My Story

Welcome to Charlie's CaringBridge website.  Your words of inspiration are what keep us going. 

Prospera Credit Union - c/o The Knuth Fund

N9660 County Rd. N

Appleton, WI  54915



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Trisha Knuth posted a new journal entry, "A tough year".

I know it's been a long time...I haven't updated Charlie's condition because as ridiculous as it sounds......I don;t want to jinx anything.  One year ago today, Charlie ... Read more

Trisha Knuth posted a new journal entry, "Seth".

I have been dreading this.  I have been tossing emotions around in my head all day.  OK, all year.  Many days I completely force myself to pretend it never happened. ... Read more

Trisha Knuth posted a new journal entry.

Charlie's life here on earth changes drastically each and every moment.  One day he is spunky, playful, happy, full of energy and the next day he is unable to walk, ... Read more

Trisha Knuth posted a new journal entry.

On Monday Charlie will be back in Minnesota.  He once again will be sedated in the OR and have biopsies and dressing removal for pictures.  We have done this so many ... Read more

Trisha Knuth posted a new journal entry.

I have just returned from my trip to Minnesota to speak at the "Wings of Hope" event to raise money for EB Research at the University of Minnesota.  It was an ... Read more

Trisha Knuth posted a new journal entry.

I do not believe that a child should be thrown out from the school district in which they are open-enrolled in because they are fighting to live in a hospital a state ... Read more

Trisha Knuth posted a new journal entry.

I am watching first hand the lesson of "compassion" which has been passed down to my children.  I have always taught them to respect and embrace another's ... Read more

Trisha Knuth posted a new journal entry.

I have written updates on Charlies condition over and over again.  Each time deleting everything I have written.  Where does inspiration come from to write something ... Read more

Trisha Knuth posted a new journal entry.

“Even though it is difficult to measure suffering objectively, EB is one of the most tragic conditions I know. We are at a critical juncture, where the cost of not ... Read more

Trisha Knuth posted a new journal entry.

Each time I update Charlie's condition I am fully aware that his condition switches from one extreme to another.  One week I am fearing for his life and the next week I ... Read more

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