My Story

I'm Connor and I'm four. In 2007, I was diagnosed with a Mitochondrial Complex lll disease. In February of 2009 I was diagnosed with Bjornstad Syndrome as well. Please feel free to see what my life is like daily.

Phil 4:13- " I can do all things through Christ who strengthens me"

Journal

Saturday, July 4, 2009 8:55 PM, CDT


Happy 4th of July!

Oh my lack of updates I know. Not feeling like many people are reading now,not many signing guestbook :(

Connor is doing well. We had a rough first of the week and actually started packing for Duke. Thought that is where we would be for the 4th. God took control and Connor turned around. (thank you God)

Spending his days,on his playground, practicing with his new or should I say his school walker. Sleeping pretty good at night,except for some reason woke really really early this morning. He's growing so much!! We have an endocrinology apt on Wed. in Raleigh,can't wait to see him on the charts and what she has to say. We may be going to Duke also next week for a new kind of feeding tube. We have not been able to feed during the night for a week now. (leaking) Although he seems to be handeling it well, we know he needs the calories.

Spent the evening with my inlaws tonight and was able to have my parents over last night for steaks! Great visit!! Connor did some real entertaining!

I would like to put out special prayer for Landon one of our buddies! He is exspecting surgery this week (may God lay his healing hands upon him and take care of the infection he is growing in his line) We love you all Jen,hang in. Landon is a Mito fellow also. You can visit him at www.caringbridge.org/visit/landonweber
 Please leave a note of encouragement or prayer for them.

Well, not much else going on here,I'll update as soon as we see the doctors this week. God Bless all and God Bless the USA!


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6460 Brittany Rd. Rocky Mount,NC 27803

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E-MAIL AUTHOR

armstrong111369@aol.com

HOSPITAL INFORMATION

Duke Children's Hospital Durham, NC and Scottish Rite Childrens Hospital in Atlanta,GA
NC