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Zachary’s Story

Zachary received the gift of a new heart on February 19, 2011.  His journey for the last 10+ years has been challenging.  He is an incredible, inspirational young man.



February 2001: 
Diagnosed with Leukemia (ALL)

May 2007: 
Diagnosed with treatment related Leukemia (AML)

August 2007: 
Bone Marrow Transplant

February 2011: 
Heart Transplant

Lord, We pray that no more will be added to this list. We give thanks for hope, faith, and love.  Amen.

Tasks from Zachary’s Planner

Here’s your chance to offer a hand: Sign up for one of the tasks below in Zachary’s planner.

9 am - 12 pm on December 20, 2014

Z-man Cleaning Fans

Hours are flexible. I had to put in a start time & end time to create the schedule.

9 am - 12 pm on December 27, 2014

Z-man Cleaning Fans

Hours are flexible. I had to put in a start time & end time to create the schedule.

9 am - 12 pm on January 3, 2015

Z-man Cleaning Fans

Hours are flexible. I had to put in a start time & end time to create the schedule.

9 am - 12 pm on January 10, 2015

Z-man Cleaning Fans

Hours are flexible. I had to put in a start time & end time to create the schedule.

9 am - 12 pm on January 17, 2015

Z-man Cleaning Fans

Hours are flexible. I had to put in a start time & end time to create the schedule.

9 am - 12 pm on January 24, 2015

Z-man Cleaning Fans

Hours are flexible. I had to put in a start time & end time to create the schedule.

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Latest Journal Update

Discharged & at Home

Sorry for no update until the news of discharge, but the ICU room that Zachary was in had no internet connection.  It initially didn't have any chairs, hospital tray, curtain for the parent corner, and curtain for the room in general.      

I'll give a brief summary.  Thursday night Zachary spent a few hours in the ER at Children's Hospital before being admitted.  Labs and chest x-ray showed nothing which is good, but it also didn't give any reasons for Zach's dizziness & shortness of breath.  On Friday, Zachary had dialysis treatment in the morning & more labs, and in the afternoon, he had a MRI of the head.  Again, nothing which is good, but it also didn't give any reasons for the dizziness & shortness of breath.  So what gives? Not sure.  Truly, the team really wasn't sure why Zachary was feeling so blah.  We think partly it's due to his lack of endurance & stamina for anything physical.  Also, it may be partly due to his one med he's been on for his mental state.  That med is being weaned, and he'll be done with it in a few days.  Zachary has been on that one med since his poor mental status a year ago.  Or a combination of meds, variables, etc. and this is known to the Zman Fans as the ZachFactor.  Saturday was a monitoring day with dialysis in the morning, and Zachary did a few brief walks.  Sunday is discharge day.  Zach is feeling much, much better than he did on Thursday.  We are comfortable he is home, but we discussed having a home health care nurse come & check on Zachary on a regular basis.  Just regular nurse care (not hospice and not palliative).  Zach is so fragile and we want to be proactive.

On a financial note, David is currently in between contracts and hasn't seen a paycheck for October & November.  He only works part time when he does get paid, and need I say more?  I know we've been "in need" for years, so I'm just throwing this out again.  Gas cards are like gold, and we are extremely grateful for anything we receive.

Thank you again for your continued support, love, care, and prayers.  We couldn't do this without you!  Lots of love back to you & your families.  Happy Thanksgiving!





  
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Comments

1 Comment

Lori Block
By Lori Block
So glad you are all home!