Chloe Jo Lynn Murphy
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Welcome to Chloe's website! Chloe Has a rare blood disorder called Diamond Blackfan Anemia, this website is set up for our family and friends to keep in touch with us, and to follow Chloe's journey through her bone marrow transplant. Take a look at her journal, her photos, sign her guest book and wish us luck!

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  MONDAY, AUGUST 04, 2008 12:43 PM, CDT
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I am so sorry everyone, it has been a very long time since I've posted an update. Things here at home have been hectic to say the least, but they've been great. Taking care of Chloe definately has it's challenges, but there has been nothing that we haven't been able to over come. She's had a few overnight stays in the hospital for minor things. 1. False positive on a staff infection. 2. Observation after her scope. 3 Dehydrated. She is on IV fluids at home for 10 hours a night, and still has the ostomy. We are hoping that this week she is taken off of the IV fluids, and if everything goes ok, then in 3 months we will no longer have the broviac! She will get another scope done in about 2 months, but the last one they did actually showed that things are improving, her colon still looks really bad, but not nearly as bad as it did. She has taken to life at home very well, it's almost like she was never gone. Things were at a stand still for a very long time, and now that she's home, it's like life has finally began to move. She is still very immune surpressed, so she is still pretty limited as to what she can do. She is also still on quite a bit of medicine, and going to clinic once a week. Soon enough though, she won't have any of that stuff.

Thanks to everyone, the support that we have gotten from all of you has been what got us through what we've endured.

*hugs and love*

The Murphy's

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Please Drop Us A Line!

Your thoughts and prayers are always welcome!

If you want to keep in touch with me email me anytime, I will answer your mails as soon as I can. chels_8402@hotmail.com

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EMAIL AUTHOR
murfslaw5@hotmail.com

HOSPITAL INFORMATION
Cardinal Glennon Children's Hospital, in St Louis
1465 S. Grand Blvd
St. Louis, MO 63104
United States
314-577-5600