My Story

Hi My name is Jenna and I am fighting against a rare bone disease and other medical conditions. I am from BC. Canada. I love recieving mail and I have talked it over with my parents and they said I can put my address down here. I like getting mail like letters and cards and stuff, but I don't get much mail. Jenna Fowler 183 Waddington Drive Kamloops BC. Canada V2E 1M3

Journal

Monday, June 29, 2009 2:52 PM, CDT


Hi Everyone,  Sorry this is late.  I am on this new pill at night called Cesamet.  I take three at night, and it was helping the pain , but the last few nights I have been waking up in severe pain and can't sleep.  Also My Cymbalta that I am on for pain and depression, makes me viontley sick to my stomach, when Im not getting sick from, it just makes me feel nauses but not actually sick.  It also gives me bad pains in my stomache.   I wish I would have some meds to help me out during the day that doesen't make me that sleepy. 

I went to a BCACL Conference  which is for people with developmental delays. It was in Victoria which is on the Island.   I got to spend time with my boyfriend and the Langley group.  I saw old friends, and I met new ones.  It was so much fun.  We went to the Wax Museum, and to the Harbor.    It was a fun time.  I met a special friend, Jenna, who has Cerebral Palsy.  Natalie, She reminds me of you, because she was wearing a beautiful sparkling dress and sparkling shoes just like a princess!  She has a very pretty and beautiful smile.  I have made a friend forever!  It doesn't matter to me if she is in a wheelchair all that matters is what's inside that counts, and believe me, she has a great personality!

After the Conference was over we stayed two days extra in Victoria.  My friend Sheenagh and her friend Megan took me to Beacon hill, and we had lunch and then we went over to the little petting farm there, where Sheenagh works.

Then on Tueseday my mom and I went to Vancouver, because I had a doctor's appointment.  My special friend Nikki was at Easter Seal House when I was.  She is from PortAlbernie. Nikki has a lot of health issues, behavioural issues, and severe developemental delays.  She is a sweet heart.  I went to her room and watch the tree house channel with her, which is a kids pre-school channel,, then she likes the Simpsons so I watched that with her.  She loves her babies, which are her dolls, and she talks about them a lot.  Nikki is a real special  person and an inspiration.  She has no musscle tone, so she can't sit at all.  She has to stand.  I was so Proud of her for two reasons.  #1, her fear has always been Elevators.  Well She went in the Elavator about two times with her care giver.  The she Was sitting/laying down perfectly without her feet in the air like usual.

Then On Friday, My mom and I took a taxi to Langley.  My mom dropped me off at Gerry's place, who is my boyfriend.  Then my  mom went and flew back to Kamloops.  Gerry's caregiver Ron, was getting married to Ranjitta.  It was a three day wedding.  On Friday, Gerry and I didn't go, because Ron, thought it would be a long day, because Ron had to go to Ranjitta's house to convince her parents to let him marry her.  Ranjitta is East Indian.  Then on Saturday was the Catholic Wedding.  Ron is Philapino, and he is also Catholic.    Then on Sunday was the dinner and the dance.  They had an East Indian Dancer perform, then they had a Philipino band play.    Then in the Philipines, you have to pay the person you want to dance with.  So they did that, and both Ranjitta and Ron got paid lots of money.  Then they had the dance, and there was mixed music, East Indian and Phillapino. 

Then Aside from the wedding I also got to spend time with Gerry which was nice.  Ron told Gerry, that I was good company and I am welcome back any time.  I flew home for the first time by myself.  It was a little scary but I did it.

Well Hockey season is now over!  My bestfriend Jared Aulin, might be playing for my favourite team the Columbus Blue Jackets!  I don't know for sure yet and neither does he, that is just the direction that it is going in.  I am hopping he plays for the team and so does he, but anything can happen between now and the next hockey season.  Jared, was in the NHL playing for the LosAngelis Kings in 2003, but he only played a couple games, and he injured his shoulder, after that he kept getting promised about being able to play for different teams, but when he went to the teams they never played him.  So then he decided to play college hockey for about three or four years now.  Now he has decided that he wants another chance to prove himself.  Jared will work as hard as he can to get to where he wants to be, I know he can do it, he has taught me to have determination and to never give up, and that if I think positive I will win my fight!  I am keeping my fingers crossed for him!

I am sure happy that the Pittsburgh Penguins, won the Cup!  I knew they would do it this year!  It was time for them to win, and i am so happy that Sid the Kid, Evegeni Malkin, and Jordan Stall, and all the other players got what they deserved which was the Stanley Cup!  It jsut goese to show that hard work pays off!

This Liquer Lawyer who is partners with my dad in two Liquer Stores, Wel he is very good friends with Mr. Ken Hitchcock who is the coach for the Columbus Blue Jackets.  He told me that Mr. Hitchcock, stays at his place here in Kamloops during the Summer, and if I call Mr. Coates, I can meet with him, and Mr. Hitchcock, so I called Mr. Coates, last night.  He said that Mr. Hitchcock is comming July 17th, and I warned him that I may get called to the hospital for three weeks, in Vancouver, he said that he and Mr. Hitchcock will arrange to drive to Vancouver to come and visit me in the Hospital.

Two Blazer Players got drafted into the NHL.  Tyler Shattock, went in the fourth round to St. Louis Blues, and my friend Jimmy Bubnick, went on the sixth round to Atlanta Thrashers.

Well that is all for now.
My email addy is: allfighterswin@gmail.com
My AOL Messanger: nevergiveup301
My Facebook: Jenna Fowler
Network: Kellowna BC Canada
MSN Messanger: hockeys_life@hotmail.com
myspace.com/jennas_smileofcourage




Guestbook

Guestbook signed 0 times today.


I love to hear from people. It really helps to read all the encouraging message and it helps keep me positive.

42364 VISITS FROM FAMILY AND FRIENDS

HELP SOMEONE ELSE WHEN THEY NEED IT MOST

Tell a Friend about CaringBridge.

Help CaringBridge provide this free service to others who need similar support.

TRIBUTE DONATIONS TO CARINGBRIDGE

Read the caring tributes in honor of Jenna.

Make a Donation in tribute to Jenna to provide CaringBridge to all families who need it.

HOSPITAL INFORMATION

UT South Western Dallas TX
BC