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Zachary’s Story

Zachary received the gift of a new heart on February 19, 2011.  His journey for the last 10+ years has been challenging.  He is an incredible, inspirational young man.



February 2001: 
Diagnosed with Leukemia (ALL)

May 2007: 
Diagnosed with treatment related Leukemia (AML)

August 2007: 
Bone Marrow Transplant

February 2011: 
Heart Transplant

Lord, We pray that no more will be added to this list. We give thanks for hope, faith, and love.  Amen.

Tasks from Zachary’s Planner

Here’s your chance to offer a hand: Sign up for one of the tasks below in Zachary’s planner.

9 am - 12 pm on March 7, 2015

Z-man Cleaning Fans

Hours are flexible. I had to put in a start time & end time to create the schedule.

9 am - 12 pm on March 14, 2015

Z-man Cleaning Fans

Hours are flexible. I had to put in a start time & end time to create the schedule.

9 am - 12 pm on March 21, 2015

Z-man Cleaning Fans

Hours are flexible. I had to put in a start time & end time to create the schedule.

9 am - 12 pm on March 28, 2015

Z-man Cleaning Fans

Hours are flexible. I had to put in a start time & end time to create the schedule.

9 am - 12 pm on April 4, 2015

Z-man Cleaning Fans

Hours are flexible. I had to put in a start time & end time to create the schedule.

9 am - 12 pm on April 11, 2015

Z-man Cleaning Fans

Hours are flexible. I had to put in a start time & end time to create the schedule.

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See the Planner

Latest Journal Update

Catching up on the latest

Good Morning!  I'm off work today because David is out of town.  I last updated on February 20, and Zachary got discharged from the hospital the day before.  On Saturday, February 21 Zach spiked a fever, and we ended up in the ER in Green Bay.  During his hospital stay, he had no fever, and then he gets one.  It was a long time in the ER, but they did a chest x-ray and labs.  Due to the fever, they needed blood cultures, and that means 2 different spots to draw labs.  It was awful.  Poor Zach ended up getting poked 6 times.  It's so difficult to get blood from him with all of his scar tissue, and he's been poked hundreds of times.  Ugh!  The doctors were in touch with the doctor at Children's in Milwaukee, and they determined to put Zachary on 2 antibiotics.  They wanted him to get his first doses by IV, but I told them NO.  That would mean another poke, so Zach was sent home on 2 oral antibiotics while we waited for the results of the blood cultures.  We got to the ER on 11:00 am and got home at 5:45 pm.  Not Fun!  

Since then things have been calm.  The blood cultures were negative, and Zachary's hips are doing really well.  He had a follow up appointment, and the doctor was impressed with Zach's mobility.  He rarely uses his wheelchair and is back using his walker.  It's amazing and wonderful.  The physical therapist was also impressed.  After over a week of aggressive fluid removal dialysis, Zachary is feeling much better.  His dry weight has fluctuated over the months, and we need to continue to respond and monitor Zach.  

Thanks for checking in!