It has been a month since our Super Hero left us for a better place. We miss him so very much. Life is just not the same without him here to make us laugh and give us his wonderful hugs & kisses. It seems like it has been so long since I have held him and the reality of never being able to hold him & love on him again is just starting to sink in. I don't think I could ever put into words how much this hurts or what this feeling is like.
We are doing our best to adjust to life without Collin, but it is very difficult for us. We are so thankful for the friends who have stuck right by our sides through this and are still walking this path with us. God has placed some amazing people in our lives to help us with our pain & with this transition. To all of you who have been right here holding our hands, we love you & we thank you so much! For those of you who are with is in prayer & thoughts, but are not able to be right here with us, thank you. We need all your thoughts & prayers & we appreciate you so very much for lifting us up during this time.
Please continue to keep our family in your thoughts & prayers. This is more difficult than I could have ever imagined it would be. We are all having a tough time with everything right now. Even though sweet Collin is at peace, our pain has only multiplied.
I am pleased & honored to announce something wonderful from the Guthy Jackson Charitable Foundation. They have started the "Collin McDaniel Hope Grant" specifically for pediatric NMO research! We are so thankful Victoria, Bill, Ali & all the others at GJ have decided to honor our Super Hero in this way! Our hope & prayer is to find treatment & a cure for NMO so no one else has to go through the things Collin went through and no other family has to loose a child because of it. Thank you so very much to everyone at GJ! We love you & look forward to being more active with you in the future!
Thanks for checking up on us. It is a long, hard road right now, please continue to pray.