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Chloe’s Story

On April 30, 2010 our world was turned upside down when we learned our sweet little girl had a genetic disease called Tuberous Sclerosis. TS affects people in a variety of ways, causing tumors in the brain, eyes, heart, kidneys, skin and lungs. It is the leading genetic cause of epilepsy and autism.


For Chloe, TS means abnormal growths in her brain that cause seizures, a brain tumor, lesions in her eyes and white spots on her skin. Chloe also has Polycystic Kidney Disease, which is sometimes related to TS. Her main symptom of this is high blood pressure. She will eventually need a kidney transplant. We are praising God for Chloe's healthy heart and praying for total healing.

 

Latest Journal Update

Step Forward to Cure Tuberous Sclerosis Complex

Hello, friends and family! Just wanted to say thank you to everyone who has volunteered their time and talents or donated money to our Step Forward to Cure Tuberous Sclerosis Complex walk. We are busy finishing up last-minute details for tomorrow's event and getting very excited. 

We were featured on WSAV News this evening and are hoping that will bring more people - and more donations - to the walk. Here is the video in case you didn't catch it earlier: http://www.wsav.com/story/26639134/eight-year-old-on-a-mission-chloe-bredeson-hopes-to-cure-ts?autoS...

While getting ready for this fundraiser is fun and exciting, we can't help but be sad today. The Wolthuis family in Portland, Michigan, is grieving the loss of their son and brother, Nic, who lost his battle against TSC today. Please keep this family in your prayers and continue to pray for a cure for this horrible disease. We don't want one more person to die from TSC or to have to live with its painful effects. That's why we have put so much time and effort into this walk. Please help us make a difference!

http://giving.tsalliance.org/site/TR/Step_14/Step_14?team_id=1621&pg=team&fr_id=1140

Love,

The Bredeson family