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Clydene Dyer
Clydene Dyer
Seems like yesterday that Collin was here! Remembering him and his precious ways....remembering the first time I met Collin and family...it was actually the first day he was admitted to Children's Hospital and for some reason I was clowning by myself iin the middle of the day ... he was so precious and did not realize what a long hard journey the next five years would be.  Only God knows the hardships your precious family has been through....praying for you and thankful that God has directed your steps in such a way that you are making a difference in regard to NMO, as your family has experienced this first-hand.  God bless all of you.  Lil' Darlin
Grace Mitchell
Grace Mitchell
Dearest Lisa,

You and Carey are amazing parents.  I am so happy that you're continuing Little Collin McHandsome's work.  He left such a legacy for all of us in the NMO community.  God has taken his illness and  turned it into something very positive through your continued work for Collin's fellow NMO patients.  You are amazing.

I love you,


Jo-Jo 

 

 
Carole Tarpley
Carole Tarpley
Hello Lisa,
It is hard to believe it has been a year.  There have been times I have thought about Collin, but not everyday as I'm sure you and your family have.  When I think of him, I always imagine him with his cape on, flying around up in heaven.  I am sure God is using him to perform super duties!  And always when I think of him, he is smiling and happy.  I never met him, or your family but I feel like I know you all.  He touched so many people's lives that he never even met and continues to do so...I pray God will continue to comfort you as you struggle each day in life without him here with you.  Fly Collin, fly!
Linda Bisset
Linda Bisset
Dear Lisa and Carey,

I'm so glad you've kept this site up and running.  I think of y'all often, but have been struggling, since October of 2012 with viruses, infections and flares.  I've been in and out of the hospital and physical therapy rehab and it gets harder and harder to "bounce back" when hit with so much in a short span of time, which you know all too well.

The letter from your friend is really poignant .   She might consider submitting it to her local paper.  If it is too late this year, next year the message will still be relative, both for bullying and awareness of rare diseases.  

Somehow, I haven't managed to keep up with Rare Disease Day and it is an opportunity to help foster awareness.  Collin was a good ambassador for NMO.  None of us want to be ill, but when disease strikes, we have no option but to deal with it.  How we choose to deal with our circumstances, no matter what they are, is our choice and that choice is what either inspires others or drives others away.  Collin was an inspiration.  He fought so hard and always gave his best.  He inspired so many people and his legacy lives on!

Collin has been on my mind and I smiled a BIG smile when Jimmy Johnson was the big winner!  Maybe you could request Jimmy Johnson to wear a green jumpsuit, with a RDD logo, for one race per year?  I'm sure he has met others with rare diseases and he knew he was Collin's favorite when Collin met him.  Attach the pic of Collin and his hero to your email or snail mail request.  Wouldn't that be wonderful press coverage when reporters ask about the green jumpsuit, with him advocating for rare diseases? 

Are there any others of you, reading the posts on this site, and/or know or live with a Rare Disease friend, family member or face a Rare Disease yourself, who might help advocate for Rare Disease Day?   If you have met a celebrity or well known person, please consider asking them to wear green, thus bringing awareness to this cause!

Is there already a logo and/or a place to plug in - like a website, for Rare Disease Day?  If someone knows about this, please give the info to Lisa and Carey and they can let all of us know.

One of Collin's Froggies,
Jan Nutter
Jan Nutter
Dear Carey & Lisa,

It is so hard to believe it has been 6 months since Collin went to glory in heaven. I am sure at times it seems like yesterday and at other times it seems so long ago. You are in my thoughts and prayers as you press forward to serve the Lord and carry out the legacy of Collin's love and life. Call me any time. If you ever have any speaking engagements in the Dallas area you can always stay with us, or if you just want to come for a vacation! (that is if we ever get a house...we are still looking after being out of our house for 8 weeks)

Love and prayers,

Jan

Premier Designs Prayer Service
MAGGIE WOOD
MAGGIE WOOD
Lisa,

I've been praying so hard that you would "in time" come to see that it is meet for you to speak, share your knowledge, and reach out to others.  Collin will live on in each one of us forever and even more so now that you have discovered your new journey in which God has in store for you.

When I think of Collin . . . the words . . . BUILD IT AND THEY WILL COME . . . runs through my head.  He was a fighter and in memory of him everyone needs to pitch in and continue to fight.  I have said it a thousand times . . . he brought all the froggies together for more than just the moment . . . . in my heart I know he wants the fight for life to continue.

You know Collin better than anyone . . . you know your heart better than anyone . . . you know what you have to do better than anyone . . . I KNOW (A LONG WITH MANY MANY MORE) THAT YOU WILL EXCEED.  I am so proud of you!
Marlene Hunter
Marlene Hunter
Dear All:
Thank you for posting.  I know how hard it must be.
It's been eleven weeks today since my Bob "died."  He was soooo ready and when I read your beginning about Collin running and playing I thought, "No."  He's out by the river and Bob is teaching him how to fish just like he did with all his other grandchildren.
God's speed.
Love,
Gramma Sissie
Dana Stroud
Dana Stroud
Dear Lisa,

My heart is so sad for you and for your family.  I can't even imagine the pain you must be experiencing.  Just know I love you and think you are such a brave woman.  You have walked where most mothers have never fathomed walking and yet you are still so strong.  I know it is Jesus holding you and carrying you through this.  I missed seeing you at Rally so much.  I want to give you a hug and let you know my heart is aching with you. 

Love you much!

Dana
Janis Tidd
Janis Tidd
HAPPY BIRTHDAY IN HEAVEN, COLLIN!!

What a wonderful pic of you.

Hugs & love to your family.  I know this is sooooo hard for them, especially for Mom.   My granddaughter, Rebecca,  was born today, 10 years ago, too so your story has been followed by her Mom, Caryn Fletcher & myself.  God bless all of you & keep you in his loving care.

It's so nice to think of you running & playing & having your blue birthday cake with Jesus, Collin!!
Marlene Hunter
Marlene Hunter
Today is our oldest daughter's 55th birthday...her father, my husband, died of this awful disease just 11 days ago - I keep thinking he's up there looking out for little Collin in a grandfatherly way.  He wrote the following while hospitalized due a relapse...
"During the past thirty months I have had many conversations with
the Man from Galilee and I know that He has heard from many of you on my
behalf. Based on my experiences I can tell you that prayer does work. I am
sharing with you a few words which I have taken from an e-mail I received
recently. I share them with you because they have certainly worked for, and
comforted me, and I know they will do the same for you.





When God leads you to the edge of the cliff, trust Him fully and let
go. Only 1 of 2 things will happen.

         He will catch you when you fall or He will teach you how to fly!



 I
would rather live my life as if there is a God, and die to find there isn’t,
than live my life as if there isn’t and die to find out there is.



When you feel a special need to speak with the Lord, just say, 'Jesus, I love you and need you. Come into my heart and bless me, my family my home and all of my
friends. I ask this in your name. Amen' 

I assure you, He will respond.



May
the Peace of the Risen Lord be with each of you,



 Bob



July, 2012"
Clydene Dyer
Clydene Dyer
Happy Birthday Collin! You will never be forgotten.  Love you so much. Love your family....hugs and kisses! Can't imagine the joys of heaven you are experiencing! My sweetie and I were just talking this morning about animals in heaven, and how wonderful just that will be, not counting all the wonders there, the most wonderful being Jesus. 

 
Anita Cates
Anita Cates
Dear McDaniel Family, I continue to keep you in my prayers as you learn to live without Collin in your daily lives.  I hope it brings you joy to know how he touched all who came in contact with him whether in person or via the internet, he truly is a Super Hero(that will never change).  I am blessed to have been part of his community for a short time of his life, thank you for sharing your sweet boy.
Wishing Collin the Happiest of Birthdays in Jesus' loving arms.

Love and hugs to all
Clydene Dyer
Clydene Dyer
Seems like yesterday that Collin was here! Remembering him and his precious ways....remembering the first time I met Collin and family...it was actually the first day he was admitted to Children's Hospital and for some reason I was clowning by myself iin the middle of the day ... he was so precious and did not realize what a long hard journey the next five years would be.  Only God knows the hardships your precious family has been through....praying for you and thankful that God has directed your steps in such a way that you are making a difference in regard to NMO, as your family has experienced this first-hand.  God bless all of you.  Lil' Darlin
Grace Mitchell
Grace Mitchell
Dearest Lisa,

You and Carey are amazing parents.  I am so happy that you're continuing Little Collin McHandsome's work.  He left such a legacy for all of us in the NMO community.  God has taken his illness and  turned it into something very positive through your continued work for Collin's fellow NMO patients.  You are amazing.

I love you,


Jo-Jo 

 

 
Linda Bisset
Linda Bisset
Dear Lisa and Carey,

I'm so glad you've kept this site up and running.  I think of y'all often, but have been struggling, since October of 2012 with viruses, infections and flares.  I've been in and out of the hospital and physical therapy rehab and it gets harder and harder to "bounce back" when hit with so much in a short span of time, which you know all too well.

The letter from your friend is really poignant .   She might consider submitting it to her local paper.  If it is too late this year, next year the message will still be relative, both for bullying and awareness of rare diseases.  

Somehow, I haven't managed to keep up with Rare Disease Day and it is an opportunity to help foster awareness.  Collin was a good ambassador for NMO.  None of us want to be ill, but when disease strikes, we have no option but to deal with it.  How we choose to deal with our circumstances, no matter what they are, is our choice and that choice is what either inspires others or drives others away.  Collin was an inspiration.  He fought so hard and always gave his best.  He inspired so many people and his legacy lives on!

Collin has been on my mind and I smiled a BIG smile when Jimmy Johnson was the big winner!  Maybe you could request Jimmy Johnson to wear a green jumpsuit, with a RDD logo, for one race per year?  I'm sure he has met others with rare diseases and he knew he was Collin's favorite when Collin met him.  Attach the pic of Collin and his hero to your email or snail mail request.  Wouldn't that be wonderful press coverage when reporters ask about the green jumpsuit, with him advocating for rare diseases? 

Are there any others of you, reading the posts on this site, and/or know or live with a Rare Disease friend, family member or face a Rare Disease yourself, who might help advocate for Rare Disease Day?   If you have met a celebrity or well known person, please consider asking them to wear green, thus bringing awareness to this cause!

Is there already a logo and/or a place to plug in - like a website, for Rare Disease Day?  If someone knows about this, please give the info to Lisa and Carey and they can let all of us know.

One of Collin's Froggies,
Jan Nutter
Jan Nutter
Dear Carey & Lisa,

It is so hard to believe it has been 6 months since Collin went to glory in heaven. I am sure at times it seems like yesterday and at other times it seems so long ago. You are in my thoughts and prayers as you press forward to serve the Lord and carry out the legacy of Collin's love and life. Call me any time. If you ever have any speaking engagements in the Dallas area you can always stay with us, or if you just want to come for a vacation! (that is if we ever get a house...we are still looking after being out of our house for 8 weeks)

Love and prayers,

Jan

Premier Designs Prayer Service
Marlene Hunter
Marlene Hunter
Dear All:
Thank you for posting.  I know how hard it must be.
It's been eleven weeks today since my Bob "died."  He was soooo ready and when I read your beginning about Collin running and playing I thought, "No."  He's out by the river and Bob is teaching him how to fish just like he did with all his other grandchildren.
God's speed.
Love,
Gramma Sissie
Janis Tidd
Janis Tidd
HAPPY BIRTHDAY IN HEAVEN, COLLIN!!

What a wonderful pic of you.

Hugs & love to your family.  I know this is sooooo hard for them, especially for Mom.   My granddaughter, Rebecca,  was born today, 10 years ago, too so your story has been followed by her Mom, Caryn Fletcher & myself.  God bless all of you & keep you in his loving care.

It's so nice to think of you running & playing & having your blue birthday cake with Jesus, Collin!!
Clydene Dyer
Clydene Dyer
Happy Birthday Collin! You will never be forgotten.  Love you so much. Love your family....hugs and kisses! Can't imagine the joys of heaven you are experiencing! My sweetie and I were just talking this morning about animals in heaven, and how wonderful just that will be, not counting all the wonders there, the most wonderful being Jesus. 

 
Anita Cates
Anita Cates
Dear McDaniel Family, I continue to keep you in my prayers as you learn to live without Collin in your daily lives.  I hope it brings you joy to know how he touched all who came in contact with him whether in person or via the internet, he truly is a Super Hero(that will never change).  I am blessed to have been part of his community for a short time of his life, thank you for sharing your sweet boy.
Wishing Collin the Happiest of Birthdays in Jesus' loving arms.

Love and hugs to all
Carole Tarpley
Carole Tarpley
Hello Lisa,
It is hard to believe it has been a year.  There have been times I have thought about Collin, but not everyday as I'm sure you and your family have.  When I think of him, I always imagine him with his cape on, flying around up in heaven.  I am sure God is using him to perform super duties!  And always when I think of him, he is smiling and happy.  I never met him, or your family but I feel like I know you all.  He touched so many people's lives that he never even met and continues to do so...I pray God will continue to comfort you as you struggle each day in life without him here with you.  Fly Collin, fly!
MAGGIE WOOD
MAGGIE WOOD
Lisa,

I've been praying so hard that you would "in time" come to see that it is meet for you to speak, share your knowledge, and reach out to others.  Collin will live on in each one of us forever and even more so now that you have discovered your new journey in which God has in store for you.

When I think of Collin . . . the words . . . BUILD IT AND THEY WILL COME . . . runs through my head.  He was a fighter and in memory of him everyone needs to pitch in and continue to fight.  I have said it a thousand times . . . he brought all the froggies together for more than just the moment . . . . in my heart I know he wants the fight for life to continue.

You know Collin better than anyone . . . you know your heart better than anyone . . . you know what you have to do better than anyone . . . I KNOW (A LONG WITH MANY MANY MORE) THAT YOU WILL EXCEED.  I am so proud of you!
Dana Stroud
Dana Stroud
Dear Lisa,

My heart is so sad for you and for your family.  I can't even imagine the pain you must be experiencing.  Just know I love you and think you are such a brave woman.  You have walked where most mothers have never fathomed walking and yet you are still so strong.  I know it is Jesus holding you and carrying you through this.  I missed seeing you at Rally so much.  I want to give you a hug and let you know my heart is aching with you. 

Love you much!

Dana
Marlene Hunter
Marlene Hunter
Today is our oldest daughter's 55th birthday...her father, my husband, died of this awful disease just 11 days ago - I keep thinking he's up there looking out for little Collin in a grandfatherly way.  He wrote the following while hospitalized due a relapse...
"During the past thirty months I have had many conversations with
the Man from Galilee and I know that He has heard from many of you on my
behalf. Based on my experiences I can tell you that prayer does work. I am
sharing with you a few words which I have taken from an e-mail I received
recently. I share them with you because they have certainly worked for, and
comforted me, and I know they will do the same for you.





When God leads you to the edge of the cliff, trust Him fully and let
go. Only 1 of 2 things will happen.

         He will catch you when you fall or He will teach you how to fly!



 I
would rather live my life as if there is a God, and die to find there isn’t,
than live my life as if there isn’t and die to find out there is.



When you feel a special need to speak with the Lord, just say, 'Jesus, I love you and need you. Come into my heart and bless me, my family my home and all of my
friends. I ask this in your name. Amen' 

I assure you, He will respond.



May
the Peace of the Risen Lord be with each of you,



 Bob



July, 2012"
Clydene Dyer
Clydene Dyer
Seems like yesterday that Collin was here! Remembering him and his precious ways....remembering the first time I met Collin and family...it was actually the first day he was admitted to Children's Hospital and for some reason I was clowning by myself iin the middle of the day ... he was so precious and did not realize what a long hard journey the next five years would be.  Only God knows the hardships your precious family has been through....praying for you and thankful that God has directed your steps in such a way that you are making a difference in regard to NMO, as your family has experienced this first-hand.  God bless all of you.  Lil' Darlin
Carole Tarpley
Carole Tarpley
Hello Lisa,
It is hard to believe it has been a year.  There have been times I have thought about Collin, but not everyday as I'm sure you and your family have.  When I think of him, I always imagine him with his cape on, flying around up in heaven.  I am sure God is using him to perform super duties!  And always when I think of him, he is smiling and happy.  I never met him, or your family but I feel like I know you all.  He touched so many people's lives that he never even met and continues to do so...I pray God will continue to comfort you as you struggle each day in life without him here with you.  Fly Collin, fly!
MAGGIE WOOD
MAGGIE WOOD
Lisa,

I've been praying so hard that you would "in time" come to see that it is meet for you to speak, share your knowledge, and reach out to others.  Collin will live on in each one of us forever and even more so now that you have discovered your new journey in which God has in store for you.

When I think of Collin . . . the words . . . BUILD IT AND THEY WILL COME . . . runs through my head.  He was a fighter and in memory of him everyone needs to pitch in and continue to fight.  I have said it a thousand times . . . he brought all the froggies together for more than just the moment . . . . in my heart I know he wants the fight for life to continue.

You know Collin better than anyone . . . you know your heart better than anyone . . . you know what you have to do better than anyone . . . I KNOW (A LONG WITH MANY MANY MORE) THAT YOU WILL EXCEED.  I am so proud of you!
Janis Tidd
Janis Tidd
HAPPY BIRTHDAY IN HEAVEN, COLLIN!!

What a wonderful pic of you.

Hugs & love to your family.  I know this is sooooo hard for them, especially for Mom.   My granddaughter, Rebecca,  was born today, 10 years ago, too so your story has been followed by her Mom, Caryn Fletcher & myself.  God bless all of you & keep you in his loving care.

It's so nice to think of you running & playing & having your blue birthday cake with Jesus, Collin!!
Linda Bisset
Linda Bisset
Dear Lisa and Carey,

I'm so glad you've kept this site up and running.  I think of y'all often, but have been struggling, since October of 2012 with viruses, infections and flares.  I've been in and out of the hospital and physical therapy rehab and it gets harder and harder to "bounce back" when hit with so much in a short span of time, which you know all too well.

The letter from your friend is really poignant .   She might consider submitting it to her local paper.  If it is too late this year, next year the message will still be relative, both for bullying and awareness of rare diseases.  

Somehow, I haven't managed to keep up with Rare Disease Day and it is an opportunity to help foster awareness.  Collin was a good ambassador for NMO.  None of us want to be ill, but when disease strikes, we have no option but to deal with it.  How we choose to deal with our circumstances, no matter what they are, is our choice and that choice is what either inspires others or drives others away.  Collin was an inspiration.  He fought so hard and always gave his best.  He inspired so many people and his legacy lives on!

Collin has been on my mind and I smiled a BIG smile when Jimmy Johnson was the big winner!  Maybe you could request Jimmy Johnson to wear a green jumpsuit, with a RDD logo, for one race per year?  I'm sure he has met others with rare diseases and he knew he was Collin's favorite when Collin met him.  Attach the pic of Collin and his hero to your email or snail mail request.  Wouldn't that be wonderful press coverage when reporters ask about the green jumpsuit, with him advocating for rare diseases? 

Are there any others of you, reading the posts on this site, and/or know or live with a Rare Disease friend, family member or face a Rare Disease yourself, who might help advocate for Rare Disease Day?   If you have met a celebrity or well known person, please consider asking them to wear green, thus bringing awareness to this cause!

Is there already a logo and/or a place to plug in - like a website, for Rare Disease Day?  If someone knows about this, please give the info to Lisa and Carey and they can let all of us know.

One of Collin's Froggies,
Marlene Hunter
Marlene Hunter
Dear All:
Thank you for posting.  I know how hard it must be.
It's been eleven weeks today since my Bob "died."  He was soooo ready and when I read your beginning about Collin running and playing I thought, "No."  He's out by the river and Bob is teaching him how to fish just like he did with all his other grandchildren.
God's speed.
Love,
Gramma Sissie
Marlene Hunter
Marlene Hunter
Today is our oldest daughter's 55th birthday...her father, my husband, died of this awful disease just 11 days ago - I keep thinking he's up there looking out for little Collin in a grandfatherly way.  He wrote the following while hospitalized due a relapse...
"During the past thirty months I have had many conversations with
the Man from Galilee and I know that He has heard from many of you on my
behalf. Based on my experiences I can tell you that prayer does work. I am
sharing with you a few words which I have taken from an e-mail I received
recently. I share them with you because they have certainly worked for, and
comforted me, and I know they will do the same for you.





When God leads you to the edge of the cliff, trust Him fully and let
go. Only 1 of 2 things will happen.

         He will catch you when you fall or He will teach you how to fly!



 I
would rather live my life as if there is a God, and die to find there isn’t,
than live my life as if there isn’t and die to find out there is.



When you feel a special need to speak with the Lord, just say, 'Jesus, I love you and need you. Come into my heart and bless me, my family my home and all of my
friends. I ask this in your name. Amen' 

I assure you, He will respond.



May
the Peace of the Risen Lord be with each of you,



 Bob



July, 2012"
Anita Cates
Anita Cates
Dear McDaniel Family, I continue to keep you in my prayers as you learn to live without Collin in your daily lives.  I hope it brings you joy to know how he touched all who came in contact with him whether in person or via the internet, he truly is a Super Hero(that will never change).  I am blessed to have been part of his community for a short time of his life, thank you for sharing your sweet boy.
Wishing Collin the Happiest of Birthdays in Jesus' loving arms.

Love and hugs to all
Grace Mitchell
Grace Mitchell
Dearest Lisa,

You and Carey are amazing parents.  I am so happy that you're continuing Little Collin McHandsome's work.  He left such a legacy for all of us in the NMO community.  God has taken his illness and  turned it into something very positive through your continued work for Collin's fellow NMO patients.  You are amazing.

I love you,


Jo-Jo 

 

 
Jan Nutter
Jan Nutter
Dear Carey & Lisa,

It is so hard to believe it has been 6 months since Collin went to glory in heaven. I am sure at times it seems like yesterday and at other times it seems so long ago. You are in my thoughts and prayers as you press forward to serve the Lord and carry out the legacy of Collin's love and life. Call me any time. If you ever have any speaking engagements in the Dallas area you can always stay with us, or if you just want to come for a vacation! (that is if we ever get a house...we are still looking after being out of our house for 8 weeks)

Love and prayers,

Jan

Premier Designs Prayer Service
Dana Stroud
Dana Stroud
Dear Lisa,

My heart is so sad for you and for your family.  I can't even imagine the pain you must be experiencing.  Just know I love you and think you are such a brave woman.  You have walked where most mothers have never fathomed walking and yet you are still so strong.  I know it is Jesus holding you and carrying you through this.  I missed seeing you at Rally so much.  I want to give you a hug and let you know my heart is aching with you. 

Love you much!

Dana
Clydene Dyer
Clydene Dyer
Happy Birthday Collin! You will never be forgotten.  Love you so much. Love your family....hugs and kisses! Can't imagine the joys of heaven you are experiencing! My sweetie and I were just talking this morning about animals in heaven, and how wonderful just that will be, not counting all the wonders there, the most wonderful being Jesus.