Chris Leeuw's Journal
Article on Chris and the "Reeve Walk" on MiamiDolphins.com
Written Apr 9, 2012 10:26pmThank you, Thank you, Thank you, to all who have donated so far to My Special Needs Trust in Support of the Reeve Foundation walk.
You are all amazing! As I said in the last post, all funds over the $1,000 goal will be put to try and purchase the Bioness device I'll be wearing to help me walk for the event.
Another thanks goes out to Brian Miller, who brought the walk to the attention of the Miami Dolphins, and as a result - he wrote this outstanding article that the team put on their website.
The race is three weeks away - I'm up to 6/10's of a mile and gaining strength!
Support Chris' Walk with "Team Reeve" in Louisville!
Written Apr 2, 2012 10:10pmHi all!
It's been awhile since we've provided an update, but now there are 2 "newsworthy" updates to share.
First off - my brand new "bionic leg" has finally arrived! It's a new device that wraps around my leg (shin & hamstring) and electrically shocks my muscles in to action as I walk. The last video I posted shows me using / explaining Neuroworx's device. Now I have one of my own - for at least the next month. (It's a pricey device and we are currently trying to get one permanently - we shall see.)
Here's the video of me using the device, called the Biones L300: http://www.youtube.com/watch?v=BuzjdKvPr-I
The Bioness unit comes into play because I will be using it to attempt to walk a 1 mile leg in the Kentucky Derby Festival Mini-Marathon in Louisville on April 28!
I'm excited to be part of a team from Neuroworx, that is joining with the Christopher Reeve foundation to take part in the race.
Thousands of "able-bodied" runners do the racing, but many SCI survivors join Team Reeve to wheel - or in my case attempt to walk - a leg of the race to raise money for the Reeve Foundation and Spinal Cord research.
My goal is to raise $1,000 by April 24, walk the mile, and cross the finish - and I'm asking you all to be a part of it!
If 50 friends and family members are willing and able to donate just $20, I'll get there! Any extra funds over my goal we will put toward trying to purchase the "Bioness" leg device, so I may use it past this month.
Many of you have been so generous in your thoughts, prayers, and financial support since that fateful August 8, 2010. We never would have dreamed I'd be training to walk an entire mile less than 2 years later. I remain eternally gratefully and I wouldn't be where I'm at without your support.
Meanwhile the therapy grind at Neuroworx continues everyday. As of now I can walk a half mile in 20 minutes - and barely take another step. I've got a ways to go to tackle the mile, but I'll get there and keep you updated.
If you're able to support my walk - please make your donation to my Special Needs Trust website at this link: http://support.chrisleeuw.com/donate
Anyone interested in giving a sizable, tax-deductible donation can donate directly by check payable to "Neuroworx" (10376 S. Jordan Gateway, South Jordan, UT 84095) with "Chris' Walk in the memo.
Information about Team Reeve and the Kentucky Derby festival Mini-Marathon can be found here:
New Video - Bioness / Electrical Therapy
Written Jan 24, 2012 7:28pmHi everyone,Here's the latest update fresh off the video cutting board!
I had a visit from a friend / former co-worker Kevin last week, who brought along a camera to show the latest from Neuroworx. I have been working quite a bit with electrical stimulation and a "Bioness" system that has been simply amazing. An electric current fires paralyzed muscles for me. This prevents atrophy and helps me walk. I've worked with electrical stimulation since Day 1 after the accident, but never with the high tech Bioness system on my leg. We are trying to get a device of my own that I can wear all the time (or maybe until I won't need it anymore), so our fingers are crossed. I do my best to explain it all in the video.My left side continues to show significant paralysis, yet it is still getting better ever so slowly. It's been nearly a year and a half since that fateful August day, and the bruise on my spinal cord and the resulting scar tissue remain (especially at the level that controls my arms / shoulders), yet there are STILL signs of improvement, which is why we have remained here so long.Mom and I are reaching the homestretch. It's hard to believe we've been here for an entire year. It blows my mind. I came to Utah on February 17, 2011 in a wheelchair with virtually no use of my arms, completely dependent on others to take of me. In April, I'll be driving myself back to Indy. What was anticipated to be a 4 month stay, turned into much more thanks to continued financial support from many of you. My entire family forever remains indebted and grateful.As always thank you all for your thoughts and support!-Chris