My Story

Welcome to Chloe's website! Chloe Has a rare blood disorder called Diamond Blackfan Anemia, this website is set up for our family and friends to keep in touch with us, and to follow Chloe's journey through her bone marrow transplant. Take a look at her journal, her photos, sign her guest book and wish us luck!

Journal

Saturday, February 28, 2009 10:46 PM, CST


Sorry everyone, we've had some computer troubles. Chloe had a colectomy on Jan 28th, in hopes that it would get rid of her tummy pain and stop these random infections she's been being admitted for. She had some post op complications and had to be moved to the PICU for 3 days. She had alot of fluid in her lungs, and wasn't keeping her O2 stats up, there was a possibility that they were going to have to intibate her, but thankfully she jumped the hurdle on her own. Since the surgery, she's still having alot of tummy pain, and they're not sure why. She is having another scope on March 3rd to see what's going on in her small intestine. She's had some GVH issues in there before, we are praying that it hasn't gotten worse. She's been at home now since Valentine's Day. She's been going to clinic 2x a week for close monitoring of her electrolytes. She's on TPN, Lipids, and Fluids at home over 24 hours, and she came home on IV antibiotics, which thankfully are done with. It's been so nice having her at home. I want to thank all of you that continue to pray for Chloe. Keep it up! :)

Loves and Hugs From the Murphy's!


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Chloe Murphy Medical Fund

United Community Bank

402 Main St

Box 328

Greenfield, IL 62044

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E-MAIL AUTHOR

murfslaw5@hotmail.com

HOSPITAL INFORMATION

Cardinal Glennon Children's Hospital, in St Louis
1465 S. Grand Blvd
St. Louis, MO 63104

314-577-5600