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Cullen’s Story

Welcome to our CaringBridge site. We've created it to keep friends and family updated. We appreciate your support and words of hope and encouragement during this time when it matters most.

Latest Journal Update

Good news!

Cullen's PFT results came back improved and his chest CT and lung profusion scan showed no changes, which means he hasn't gotten worse so perhaps the new medications are helping to keep the fibrosis from spreading. This means Cullen and I WILL BE home for the holidays!!! We will not be returning to CA until January or February for a bronch and other tests. The other good news is as of Sunday he will finally have tapered down to his normal dose of Prednisone so the full moon face it caused should soon go down and hopefully the side-effects will fade quickly too so that he can return to school!

Cullen turned 16 on Tuesday and I posted some of his birthday pictures to the photo section. Thank you for the continued prayers and messages. Happy Thanksgiving everyone!


3 people hearted this



Tina Barley
By Tina Barley
So happy to hear the Good news , you and your family are always in our orayers. (Happy 16th🎂) Wishing you all a HappyThanksgiving and Christmas. Thankful you will be spending it together at HOME !!!
Love ,
Terry , Tina & Graham
Debbie Keeley
By Debbie Keeley
Thank you Jesus! Happy Birthday to you Cullen. You're amazing. God Bless and safe travels. Happiest of Holidays!
Jeanne Messmer
By Jeanne
Very good news!! Cullen has been such a trooper through all the ups and downs. Happy 16th Cullen and praying that you'll have many, many more. Wishing all of you a wonderful Thanksgiving and Christmas.
ron steele
By Grandpa
Happy Birthday and HAPPY,HAPPY on the results. Grandma and I are estatic on the results and are praying that they keep staying good. Love and Miss you and the family. Sweet 16 and has been kissed.
Michael Cranstoun
By Michael Cranstoun
Great news! He is such a warrior! Have a Merry Christmas!