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Cullen’s Story

Welcome to our CaringBridge site. We've created it to keep friends and family updated. We appreciate your support and words of hope and encouragement during this time when it matters most.

Latest Journal Update

Last Infusion

It's 9PM on Sunday and Cullen is having his last IV steroid infusion. As long as he tolerates it, which he has been so far, he will be discharged sometime tomorrow. He's never been so healthy during a hospital stay before so it's been boring, not that we are complaining.

His doctor gave him the good news this morning that despite the rejection he will still give permission to stop the home respiratory treatments because outside the lungs looks great, the rejection is in the deep tissue.

Unfortunately Katy is in the hospital too. Cullen received permission to leave his room to visit hers. I missed listening to those two laughing together. It's music to my ears, just wish the sound was coming from somewhere other than a hospital room.

Still uncertain when we will start driving home. Depending on what time he is discharged and how he is feeling we would like to get on our way tomorrow, or it will be early Tuesday morning at the latest.

Love,
Colleen


We want to thank those of you who have continued to make donations to Cullen's COTA fund. The donations that have been added to what remains after the cost of transplant continues  to help us with the on-going trips to Stanford, prescription and other medical costs. COTA will continue to be there for Cullen so donations will always be welcome on-line at http://cota.donorpages.com/PatientOnlineDonation/COTAforCullenS or check mailed to:
Children’s Organ Transplant Association
2501 West COTA Drive
Bloomington, Indiana 47403 
(in the memo line) I would like my donation to honor Cullen Steele





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Comments

2 Comments

Peggy Velasquez
By Peggy Velasquez
Have a safe drive home. Blessings and prayer continuing.
.
Katie Grace Groebner
By John Kathy Savanha and Katie Grace
I am so excited to here they are both up laughing. Wish I could have been there to hear it too.