Colyn McDaniel
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Rhabdomyosarcoma (Alveolar) ARMS stage 3 group 3

dx 10/6/2007

COG clinical trial ARST0531

40 weeks of Vincristine, Dactinomycin and Cyclophosphamide (VAC) alternating with

Vincristine and Irinotecan; plus 28 radiation treatments.

This web site has been established to keep all my family, friends and cancer buddies informed of my health and treatment summary.

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  TUESDAY, JULY 15, 2008 10:22 PM, CDT
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Well I must say I have done a great job staying busy. Over the weekend we headed down to Northern Kentucky. I had a great time. I walked acrossed the Ohio River (actually strolled- thanks Ash), I took a horse & carriage ride, went to the Newport Aquarium- I loved the sharks and electric eels, and went bowling at my cousin Hunter’s birthday party. It was busy, but it sure was fun! On Monday I headed down to clinic. I saw Stacey & Dr. Yeager. They held my Vincristine. I just might be done with that chemo. My feet/ankles are starting to really feel the side effects. I will be increasing my physical therapy to try & help out. I might even wear some braces on my legs until I get a little stronger. I am still counting down the days (mommy & daddy are counting down my chemo days; I am counting down getting my tubes out). I just can’t wait!

My mommy & daddy have a special prayer request. They found out this evening that a young boy, Nick Nischan, we meet through Dan & Chantel, who has been battling a brain tumor since 2002; has another tumor in his brain. Since the age of seven he has had 5 brain surgeries. His family was told today that the new tumor is inoperable. Please keep this family in your prayers.

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EMAIL AUTHOR
angiemcdaniel@columbus.rr.com

HOSPITAL INFORMATION
Nationwide Children's Hospital
700 Children's Drive
Columbus, OH 43205
United States
614-722-2000