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Connor’s Story

Welcome to Connor Frankenberg's special website. It has been created not only to keep friends and family updated but to give hope to those diagnosed with DIPG's.

Be sure to read the latest in the journal, view the photo gallery, and drop us a line in the guestbook.

On September 9th, 2003, Connor was diagnosed with a diffuse intrinsic brain stem glioma. He was only 5 weeks old. With no surgical options, no chemotherapy or radiation available, we were sent home to care for Connor until he passed away. Because of the size and infiltration of the tumor, we were told he would last only 30 days.

Our special miracle is now 5 years old! As far as we know, the tumor is still present. We have not had an MRI since he was 2 years old. To us, every day with Connor is a gift from God.