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Cookie’s Story

In early July, Cookie noticed what we believed to be a bite of some sort on her lower right leg. Soon, she had many more. She noticed that she would find herself sleepy and in need of a nap. Then, more spots appeared with fevers and even more spots. The doctor thought  the spots and fevers were the result of an infection or virus.This lead us to a string of consultations with an infectious disease doctor, a rheumatologist and a dermatologist.Two biopsies were taken from the nodules on her legs and the test results came back negative for an infection or virus. Finally, she was diagnosed with Cutaneous T-Cell Lymphoma.

Latest Journal Update

Now she heals.....

Cookie did great in surgery today.  The doctor was amazed at how shot her left hip was.  He now understands why she is "One Tough Cookie!"  He said her hip was essentially broken and mostly collapsed.  He couldn't imagine the level of pain she must have been living with. 
The first 48 hours is the worst pain, but the team at Children's Hospital is working hard to make sure she is comfortable. We will see how the next couple of days go - home Sunday or Monday.   She is typical Cooks....good spirits, flashing us an ocassional sweet smile.  I think I even caught her sending somebody a snap-chat!
We have felt all of your prayers, kind notes of support - again we experience our amazing support group!  So very blessed!

21 people hearted this



Jill Sanchez
By Jill Sanchez
So glad the surgery went well. We will pray that the next few days the pain will be under control. Love, the Sanchez family
Barb Richter
By Barb Richter
This is wonderful news! Prayers for all of you & positive healing thoughts for Cookie!
Dorothy Schneider-Fuelling
By Dorothy Schneider-Fuelling
We are both glad the surgery went well. Now our HEARTS, PRAYERS AND THOUGHTS will continue to be with you Cookie as you continue to heal in the days ahead.
Love and Hugs to All of the Topps,

Bob and Dorothy
So glad the surgery is behind you. Before you know it, you'll be running around the halls of DSHA! Thoughts and prayers are with you. Let the healing begin!!
The Morrows
Molly Bell
You inspire Cookie! We love you! Xo The Bell Family
Sarah Gomez
By Sarah Gomez
Thanking God for a successful surgery! Our prayers will continue for Cookies comfort and healing. Sending Love!
The Gomez Family
Kathy Mesick
By Kathy Mesick
Oh yeah one tough Cookie is right. Thoughts and prayers for a speedy recovery .
Maureen Hilbert
By The Hilbert Family
Thank goodness it is over and all went well. Prayers and good thoughts continue. The Hilberts
Sarah Gomez
By Sarah Gomez
Such good news! An ans
susan  mcnally
By susan mcnally
We are all rooting for you Cookie! Our thoughts, hearts and prayers remain with you and your family.