Please continue praying for a full recovery for Crystal. And please pray for Crystal and Craig (along with the family and friends) broken hearts.
We are so thankful for the love and support shown by so many friends and family.
If you would like to send a note of encouragement and prayer, please feel free to do so through our Caringbridge website.
Cards can be mailed to:
3230 Wessinger Road
Chapin, SC 29036
A special fund has been set up by Chapin Baptist Church to help the Hewitt family. If you would like to contribute, please call Chapin Baptist Church at 345-3477.
In addtion, the funds raised for selling the Parker and Haley t-shirts/bracelets are going towards building an arbor/picnic project at our church (Chapin Baptist).
Thank you for your continued support...please check out the following video in memory of precious Parker and Haley...
Memory Video of Parker and Haley - http://www.craighewittphotography.com/blog/in-memory-of-parker-and-haley-6-29-09/
Feb 26, 2014 2:22pmToday's appointment with the Neurosurgeon went ok. We got to see the new Neurosurgeon that took Dr Smith's place, his name is Dr. Skarli.
He said that all children with Spina Bifida also get tethered cords. He said that he never does anything unless it's causing issues. He said that she is acting great, but there is concern with the kidneys. He said that she does have a little spot towards the bottom of her spine that is like a little pocket of fluid. He said it may be causing the issues, it may not. He said that the nerves for the kidney and bladder are towards the bottom of the spine so it might be indeed causing these issues. He said that he would talk to the urologist about his concerns and then they come up with plan together. He said that he is leaning towards surgery to correct this. We did hear all the details on the surgery (which we will share later if we have to go through with it). But for now he said to go ahead and get the Urodynamic test completed and then come back to follow up with him in a month. At that time he will let us know what him and Dr Ehrth (urologist) have decided is best for Ellington. If they do decide back surgery at that time, then surgery will be scheduled in around 2 weeks from then. There are many risks with this surgery as of any surgery you have, and we of course would rather no surgery. We are trust is in our God that He is going to watch over her and give the doctor's the wisdom to make this decision.
Daddy Hewitt and I still have many questions, but we are trusting in our God that He is going to continue to heal Ellington. If we are going to have to go down this road of surgery, then we know that God is going to help us through it. We just of course don't want her going through it.
As far as "did you like the new doctor?" Well, hard to say from first visit. He seems like a good doctor. We did like that he said, "She is your daughter, but she will also be mine." He meant that he is going to look out for her just like we do, for her best. That was great to hear.
It sure is hard not to worry as a mommy/daddy. We don't want any steps backwards for Ellington. We have prayed so hard for her to pee on her own, she is. We prayed so hard for her to be a walking testimony of who our God is and she IS. :) Our God is amazing and wonderful. He CAN heal and if she has to have this surgery, then I know that He will have her in His hands just like He has this whole time. But, it's hard to talk about this surgery without getting teary eyed.
When I was about to update Caringbridge, I first read the following devotional:
Wow. He sure has His way of communicating STRAIGHT to me at times. We don't know the future. We don't know what the plan is going to be in a month. We don't know how surgery is going to go IF we have to go through it. But, we know one thing, God is there, guiding us, loving us.
Love you guys. Please keep the prayers coming for Ellington! She appreciates them and so do we!
On another note, while at the Neurosurgeon appointment, the Dr asked me if I would be interested in being the leader on a Spina Bifida mom's group or at least having a Spina Bifida blog for moms out there in the area. He said that he saw 3 children with Spina Bifida the other day and 4 today. He said that there should be support for just Spina Bifida moms to talk, share and to be there for each other. He said that I have a lot of encouragement to offer. Wow. I am going to pray about this and will let him know. CRAZY thing though, when I was pregnant and we had just gotten the news about Ellington having Spina Bifida I remember Daddy Hewitt and I going to our friend/pastor's house, Ken and just sitting there crying with him. He was trying to make it make sense, "Why would God do this?" He mentioned while we were there, "Maybe God wants you, Crystal to speak to Spina Bifida moms one day!" I said, "NO! Ken, I don't want to do that." Well.....maybe this is God's push....and I will follow if that is what He wants me to do. WOW. Crazy how God works isn't it? Not our plan, but His.
Libro de visitas
Guestbook signed 0 times today
Apreciamos sus mensajes. Tómese un momento para escribir una nota en nuestro libro de visitas o para leer las anotaciones de otros visitantes.
Crystal's CaringBridge site is made possible through donations. You can make a donation to CaringBridge.