My Story

On April 30, 2010 our world was turned upside down when we learned our sweet little girl had a genetic disease called Tuberous Sclerosis. TS affects people in a variety of ways, causing tumors in the brain, eyes, heart, kidneys, skin and lungs. It is the leading genetic cause of epilepsy and autism.


For Chloe, TS means abnormal growths in her brain that cause seizures, a brain tumor, lesions in her eyes and white spots on her skin. Chloe also has Polycystic Kidney Disease, which is sometimes related to TS. Her main symptom of this is high blood pressure. She will eventually need a kidney transplant. We are praising God for Chloe's healthy heart and praying for total healing.

 

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Amy Bredeson posted a new journal entry, "Chloe update".

Hello, everyone! Chloe and I returned Thursday from her checkups at Le Bonheur Children's Hospital in Memphis. She had back-to-back MRIs of her brain and abdomen, and ... Read more

Amy Bredeson added a new photo.

Amy Bredeson added a new photo.

Amy Bredeson added a new photo.

Amy Bredeson posted a new journal entry, "Team Chloe".

As you all know, we have been quite busy planning the first Step Forward to Cure Tuberous Sclerosis Complex walk on Hilton Head Island. We have a little more than a month ... Read more

Amy Bredeson added a new photo.

Amy Bredeson added a new photo.

Amy Bredeson added a new photo.

Amy Bredeson posted a new journal entry, "Catching up".

Good morning, friends. I thought I'd give a brief update on Chloe since it has be awhile. She has had some challenges the past few months, but Chloe is doing pretty ... Read more

Amy Bredeson added a new photo.

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