Claire Bevec's Journal
A message from Claire
Written Mar 31, 2013 9:24pmHi everybody! This is Claire. Thank you for praying for me so much during my surgery and for all the other times you think of me and pray. I feel your prayers because I am getting better. I felt your prayers in the hospital too and they made me feel warm all over, like I was under the sun. Today I ate chocolate pudding pie for Easter because I couldn't eat my chocolate bunny. I did eat the Peeps because they are soft too but it was kind of hard to chew. I didn't get to go to church this morning but my mom stayed home with me. My dad brought communion from Fr. Bob and I got to receive it at home which was kind of fun. We had Easter dinner and it was hard to eat but it was good. I ate a little. Then I watched some movies. Right now I am watching The Bible movie on TV and watching how Jesus died on the cross and I know how much he loves me and all of us. It makes me feel sad that he suffered so much. I slept real good last night and didn't wake up in pain or need a pain pill until morning. I hope I sleep good tonight too. I still don't have much feeling in my nose and upper lip and can't smile but it's getting better. I hope you all had a happy Easter!!! My mom says that you are all my prayer warriors!I If I could I would give you ALL presents because you are very very good at praying for me all the time.
Thank you SO SO SO much!
Claire Irene Bevec
Happy to be Home!
Written Mar 30, 2013 7:34amWe got home from the hospital last night and Claire curled up on the couch all cozy to watch a "Anne of Green Gables" with Grace. Frankie and Grace made a great big 'Welcome Home Claire' sign and hung it in the front window and Grace has been Claire's little nurse getting her blankets, pillows and helping with dressing changes. All the incisions and stitches are in her nose, septum and all along her upper gum but there is still a lot of drainage from her nose and she needs to rinse with hydrogen peroxide 4 times daily to prevent infection. I am truly AMAZED she looks so good considering all they did and how awful she looked in the recovery room. Your powerful prayers for healing have been with her and even her surgeon was shocked. Because Claire is on so many immunosuppressive drugs he knew that healing would be impaired and delayed but so far he said she is healing like a normal healthy kid. Infection risk is high as long as the incisions are still tender and she'll continue on strong antibiotics for 5 more days. She'll also remain in a liquid/purée diet and so far hasn't had any appetite. Today we'll try smoothies and soup and hope she can eat something so the antibiotic doesn't wreak havoc on her stomach.
The sun is shining and we are seeing little signs of God's promise of spring after a long winter! Thanks be to God for ALL his promises and goodness...especially in difficult times!
Love and blessings,
Linda & Claire
Written Mar 28, 2013 8:34pmAfter a rough morning of pain and nausea, Claire turned a corner around 4pm and really perked up! She was able to drink water and juice through a syringe and tonight asked for jello. Once that went down fairly well, she was hungry for soup and then pudding...always a good sign when the stomach "wakes up" and appetite returns. She enjoyed a visit from her favorite ChildLife coordinator Leslie who has helped Claire through many hospital stays and painful procedures in the past and has a real gift for working with children. Dad and Grace came up for a visit and Grace was proud to give Claire a "get well" book she made with sweet pictures she drew.
Swelling is much improved but she does have numbness/paralysis all around her upper lip, nose and mouth...can't move the facial muscles there much or feel anything. It will take a couple days for that to heal. She started the hydrogen peroxide rinses to prevent bacteria and infection in the oral stitches all along her upper gum and palate and she's been a rock star about doing that every 4 hours. All in all a very good day and even her surgeon was quite pleased (even a little shocked) with how well she's doing! I'm so proud of her for taking charge of removing the packing this morning and for dealing with everything so well emotionally...more than most adults would handle with such courage! If she can drink enough by mouth and come off the IV then we could go home tomorrow to our own comfy beds and no beeping monitors!
Thank you all and God bless!
-Linda & Claire