My Story

SMA 1 is the #1 genetic killer of children under 2. There is currently NO treatment or CURE!

Ms. Chloe is a 'Calendar Girl' along with many of her friends in the new SMA Calendar this year!!! Please check it out and if you haven't already purchased your new 2009 (even if you have ;) ) please purchase one here: http://www.cafepress.com/b4sma/1826918

Proceeds benefit research for a cure for SMA!!

Journal

Friday, July 3, 2009 6:31 PM, CDT


Chloe had her ear-tubes surgery appointment today and it went great!! 
As most of you know, Chloe's had issues with chronic fluid in her ears since she's lost all muscle that is necessary to clear her ears of fluid.  (You have to be able to swallow to prevent this and she of course, cannot.)  This lead to 2 ear infections and the prospect of many, many more to come.  Getting tubes was really the only option we had.
They were understanding at the Hospital today and let Joe and I come back with Chloe!  I'm so glad!! The only time she was without us was for a period of about 10 minutes out of the whole 4 hour period!!  (which was the longest 10 minutes of my life!!) 
I was worried only because they were going to take her off of her vent and ambu-bag her anesthesia in.  I was just nervous it wasn't going to go well and I would be too far away to do anything.  PHEW, it's over now and everthing was fine! ;) 
The anesthesia wore off well and Chloe was ready to go home 30 minutes later and giving the nurses the evil eye the whole time!  Chloe is just TOO FUNNY! 
BIG thank yous to Sandra, Morgan and my best Friend Robin for coming to hang out and be there for Chloe for her surgery.  Joe and I needed you guys too!! Love you all!  I really don't know what we'd do without you!
BIG Chloe Eskimo Kisses to all of you!!  Have a great 4Th of July!!
Love,
Jen, Joe, Chloe and Family


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Here is Chloe's site with MANY MORE pictures over the past 2 years! Check it out: http://www.our-sma-angels.com/chloe/

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HOSPITAL INFORMATION

Huntsville Hospital PICU
101 Sivley Road
Huntsville, AL 35801
(256) 265-7946