Good Morning! I'm off work today because David is out of town. I last updated on February 20, and Zachary got discharged from the hospital the day before. On Saturday, February 21 Zach spiked a fever, and we ended up in the ER in Green Bay. During his hospital stay, he had no fever, and then he gets one. It was a long time in the ER, but they did a chest x-ray and labs. Due to the fever, they needed blood cultures, and that means 2 different spots to draw labs. It was awful. Poor Zach ended up getting poked 6 times. It's so difficult to get blood from him with all of his scar tissue, and he's been poked hundreds of times. Ugh! The doctors were in touch with the doctor at Children's in Milwaukee, and they determined to put Zachary on 2 antibiotics. They wanted him to get his first doses by IV, but I told them NO. That would mean another poke, so Zach was sent home on 2 oral antibiotics while we waited for the results of the blood cultures. We got to the ER on 11:00 am and got home at 5:45 pm. Not Fun!
Since then things have been calm. The blood cultures were negative, and Zachary's hips are doing really well. He had a follow up appointment, and the doctor was impressed with Zach's mobility. He rarely uses his wheelchair and is back using his walker. It's amazing and wonderful. The physical therapist was also impressed. After over a week of aggressive fluid removal dialysis, Zachary is feeling much better. His dry weight has fluctuated over the months, and we need to continue to respond and monitor Zach.