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Corinne’s Story

Welcome to our CaringBridge website. This site has been created to glorify God and to keep friends and family updated on Corinne's, Victor's, and our family's experience with childhood cancer (Ewing's Sarcoma).

Victor died peacefully at home, in joyful anticipation of heaven, on September 7, 2011.  He was 14 years old.  We miss him greatly and look forward to seeing him again for eternity.

Corinne continues to be cancer-free.



(You can view videos links to Corinne and Victor's story under the "Resources" tab at the top right of the screen).

Corinne is our 11-yr. old daughter, the 2nd-youngest of 7 children. In May, 2006 (at 6 yrs. old) we noticed that she was favoring her right leg when she ran, resulting in a noticeable limp. After several initial physician visits, doctors misdiagnosed her with  femoral neuropathy (the femoral nerve was not firing, resulting in an inability to use her right quadricep). At the time, we believed it was most likely caused by a severe "charlie horse" she received in March. We were told to expect a somewhat lengthy recovery period, but that the nerve likely would recover on its own. After many specialists over the next 2 months, a second pediatric neurologist suspected that there was more to the problem. An MRI revealed a large pelvic tumor on Sept. 11, 2006. Numerous lab tests and a biopsy determined that she had a soft tissue Ewing's sarcoma. We rejoiced in finding out that the tumor was localized and had not metastisized into the bone or bone marrow. On Sept 22, she began chemotherapy to shrink the tumor. On December 18, a team of surgeons at the Mayo Clinic successfully resected the tumor and performed a rare nerve graft (from the sural nerves behind both calves) to repair the femoral nerve that was severed.  She has recovered such significant use of her quadricep muscles that no one watching her walk would notice her weakness.  Although she gets scans regularly, she is clear of cancer and loves to play hockey and fastpitch softball.

During Corinne's treatment, God enabled us to meet a 9-year-old boy named Victor undergoing cancer treatment. He was in foster care but almost always alone. The Lord drew our hearts to Victor in an unmistakable way. God moved our hearts to adopt Victor, and shortly after our first inquiries, we found out his current foster parents would no longer be able to care for him, that he had the same cancer as Corinne, that it was located in the same place in his body, and that he was on the exact same 'cycle' of treatment as Corinne. Corinne and Victor had their last 3 cycles of chemotherapy in connecting hospital rooms. They both finished their last bag of chemotherapy within a half hour of each other in July, 2007. 

In April 2008 routine scans showed that Victor's cancer had returned in his femur (leg), a tiny spot on his spine and a lymph node in his neck. He finished more rounds of chemo and radiation.  From March-May of 2009, we travelled to and from Indiana for Proton Radiation treatment in the hopes that we could stop another recurrence.  But in August 2009, his cancer was back in his femur, spine, neck, and pelvis.  He started a clinical trial at the U. of Minnesota that worked well for a while ... until June 2010 when his cancer returned in his lungs.  More chemo at home and now a clinical trial through Childrens Hospitals of Minnesota have not been able to stop the progression of his disease.  But Oh, what a journey it has been.

Victor died peacefully at home, in joyful anticipation of heaven, on September 7, 2011.

We would covet your prayers for our family as we walk down a path that we did not choose, but that God chose for us. The Bible tells us over and over again that God is sovereign, and that all of His purposes will be accomplished. We do not know (and will not know) how God is using these cancers and our experience to further His kingdom, but we "rejoice in our present suffering", trusting Him to provide just what we need, when we need it. He is our portion ... and we are fully satisfied in Him. Thank you for helping us to walk by faith on this path.

Latest Journal Update

Good News

Dear friends,

We are praising God tonight that Corinne's scans are clear. The sweetness of this good news is magnified by the past week of waiting and contemplating the alternative. Now, making the 3-hour drive home from Mayo in the dark, I can feel the physical and mental exhaustion from battling my imagination with the truth of God's promises. We have walked this road enough to know with confidence that even if our news was bad today, God would be there to wall it with us. But how grateful we are for his mercies today.


We are still searching for answers to explain Corinne's leg and back pain. Just after my last post, Corinne began to have lower right back pain that concerned us even more. So field of the scans today were widened to include that area. Some of her leg pain has been occasional sharp jolts like nerve pain. We are glad that a tumor is not causing the pain.


One possibility is that her slightly shorter right leg is causing the pain. So after the initial scans and doctor visit, Corinne had a (routine) chest X-ray and then a scanogram to precisely measure her leg lengths. Next week when her primary orthopedic surgeon (Dr. Sim) returns to town, he will view all of the scans and give us his opinion.


Friends, we can't thank you enough for your prayers and encouragement through this time. What a gift!


Resting In His Mercies,

Deb
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Comments

28 Comments

Katy Chen
By Katy
So thankful to God!! Rejoicing with you!!
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Robbie Lewis
By Robbie Lewis
Wonderful, wonderful news! Thank you, Lord, for this mercy!
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1 person hearted this
Sue Wyckoff
By Sue and Pete Wyckoff
Clear Scans! That's just great news. Now to get to bottom of Corrine's problem. We will continue to hold all of you in our prayers
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1 person hearted this
Sue Wyckoff
By
Clear scans! That's just wonderful news! Now to get to the bottom of Corrine's problem. Our prayers continue to be with all of you. - Pete and Sue
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1 person hearted this
Jill Lee
By Jill Lee
Great news, I will continue to pray for your family.
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1 person hearted this
Carrie Schlottman
By Carrie
God's mercies are new every morning. Great is His faithfulness. Thanking God with you for this good news.
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Ann Barney
By Ann Barney
Praise the Lord. What a blessing. He does listen and is with all of us always and ever. Sending more prayers from Florida.

Ann Barney
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Judi Davidson
By Judi Davidson
Words cannot express the joy in my heart for you all! Rejoicing with you in God's great mercy!
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Jan Rosman
By Jan Rosman
WOO HOO! His Word came and healed us...what a blessing. Hugs to your whole family. Rejoice and celebrate!

XOXO
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Pam Olson
By Pam Olson
I am praising God with you, as well!!!!! Yippee!!!! I know God would be with you if it was the worst possible news, but how gracious He is to bless Corinne and your whole family with this wonderful blessing!
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