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Zachary’s Story

Zachary received the gift of a new heart on February 19, 2011.  His journey for the last 10+ years has been challenging.  He is an incredible, inspirational young man.



February 2001: 
Diagnosed with Leukemia (ALL)

May 2007: 
Diagnosed with treatment related Leukemia (AML)

August 2007: 
Bone Marrow Transplant

February 2011: 
Heart Transplant

Lord, We pray that no more will be added to this list. We give thanks for hope, faith, and love.  Amen.

Tasks from Zachary’s Planner

Here’s your chance to offer a hand: Sign up for one of the tasks below in Zachary’s planner.

9 am - 12 pm on March 7, 2015

Z-man Cleaning Fans

Hours are flexible. I had to put in a start time & end time to create the schedule.

9 am - 12 pm on March 14, 2015

Z-man Cleaning Fans

Hours are flexible. I had to put in a start time & end time to create the schedule.

9 am - 12 pm on March 21, 2015

Z-man Cleaning Fans

Hours are flexible. I had to put in a start time & end time to create the schedule.

9 am - 12 pm on March 28, 2015

Z-man Cleaning Fans

Hours are flexible. I had to put in a start time & end time to create the schedule.

9 am - 12 pm on April 4, 2015

Z-man Cleaning Fans

Hours are flexible. I had to put in a start time & end time to create the schedule.

9 am - 12 pm on April 11, 2015

Z-man Cleaning Fans

Hours are flexible. I had to put in a start time & end time to create the schedule.

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Latest Journal Update

HOME is the best place to be!

That's right Zachary is home.  He got home last night around supper time, and the dogs went craaazzzyy!  Maddee gave about 50 kisses, wagged her tail frantically, and sat/laid on Zach for at least 15 minutes.  She would not budge off of him even when his leg was starting to fall asleep.  Dakota talked/barked up a storm and was telling a story like a crazed ol' pooch.  It was quite the sight.  

Yesterday morning labs showed a significant drop in the one level for Zachary's heart rejection med which was great (level on Wed was way too high).  This level fluctuates all the time, so it's not unusual for us to adjust the dosage.  It was a little alarming that the level was super high, higher than it has ever been.  That's not uncommon though for a patient on dialysis. Zachary does NOT have heart rejection.  His heart rejection med needed to be adjusted.  He will have labs again today and again next week, so we can monitor the levels.

My mom is the BEST!  When David was suppose to take Zachary to Children's on Monday, his truck was making an awful sound.  How awful?  It was so awful, he felt that he shouldn't drive it to Milwaukee.  My mom helped David get his truck to the shop, and then she drove Zach & David to the hospital.  On Wednesday, she headed down to pick them up.  Then David & Zach got word about the one med level being too high, and Zach ended up not being discharged.  My mom was in Fond du Lac to pick them up, and she had to turn around to go back home.  Yesterday, once again, she headed down to pick up David & Zach. This time she was able to reach the destination and pick up the grateful passengers. Whew!  David's truck is at home, and Tim truly enjoyed taking it to school.  

I posted a few new pictures.  Zachary's friend Lexi is also a cancer survivor.  They had known each other for a few years through our local support group, The Families of Children with Cancer.  Plus Lexi goes to Pulaski High School, and she's in the same class as Tim.  Yesterday was also Zachary's four year anniversary of his heart transplant.  AWESOME!  I'd like to take a moment for you to join me in a prayer for Zach's donor's family.  Also, if you're not a donor, please consider it.  I usually don't get on my soapbox through the journal, but oh my, where would we be without donor families?

The other two pictures represent Zachary's artistic skills, not LEGO skills!  Speaking of LEGO skills, I know many of you are interested in seeing Zachary's LEGO city in our basement.  You'll have an opportunity coming up.  Zachary graduates from high school on Wednesday, May 27 at 7 pm at Pulaski High School.  On Saturday, May 30 from 2 pm to 8 pm we are having a big celebration at our home, and you're all invited. Please bring a dish to share.  Zach really wants to party with everyone.  During the gathering, you may make a donation to tour the LEGO city.  This donation will go to purchasing LEGO sets for the kids at Children's Hospital of Wisconsin where Zachary has spent countless days, weeks, and months.  He is so appreciative to all of the staff members at the hospital that he wants them all invited to the party too.  Hallelujah!

Thanks for checking in and reading the happy new!  Stay warm!



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Comments

1 Comment

Julie LaBerge
By Julie
Awesome post! Just Wonderful :-)