Chase Heaton's Journal
Staying the course.....
Written Dec 1, 2013 4:10pmI just saw the date of my last post and I can't believe its been a month already. Where has the time gone? That is an age thing right?! :-)
Chase was discharged from the hospital 4 weeks ago and has been doing really well. We were very relieved that the last medication worked to take care of the C-diff infection. We did have to postpone his chemo treatment for two weeks until he finished the meds and they could do a culture to be sure all was good. It is never a good thing when you have to postpone chemo treatments but in this case, we were completely on board to wait and get this cleared up. Chase was able to get his regular chemo on Nov 21st and will continue every three weeks until around April (of course, that can always change!)
Chase has been feeling well since then. He is working his part time job at Dicks Sporting Goods and has even mentioned possibly trying to take some classes at the community college Winter quarter. We are not sure how well that will go. He still deals with the effects of "chemo brain" after two years of continued cancer treatments we just are not sure if he will have the concentration to get thru classes. Chase worries the longer he is out, the more difficult it may be getting back into the school mode. So we will begin to look into the options for that. If he could be out fishing everyday when he wasn't working, I think he would be happy to put school off a bit longer but these cold winter days are rough on a fisherman!! :-)
We had a very nice family Thanksgiving and we know we have so much to be thankful for. I want to thank all of the amazing people in our lives who have been by our side through out the past two years. I don't know how long this journey will last until we can finally say Chase is cured but I am grateful for all of the special people that have made this experience a little easier.
Thanks for your continued love and support.
Written Nov 2, 2013 7:28pmStill at the hospital but we just got word from the nurse that the C-diff test they ran today came back negative!!! Whoo Hoo!! This is a huge relief! We haven't been told yet what that will mean for his discharge. Here's to hoping we can get him home tomorrow (Sunday). We will keep our fingers crossed!! Thanks to all of you who are sending prayers and good thoughts Chase's way!!
Big thanks to everyone who came by to say hi. It was quite busy here for a while today. It certainly made the day go by faster!!
Long Overdue Update!!
Written Oct 29, 2013 10:22pmAfter neglecting my duties journaling for 4 months I decided it was time to jump back in since I know many of you are wondering how Chaser is doing. I apologize since I know many of you have been following his progress & supporting our family with all your thoughts and prayers for the past 2 years. I am currently sitting at the hospital with Chase so figured I would take the opportunity to update everyone!!
Please don't be concerned with the hospital stay. I believe we have this under control.
Lets begin with saying that Chase's most recent PET scan has come back clear again!! Whoo Hoo!! He is now sitting at 4 months remission! What exactly does that mean? Remission is a very confusing word. Many people believe when they hear "remission", it means we are done, treatment is over, worry is gone and life is back to normal. In Chase's reality, it means continuation of chemo every 3 weeks for a year, PET scans every 3 months, being more susceptible to infections , chemo brain, postponing college until he can think and focus more clearly, and the lingering threat of relapse. Remission is a stepping stone to where he needs to be, a milestone to the finish line. We are incredibly grateful but he is not done, this journey is not over.
Chase has been feeling pretty good. He looks good and healthy. If u didn't know he is in cancer treatment, you would likely think he is a typical 20 year old who shaves his head. He has spent the majority of his time these past months working part time at Dicks Sporting Goods and fishing whenever possible. Treatment has been going well for the most part with only a few persistent side effects. Hydration issues being the most dominant. After 2 years of subjecting his body to constant toxins, its no surprise when problems arise. But overall, I think he would tell you he is doing really well.
So how did he end up here at the hospital this time? A couple of weeks ago, Chase wasnt feeling well and then ended up with a fever. We headed to the ER where his fever was up to 102, and deydrated. He was given IV fluids and IV antibiotics and we barely squeezed out of the hospital without being admitted. He seemed to feel better for the next week and was still taking antibiotics. On Sunday Oct 20th, Chase and Regan flew to Arkansas for Chase to compete in the B.A.S.S. Jr World Championship the following weekend. Let's just say this is a huge accomplishment for him to qualify for this tournament. About Wed, Chase started feeling bad and it continued to get worse. Chase was determined to fish this tournament no matter what. By the time he got to Saturday, competition day, he was barely hanging on. He fought thru it although it wasn't a good day for him catching fish. After weigh in, he had to skip the awards dinner and he and Regan drove 90 mins to Little Rock to go to the ER. He again had a fever, dehydrated and severe stomach pain and hadnt eaten in a couple of days. They were able to catch their flight home Sunday morning and after about 10 hours of travel, we headed to the ER in Spokane. He was diagnosed with Pancolitis and C-diff. Severe intestinal infections. He has been here at the hospital ever since. We are not sure when he will be discharged, hoping in a few more days. He is feeling much better today and is able to eat. Hoping to be back on track soon.
I will try to keep you updated on his progress. Thanks for your continued thoughts and prayers!!