Close

CaringBridge is Funded by People Like You

We're celebrating 2 BILLION visits to CaringBridge, and you helped us get there. That's a lot of love!

Celebrate this major milestone with us by honoring Chloe with a tax-deductible contribution to CaringBridge today. Donate to CaringBridge today.

Chloe’s Story

On April 30, 2010 our world was turned upside down when we learned our sweet little girl had a genetic disease called Tuberous Sclerosis. TS affects people in a variety of ways, causing tumors in the brain, eyes, heart, kidneys, skin and lungs. It is the leading genetic cause of epilepsy and autism.


For Chloe, TS means abnormal growths in her brain that cause seizures, a brain tumor, lesions in her eyes and white spots on her skin. Chloe also has Polycystic Kidney Disease, which is sometimes related to TS. Her main symptom of this is high blood pressure. She will eventually need a kidney transplant. We are praising God for Chloe's healthy heart and praying for total healing.

 

Latest Journal Update

Chloe update

We are on our way home from another great trip to Le Bonheur Children's Hospital in Memphis. We received all good reports this time. Chloe's kidneys and brain are stable, which is awesome! The tumors in her eyes look fine, although her vision has gotten a little worse. She had an EEG, and we'll have to wait for those results, but I'm guessing they will be normal. By the way, April 15 she will be 3 years seizure free!

Chloe also had six hours of neuropsychological testing, and that brought more good news. She does not have a math learning disability as we were told she did two years ago. Those results probably just weren't very accurate because she was only 7 at the time. We will get the full results from the testing in about three weeks and are hoping for more great news. Chloe is still struggling to focus in school and to follow instructions at home, but this is very typical of inattentive ADHD and TSC. She also might have some tics but nothing too horrible. 

All in all, it was a successful trip. And we don't need to go back for another whole year! 

Thank you so much for all the prayers and love. Happy 2016!

Love, 

The Bredesons








Comments

2 Comments

Sue Jarrett
By Sue Jarrett
All your and Chloe's friends prayers worked!!! Fantastic! I am so happy she is better. Still praying for that adorable athletic girl!
Pat Calhoun
By Pat Calhoun for the LCC 1:11* Servant Prayer Team
Praise the Lord for His loving kindness and for His grace-filled mercy to the Bredeson family. Although you all have been through difficulties in abundance, the Lord never stops being very evident in your lives. You are touching and have touched so many with His love because of those difficulties. May His blessings continue to rest on you all! Love, hugs, smooches, and prayers!