My Story

In early July, Cookie noticed what we believed to be a bite of some sort on her lower right leg. Soon, she had many more. She noticed that she would find herself sleepy and in need of a nap. Then, more spots appeared with fevers and even more spots. The doctor thought  the spots and fevers were the result of an infection or virus.This lead us to a string of consultations with an infectious disease doctor, a rheumatologist and a dermatologist.Two biopsies were taken from the nodules on her legs and the test results came back negative for an infection or virus. Finally, she was diagnosed with Cutaneous T-Cell Lymphoma.


linda topp posted a new journal entry, "Now she heals.....".

Cookie did great in surgery today.  The doctor was amazed at how shot her left hip was.  He now understands why she is "One Tough Cookie!"  He said her hip ... Read more

Kim McElroy signed Cookie's Guestbook.

Hope the healing and therapy are going well with less pain every day! Thinking of you, The Hughes' Read more

Kim McElroy signed Cookie's Guestbook.

So glad all went well today... I feel so terrible about the pain she has been enduring. She truly is an inspirational young lady. I hope we could all be as brave and ... Read more

linda topp added a new photo.

Sarah Gomez signed Cookie's Guestbook.

Dear Cookie and Topp Family, We will be praying very hard for a successful surgery and the quickest possible recovery. Sending love! The Gomez Family Read more

Kim McElroy signed Cookie's Guestbook.

Cookie and all, I am not thrilled that you have to go through another surgery, but I know you can't go on enduring the pain you have either! So I'm glad something positive ... Read more

linda topp posted a new journal entry, "New Hip for Cookie!".

Hello Dear Friends and Family-It's been a long time since our last update.  We are thankful that things have been quiet and Cookie has been doing lots of normal things ... Read more

Colleen Funk signed Cookie's Guestbook.

Merry Christmas sweet cookie and Topp family. So glad you are here to celebrate this season. Much love and hugs!! Read more

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