My Story

My name is Connor Gerber, a 8 year old from Cape Town, South Africa. I was diagnosed with stage IV Neuroblastoma in July 2005, a week after my 4th birthday. I have been treated at home in South Africa, and at Sloan-Kettering in New York, for the past 4 years, with my current status being stable refractory disease.

Journal

Sunday, July 5, 2009 12:38 PM, CDT


Wow what a day.  After dropping Bruce and Connor at the airport full of sadness and tears running down both Aidan and Ethan fell asleep so the drive home was very quite.  Got home carried them both inside but they woke up, so everytime Aidan heard a plane he was convinced that it was Daddy and Connor.  SO we had supper and Ethan fell asleep while  Aidan was in the bath and I decided to quickly do the dishes and I kept hearing water running thinking it is Aidan who is putting more hot water in the tub, eventually I said to me enough now you are going to get wrinkled from all the hot water you keep putting in and that is when he said Mom it is not me, so I went down the passage and all I could see was water running down from the ceiling and the outflow outside was just overflowing.  Called my friend Nita and she and her hubby came over quickly, he turned of the geyser as well as the water, phoned a plumber who eventually got here and told me that the geyser burst.  I was like please tell me you are joking, but the worse part then was that he said he can't help me and that I had to phone our insurance 1st thing monday morning I'm like there is no way I am going to go without hot water.  So he left and Nita and I carried on talking next minute I get a phone call at 11:50pm from Bruce saying please come and fetch us, I was like what is next, Bruce and Connor was sitting on the plane for 5 hours on the runway, no one knew what was going on and they were told that there might be a flight in the morning either 11am or 13pm we were so stressed out knowing that Connor is going to miss out on his PET injection and PET scan but we emailed the docs immediatly, went to bed after 2am after also speaking to the tollfree line of our insurance.  Got up at 7am and was on the phone non stop trying to see if the plane have been fixed and what time the flight will be, plus not to mention trying to sort out the geyser.  So eventuall lunch time came geyser is fixed, and finally got the call from the airport at 14:20pm that there is a flight available for them at 15:50pm to Jhburg then to New York so had less than an hour to get them to airport plus to sort out tickets.  Bruce eventually got there only to have another problem they did not do something with Connor's ticket but they let them boarded to Jhburg but when they get there Bruce had to go and sort out Connor's ticket.  Well I can finally breathe a little bit as I have just spoken to Bruce and they are in the plane and about to take off to New York and will be there early in the morning, he will then take Connor straight to the hospital and hopefully they will still be able to do the PET injection as well as the PET scan as sheduled, how I wish them even more strenght as they are going to be over tired.  Ethan is finally sleeping after walking up and down and crying for Daddy, Aidan who is about to jump in the bath have not stop asking when is Daddy and Connor coming back, thanks again for checking in on us, till next time.

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E-MAIL AUTHOR

taniaandbruce@gmail.com

HOSPITAL INFORMATION

Memorial Sloan-Kettering Cancer Centre
1275 York Avenue
New York, NY 10021