Collin Henry's Journal
Written Feb 2, 2014 2:25pmHey everyone. Well looks like we get another month cancer free for our boy. His white count continues to rise and platelets dropped by about 30k, but overall things look normal. We are checking in to see when he needs his follow up with radiation oncology, but otherwise, all is well on the homefront!
it's that time again
Written Jan 23, 2014 3:57pm
Hey all, It's that time again. Collin had blood drawn the other day and it looked good. White count continues to rise, which is good, but scares this momma at the same time. But in all reality it's not scary till it surpasses 10, we are at 6.somthing now. Everything else looks stable especially the platelets which is a huge marker for us too, but he's been hanging out in the 180s on that front. I should be relaxing but I am just not. I am nervous as every. I am hoping these nerves will eventually subside or at least fade a bit into the background. But that will take time!
Anyway, Patrick and Collin both have checkups on the 29th. Patrick's early bird MRI is at 8:15 his stuff was originally the following week, but money is tight so we had to bump his up. We just can't afford two trips to UNC in two weeks. It's sucky but it just is what it is. Hopefully things will be changing for us in the very near future!
That's about it for now, I will update after we get some results next week! cross everything and pray!
Christmas and a New Year
Written Jan 5, 2014 6:36pm
Hello everyone! I hope you all had an amazing holiday and new year! We did, thanks to a very special secret santa! The kids all loved everything and it was very special not having to worry about cancer for once!
Thankfully Collin had clinic on the 3rd, it was a Friday so we only go the preliminary results of everything. But so far so good. His counts were all remarkably normal! He also had an echo done to ensure that his heart was still happy and healthy. I have not heard anything in regards to the report on that, but the tech said she felt that everything looked pretty good. I'll take it.
Collin has been doing good with his toilet training. For those that have followed us for a while, you know this has been an ongoing issue since diagnosis. He spent the last few weeks of winter break with ZERO accidents. I have been so proud and astounded at the change I have seen in him. Then last night I noticed he was slipping up a bit. I warned him he would lose game time and we rolled on. Then just now I noticed he had another accident. I questioned him about it and he said he was scared about going back to school. After some questioning about why we have come to the conclusion that Collin has a bully. He calls him a loser and pushes him and hits him. I realize the teacher can't see everything and I know from experience that there are some children who are very manipulative and know how to play a teacher too. As his mother I want to be momma bear and protect him. But instead of marching to the school and losing my mind I've sent the teacher an email informing her of the issue and reminded Collin just how amazing he is! I told him kids who fight cancer aren't losers...you won! Twice.
He is smiling now and getting ready for bed, but it makes my heart hurt to see those tears in his eyes. If only everyone could take more caution in raising their children...I know Collin is not perfect, but he is far from a loser and doesn't deserve to be made to feel anything less than amazing! No kid, or person does. Period. Take time with your children, they watch you and if you are mean to others in any way (even in the car when someone ticks you off (I AM SO GUILTY OF THIS")) they will emulate it. I wish there was more love in the world, sometimes it's very depressing to see the way kids are to one another. Anyway, lets hope we don't hear anything tomorrow morning from UNC....no news is good news!