I took Colby to his cardiology appointment this last week. Good news is he is doing just fine and his mito is not affecting his heart. We did and EKG and an ECHO. Colby was not at all happy. He saw the wires for the EKG and went nuts crying. We had to hold him down but got it done. They tried yet again for a bloodpressure reading which I always tell is not likely to happen. He freaks when the cuff goes on and gets so upset that even if they manage a reading it is not accurate. We got to the Echo and he did okay. A little fussing but not bad. Then we had to wait for quite a while since the doctor had an urgent case. Colby was getting fussy because it was lunch time and he was hungry. Finally talked with the doctor and he said everything looked good not much change from last year. He did say he wanted us to start Colby on fish oil. I asked if the Coromega was okay since that is Omega 3 and it comes in a pudding type form that Colby will take and he said it was fine. So we will be adding that back in. He wants us to give that at dinner. He said that is when the body makes the most cholesterol and that the Omega 3 helps to turn it in to the good cholesterol.

Colby finished his last day of school on Thursday. He is also taking a break from PT since we couldn't get a late appointment and all my kids are home now. The PT thinks in July we can get an evening appointment and start back up. I think it will be good for him to have a break from everything. We only have 10 visits left anyway.

We go to genetics later this week and then to his pedi the following week I believe.

As usual thanks for checking on us and God Bless!