Born and abandoned, diagnosed terminal and given less than a year to live, septicimia at 2 years old, multiple MRSA infections, massive pneumonia at 3 years old requiring ches
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Today is post transplant day +4. Charlie is sleeping comfortably. He is very puffy and filled with fluid, but his lungs sound great and his breathing is good. This was not
So now we wait. Charlie has his stem cell infusion on saturday around 1 pm. It was much different than the first time he has a transplant. He was immediately in severe pai
Charlie is resting comfortably. In fact, I haven't seen him this comfortable since we got here. Yesterday, they started Rituximab. This medication is going to help his PTLD
The Plan is in motion. Charlie has PTLD. Post Transplant Lymphproliferative Disease. A result of either a virus and or the chemotherapy drug CSA that is used as a immunosup
This past weekend until now has been nonstop action, pain, stress, anger, and sadness... It started when Charlie was having a hard time keeping his oxygen level up. He was b