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My Story

Hello Everyone. My dad, Charlie McCune was diagnosed with Glioblastoma Multiforme (GBM) Feb. 11, 2006. GBM is the most deadly and aggressive form of cancer. The statistics are not great......but my mom, dad, and I have learned not to pay any attention to statistics.......read more under "Full Story".



The nasty tumor begin to reveal itself through Bell's Palsy. My mom noticed his left side of his mouth was droopy. She had him go to his family doctor on Monday 2/6/06. His doctor said it was Bell's Palsy and had him go to outpatient physical therapy where they stimulated the left side of his mouth with some sort of electrical shock. The therapist said he was even responding to treatment. I went home to visit my parents on the following Friday 2/10/06. I talked to Mom before I arrived home and she had been trying to get Dad to go to see his doctor again, because he wasn't walking very good. He thought he was fine. He wouldn't go when I got home either & we went out to eat. I thought he seemed different during dinner. I finally convinced him to go to the ER early Saturday morning between 12:00A.M. and 1:00A.M. The ER doctor gave Dad a CAT scan and he told us that Dad had a brain tumor and needed to go right away to Deaconess Hospital in Evansville for a MRI. Dad's neurosurgeon came in and met with us after Dad's MRI. He revealed to us that Dad had 3-6 months to live. We were scared to death. He told Dad that he needed to make a decision of what he wanted to do by the following morning. Dad asked if he could take chemo or have radiation to shrink the tumor. He told Dad no. His only options were to have surgery, or wait to die. He said he would more than likely not make it through surgery, he would either bleed to death, have a stroke, not wake up, or go into a coma. Dad thought and prayed and asked God for help with his decision. By that evening he told Mom and I that he was going to have surgery because he couldn't lay there and wait to die. He had surgery on Wednesday 2/15/06. He remained upbeat, he laughed and joked, and helped everyone else deal with the shock. He never got down. He said he would beat the cancer. The surgery was 9.5 hours! After the surgery Dad's neurosurgeon came in and talked to us and he told us that he wasn't able to remove all of the tumor, but he removed a large portion of it. He told us that he didn't want to go any deeper because his brain was starting to bleed and he had to get out. We were able to see him shortly after surgery. He had a ventilator in and he couldn't speak but he was responding to us. Then two hours later we were allowed to go back in and he was talking to us!! It was a miracle from God! We stayed at the hospital and we went in to see him Thursday morning. He wasn't on any pain medication at all! I couldn't believe it. He had only one Tylenol the next day. Dad was taking a nap later on and my Mom and I were waiting in the waiting room with friends and family and the neurosurgeon stopped by and told us that he gave Dad a CAT scan and there was no sign of stroke or bleeding on the brain.He also told us that a radiologist oncologist would be stopping by to talk to us about Dad starting IMRT radiation and chemo. We were shocked and so happy because he told Dad earlier that he chemo or radiation was not an option. Dad left the hospital on Saturday 2/18/06 and was admitted to a rehab hospital for two weeks to help him walk again and regain his strength. I took three weeks off from school to be with Mom and Dad. My principal and school superintendents let me work a three day week. After Dad went home he began 30 treatments of IMRT radiation along with Temodar. After the radiation was over with he began a cycle of Temodar....23 days off and 5 days on. The amazing thing was Dad never got sick from the chemo. He was super tired from the radiation and chemo though. It didn't stop him from eating out, camping, mowing, or keeping busy. He took a lot of naps and he rested more...but that was ok. He had his first MRI in June to see if the Temodar was working. The tumor was shrinking. He had another MRI in October. We were told that one side of the tumor was shrinking and the other side stayed the same. Sometime between October-December the tumor became aggressive again. We went to his oncologist and he told us that he was going to stop treatment because it wasn't working and he would give dad medicine to keep him comfortable when he needed it. I was not going to give up and let my dad die. My dad looked at me and asked me if I was giving up and I told him no...I asked him and he said, "no, I am not." . I am out of space. Read the rest under journal entry 3/20/07.

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Carrie McCune posted a new journal entry.

Hi Everyone!Happy Father's Day Dad!! I wish he was here in person for me to thank him for everything that he does for me.  He still continues to help me grow as a ... Read more

Carrie McCune posted a new journal entry.

This Sunday 4/26/09 would have been my Dad's 71st birthday! Happy Birthday Dad.  I miss you so much! Carrie Read more

Carrie McCune posted a new journal entry.

Hello Everyone!I just wanted to sign on and tell everyone that I still check my dad's website daily. I want to thank everyone for their kind guestbook entries and e-mails ... Read more

Carrie McCune posted a new journal entry.

The guardian angels of life sometimes fly so high as to be beyondour sight, but they are always looking down upon us."-Jean Paul Richter My dad is my angel! Read more

Carrie McCune posted a new journal entry.

Hi Everyone!I hope everyone is doing well. I celebrated my birthday yesterday without my dad. I had a good time, but it is so hard to look around and see everyone....and ... Read more

Carrie McCune posted a new journal entry.

There are things that we don't want to happen but have to accept, things we don't want to know but have to learn, and people we can't live without but have to let go. ... Read more

Carrie McCune posted a new journal entry.

Hello Everyone. I wanted to update...it has been awhile. I want to keep Dad's website up...he has helped so many people with their journey with GBM. I want to keep this ... Read more

Carrie McCune posted a new journal entry.

Final FlightAlthough I grieve, I know you are free.Following God's path laid for you and me.You took HIS hand when HE called, Your time had come to leave us all.You could ... Read more

Carrie McCune posted a new journal entry.

It will soon be one year without my dad 8/19/08. Around this time last year he was starting to go into a coma. Eventhough he was in a coma for a few days I would look at ... Read more

Carrie McCune posted a new journal entry.

Hello. This time last year Dad was in the hospital. I am so blessed that I was able to be with him all of last summer and when he passed away. I am so thankful that Mom ... Read more

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