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My Story

In early July, Cookie noticed what we believed to be a bite of some sort on her lower right leg. Soon, she had many more. She noticed that she would find herself sleepy and in need of a nap. Then, more spots appeared with fevers and even more spots. The doctor thought  the spots and fevers were the result of an infection or virus.This lead us to a string of consultations with an infectious disease doctor, a rheumatologist and a dermatologist.Two biopsies were taken from the nodules on her legs and the test results came back negative for an infection or virus. Finally, she was diagnosed with Cutaneous T-Cell Lymphoma.


linda topp posted a new journal entry, "Our Honored Hero".

Cookie has been asked by LLS - Leukemia and Lymphoma Society to be The Honored Hero for the 2013 Light the Night WalkShe will cut the ribbon this Thursday 9/18 in Veterans ... Read more

Colleen Funk signed Cookie's Guestbook.

Merry Christmas sweet cookie and Topp family. So glad you are here to celebrate this season. Much love and hugs!! Read more

Kim McElroy signed Cookie's Guestbook.

Loved your video, Cookie, and so sorry we missed the walk on Thursday night. We would have loved to have been there! So glad we have gotten to know you this year! And so ... Read more

Mary Stoiber signed Cookie's Guestbook.

Awesome, sweet girl! Great job telling your story Cookie! You shine bright girl! Love, All the Stoibers xxoo Read more

Kathy Kelley signed Cookie's Guestbook.

Cookie has always been a star....since she is a "girl" I never quite knew much about her during Danny's younger years....maybe about 1st or 2nd grade I notice a ... Read more

Kathy Mesick signed Cookie's Guestbook.

Wow what a video. Cookie, you are mature beyond your years!! You will go on to do great things. Congrats! Read more

Joe Topp signed Cookie's Guestbook.

Great job on the video Cookie!  You are a natural - so much poise and comfort speaking. Have a blast tonight! Read more

Connie Woodhouse signed Cookie's Guestbook.

Hi Cookie!Love the video clip! LOVE the part with the peanut butter facial! :) We will have to try that at The WELL Spa! Wish we could be there for the big night tonight. ... Read more

Cindy Taylor signed Cookie's Guestbook.

Great job with the video. Cookie, you have such grace, beauty, and confidence. Outstanding.Sending love and prayers to you and your family. Read more

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