My Story

Welcome to my Caringbridge site! It was created to keep friends and family updated about my struggles with Chiari 1, PTC, and a shunt. (And arachnoiditis, narcolepsy, ehlers danlos syndrome...) Also, please check out www.baylieforbrains.com and support Baylie in raising money for Chiari research.

Journal

Wednesday, June 24, 2009 12:46 AM, PDT


Hello!  My appointment yesterday went okay.  The appointment was actually with the neurologist's PA so it was basically just a learn my medical history type of appointment.  I won't see the actual neurologist until September (he books out really far aparently) but we'll see how that goes when I do see him.  Even if they can't help with the majority of my symptoms they should be able to help find a migraine medication that works.  I've been getting actual migraines pretty frequently lately and I would like to get a medication I can taken right when the aura starts to help stop the migraine from buidling.  The PA said that migraines with auras are the easiest type to treat so that's good!  We'll see how the medication works but I'm hoping I can at least take care of that type of headache without too much trouble.

One of my little chiari buddies is having some MAJOR surgery tomorrow in Chicago and could use all the good thoughts and prayers you can send his way.  Gabe is having a cranial expansion.  This will be his third expansion and is going to be a really major surgery.  He has a caringbridge page and I know his family would love to know you all are praying for him.  Please visit his page at www.caringbridge.org/visit/gabehartman

Also, please keep the prayers coming for Autumn.  She has improved some but has a ways to go still.  Her CB page is www.caringbridge.org/visit/gabrieljesus

And lastly, my friend Daniel is going to be having another procedure tomorrow and could also use your thoughts and prayers as well.  www.caringbridge.org/visit/danielhutcheson

I hope you all are having a good week so far! 

Hugs,
Cristina

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HOSPITAL INFORMATION

University of Chicago Comer Children's Hospital
5721 S Maryland Ave
Chicago, IL 60637