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Conner’s Story

Welcome to our CaringBridge site. It has been created to keep friends and family updated about our loved one.

My Story is the introduction to our CaringBridge site.

Be sure to read the latest in the journal, view the photo gallery, and drop us a line in the guestbook.

On May 19, 2006 my life changed forever. My husband Kris had a motor vehicle accident that killed him and my 6 year old son Adam. Conner was one at the time, and suffered a spinal cord injury at C1, 2 and 3. The doctors told me the night of the accident to prepare myself because Conner would never survive through the night. We had thousands of people praying for Conner that night and for God to do a miracle in him! I have never prayed so hard before in my life for something. I just begged God to let Conner live. I needed him. I was 29 years old and just lost everything that was precious to me! I had no idea how I was ever going to survive this tragedy. That is the thing though, without God you can't survive a tragedy as great as this! Well clearly you can see that Conner survived through the night. The next few weeks were really hard though. The doctors told me that Conner was going to have no quality of life and would be paralyzed from the neck down. He was also in a coma and ended up coming down with spinal meningitis. His outcome did not look good. He was on a ventilator and couldn't breath on his own. The doctors told me that I needed to let Conner go. They even went as far to tell me that they would put him in my lap and let me rock him to sleep (death)! I was mortified!! I told them there was no way I was going to do that, and that God could have taken Conner when the accident happened. It wasn't a survivable accident! God saved him from the wreck for a reason! I told them I was having faith and believing in God to heal Conner! They did not support my decision and told me I was being very selfish and not thinking about Conner's quality of life! I told them that God could take Conner right now if he wanted him. I told them that where there is life, you always choice life! Today I am so thankful that I put my faith and trust in God! Conner is a living miracle, and yes we have had a very hard road to follow and continue to have a huge journey in front of us, but the blessings God has given us along the way, have been absolutely amazing! It has been almost 7 years since the accident happened and Conner is making great strides everyday! He is able to breath on his own off the vent for over an hour right now. Which if he can breath an hour on his own, he will continue to get stronger and be able to come off the ventilator one day!! We just have to keep praying and believing! He has all feeling and sensation throughout his body! He can use his arms to roll over from his side to his back! He gets stronger and stronger everyday! God also brought love back into my life again, and I remarried 2 years ago! He is a great man of God and is a great daddy to Conner! God has blessed our lives more than I could ever imagine or deserve! We do still have hard days and struggles, but God is always faithful to take care of our every single need! We are believing that God will completely heal Conner one day and he will be a walking testimony for God! I pray that God uses him and his testimony for his GLORY and KINGDOM!!! We appreciate all the prayers you lift up to God on behalf of Conner! We ask that you continue to pray and believe with us that God is going to completely heal Conner! We serve and AWESOME and AMAZING God!!!

Isaiah 40:31

But those who hope in the Lord will renew their strength. They will soar on wings like eagles; they will run and not grow weary, they will walk and not be faint.

Sonya

Latest Journal Update

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Hello Everyone! Once again, I am way behind on updating! It is amazing how fast life goes by! We have already been to Baltimore and back, and I didn't even realize I didn't update while we were in Baltimore. Time just slips by so fast in our lives! We had a really good trip in Baltimore. We were there the last week of October and first week of November. I will have to post a picture of Conner's Halloween costume. It turned out awesome! He was the talk of Kennedy Krieger for sure! While we were there, they did have to address some issues that Conner has been having. His right hip and right arm have been having some issues. We found out that his right hip is 50% out of socket and he has two torn ligaments in his arm by his elbow. We aren't really sure how the arm happened. It could have been from riding the arm bike or during a transfer. He has gone through a huge growing spurt this past year and his right side is his weaker side, so they are thinking his right side was affected due to this. The good thing is, his ligaments are healing, so we just have to baby his arm until it is completely healed up. The Ortho doctor will check it again in May when we go back, just to make sure it has healed correctly. His hip on the other hand, there isn't much we can do about it right now until he is done growing. They did add some exercises to strengthening the muscles around the hips, to try and keep it from coming out of socket anymore than it already is. This happened due to him not being able to weight bear as much as a child should be weight bearing all these years. So it was expected to come, but that still doesn't make me anymore comfortable about it. It is very painful and uncomfortable for him. Luckily they showed us positions that we need to keep the hip in, so that it doesn't cause him pain while standing and sitting. We are just going to pray hard that we can keep it from getting any worse.

Enough of all the bad news though, onto the good news! They are very excited about his arms and how strong they are getting. There has been a significant change in his arm movement and strength over the last year. This is such exciting news. I have always said that Conner can do anything in life on his own, if he can use his arms and hands. He is able to move other parts of his body as well, but the arms are rocking and rolling right now. We still have a ways to go with them, but it is exciting that things are progressing well with them. His little fingers are starting to get tight from lack of use, but we have some new exercises and hand splints to work on loosening them back up. It is amazing what your body starts doing, when you don't use something all the time. His PT at Kennedy Krieger has started submitting her case study she is doing with him at a few places around the US to present it. We are praying great blessings over this and that Conner's story gets out there to show other people to never give up! So all and all we had a great trip to Baltimore. It just went by to fast as it always does! 

Now onto his bladder, we have been having some issues again. The weekend of Thanksgiving, Conner starting urinating blood again. This has been happening every 6 weeks to the day almost since the first of this year. All of Conner's urine cultures in the past have come back clear of infection. So it doesn't make any sense, why this keeps happening. We have been asking our urologist at Children's Hospital to please scope him. He keeps telling us no, that he doesn't believe there is anything going on inside the bladder and just thinks his bladder is getting to full which is causing the bleeding. I have explained to him numerous times that we cath Conner every 4 to 5 hours and his bladder is not getting over extended. So this time when it happened again, I told Robbin we are going back to our local urologist here. Something clearly isn't right, and every time this happens it causes his blood pressure and heart rate to go way to high. When this issue happens it can cause him to have a stroke or cardiac arrest! This is not okay for this to continue to happen every 6 weeks. We got him into our local urologist last Wednesday and he scoped him on Friday. Sure enough he has a nasty infection, but it is inside the deep tissue of the bladder. His poor little bladder inside had pus and bleeding everywhere. No wonder he has been so miserable!! He actually took a sample of the bladder tissue and had it cultured. The infection is a very weird and rare infection. Leave it to Conner to have something rare, haha! The lab reports came back yesterday, so today we started IV antibiotics. We have to do 7 days of IV antibiotics. Luckily they are allowing us to do them from home! We did not want him to have to be exposed to all the sickness in the hospital right now!! We are praying that this kicks this nasty infection out and the bladder problems will be over with after this!!! 

I am praying for GREAT and MIGHTY things in 2016 for Conner!! He has had a rough year with his pancreas and bladder issues! I believe we finally have the pancreas issues fixed now, we haven't had any issues with it since they went in and blasted the stones in his pancreatic duct. So we are hopeful that is in the past now. I won't lie though, starting him on powerful IV meds scares me a little. We know that his pancreas is very sensitive and strong medicines can cause it to flare up. So every time I start his IV meds, I am praying over them to not affect his pancreas in any way! We need a great year in 2016! Things get so overwhelming sometimes trying to juggle owning our own business, Conner having health issues, Conner's therapy, Conner's homeschooling, Conner's doctor appointments, two teenage boys who are in sports,  trying to keep the housework and laundry done, and the list goes on. So I just want a good year with no health problems, so we can focus hard on all of our daily task! We need to be able to get back to our hard core therapy everyday, so Conner can continue to get stronger! I am so thankful for his precious attitude! Even when he doesn't feel good, he can make my day so much brighter! He never gets down or depressed. He always has a smile for me, no matter what the situation is. I can't imagine my life without him! So thankful God allow me to keep him here with me! Thank you all for loving and praying for him! I hope his smile blesses you as much as it does us! We hope you all have a wonderful Christmas! Remember that Jesus is the Reason for the Season! 

Robbin, Sonya, and Conner 
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Comments

1 Comment

Patricia McClead
By Pat in Lewisville
Lord I ask You to plunder from the enemy all that has been taken from this family. Bless them with a year of peace and health. Thank You Sir.

Merry Christmas and a Blessed New Year to all of you and especially to Conner
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