowest form of rejection. Thank God because if there wasn't a change they were going to put in another central line to administer treatments. We are so happy to be told that the central line can stay in the past where it better always stay!

He's been given permission to head home, which we will do tomorrow morning. His anti-rejection medication which his doctor suspects has been contributing to his migraines has been decreased, however they had to supplement it with something so he has agreed to basiliximab infusions once a month which can been done at Marybridge in Tacoma. He will also have to maintain follow-up with pulmonary there for blood work, spirometry tests, etc. and as long as those results remain stable and Cullen doesn't start experiencing any concerning symptoms, he won't be due back at Stanford until his 1 year transplant anniversary in August.

You are all familiar with Cullen's sense of humor. He dyed his hair blue the night before his bronch (the kind that washes out) which matches the blue in his doctors hair. She was a good sport about it and laughed. Here is a picture.

Love,
Colleen



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Comments

5 Comments

Barbara Bolanos
By
I think of you often and pray that things only get better as the months go by.

I do believe that there are several more items to add to my "list" for you. :)

I hope to see you soon.

Love,
Barbara Bolanos
ron steele
By Grandpa
Great news, Blue Hair and all. Have a Safe Trip Home. Love and Miss you guys.
Lilian Leung
By Lilian
Great news! Have a safe trip home!
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1 person hearted this
Sally Chennell
By Sally Chennell
So glad Cullen has improved. Do you know the source of his rejection? Cat was A1 for a while and her rejection was due to inhaling stomach acid from GERD while sleeping. She had a funiplication (sp?) surgery which stopped the GERD so she is no longer in rejection, thank God. Always have to be alert for problems, even after transplant..Can't believe it has been almost 7 months for Cullen! He is on my phrayer list.
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1 person hearted this
Sally Chennell
By Sally Chennell
So glad Cullen has improved. Do you know the source of his rejection? Cat was A1 for a while and her rejection was due to inhaling stomach acid from GERD while sleeping. She had a funiplication (sp?) surgery which stopped the GERD so she is no longer in rejection, thank God. Always have to be alert for problems, even after transplant..Can't believe it has been almost 7 months for Cullen! He is on my phrayer list.