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My Story

Hi My name is Jenna and I have 14 medical conditions, the main one is a rare life threatening bone disease I love mail.  If anyone wants to send me happy mail/ cards letters please feel free.Please don't feel you have to but I made a amazon wish list with stuff I like and stuff I need.  I know people ask what I like so that is why I thought I would put it on here.  I am not asking for gifts it is only if anyone wants to, Please don't feel like you have to though. cards are just fine I  just thought I would put it on here for anyone that might want to look at it. https://www.amazon.com/registry/wishlist/3MNPEXUWZE9EL

 My address is: Jenna Fowler
192 Waddington Drive
Kamloops BC. Canada
V2E 1M4
As I said before I am from BC. Canada and I was born in raised in Kamloops BC. Canada.  I was born with a rare life threatening bone disease and wasn't suposed to  live this long. It is called Chondrodysplasia Punctata with Stipled Epithesis. That means that I have calcium deposits on all of my bone joints. Where there was inlarged deposits that is where it did the most dammage. My disease is debilatating and degenerative. It is also life threatening, and very painful. I was born with Tibia Torrsa of the hip and mild Scolios. When I was born my spine was fused at the top and at the bottom. I also have a mild hearing loss in my right ear. My joints wear out and the ones they can replace they will. I had a Titanium joint operation in 2004, in both of my jaws. It was done in the States, in North Carolina. UNC hospital chapel Hill I wasn't able to eat for five years untill I had my operation that is. I have some developmental delays but I am very high functioning. These are the other medical conditions that I have been diagnosed with. Intertestial Cysitis, a very painful bladder condition. Fibromyalgia, witch is painful, Osteo Arthritis, and really bad Osteoporosis. I have lost 30 percent of my bone mass. They are both very painful. I have a very painful bladder condition which is Intertestial Cysitis. I have Carpal Tunnel Syndrome. I also have a Reflux disease, GERD. I have Burcitis and Tendinitis in the hip, leg and groin area. They all affect the muscle and they are very painful and it is harder to walk to now because it is painful. I also have a very painful nerve disease, Trigemnial Neuralgia from a severed nerve when I had a my operation in NC.  I was just diagnosed with bad asthma. I have bipolar and suspected Autsim. I have recently found out that my leg is now damaged, because it keeps swelling, and I have to use crutches from now on and a wheelchair.  I have Epilepsy  Everyday is a challenge for me, but every morning I wake up with a smile on my face and read to conquer each and every challenge that comes my way. I am a fighter and I will win all my fights against all my conditions, no matter what!  I am not suposed to have lived this long but I have.  We don't know how much longer I have, but everyday is a great day. My dad has Congenital heart failure, and had cancer three times. This about me: I love Hockey, Football and Soccer.  My fav. Teams for hockey are: Columbus Blue Jackets, Vancouver Canucks, Edmonton Oilers and the New York Rangers.    I am a Big Big Big Kamloops Blazers fan! I have met Rick Nash, and he gave me his signed jersey.  I get free tickets everytime, Columbus comes to Vancouver.  I love the Green Bay Packers, New England Patriots, Chicago bears, and Minnesota Vikings.  I am a big Tom Brady fan and Eli Manning Fan.  I love the LA team for Soccer and David Beckham.  I also like the Pheonix Suns and Steve Nash.  I love kids craft kits, Science Kits, Activity books, and coloring books.  I love Curious George, Care Bears, Disney Cars, Toy Story, Tinker Bell and Elmo  I love Lego's and Knex I love Thomas the Tank Engine.  I love building things.  I love anything to do with Space, Planets and glow in the dark.  I love Music and I am just learning how to play the drums. I love Books and I love to read. I love stuffed Animals, Lady Bugs, Dolphins and Monkeys. I love Music and Movies . I enjoy writig poems, encouraging others.I love R5 One Direction, Jonas Brothers, Big Time Rush, and Jesse Mccartney
183 Waddington Drive.
Kamloops BC. Canada.
V2E 1M3
 My email: fighterchamp9@aol.com


Jenna Fowler posted a new journal entry, "Health News and Christmas wishes".

Hi Everyone:well i have been having majour seizures still. Also we just had a bad news, my joint has worn out and there is only bone rubbing on bone, so i may need ... Read more

Jacob's Dad -> Robert Murphy www.caringbridge.org/visit/jacobmurphy/journal signed Jenna's Guestbook.

I have journeyed. Through the long, dark night.  Out on the open seaBy faith alone,  Sight unknown And yet His eyes were watching meThe anchor holds.  Though the ship ... Read more

Nancy Tallman signed Jenna's Guestbook.

Just felt like saying that we pray for you and think of you often.www.caringbridge.org/visit/gracemae Read more

Cassey Smith signed Jenna's Guestbook.

Praying for you!!I have created a new FB community page called God’s Coffee.  Please visit and “Like” the page to receive daily devotional updates.  You can ... Read more

Gretchen McKee signed Jenna's Guestbook.

Jenna,I haven't updated Gwen's site for quite a long time and just saw your beautiful message.  It made me cry!  Beautiful girl, many prayers for you!  Love and ... Read more

Jacob's Dad -> Robert Murphy www.caringbridge.org/visit/jacobmurphy/journal signed Jenna's Guestbook.

We haven't heard from you in a long while. I have been praying for you each day and got the feeling that today I should write to tell you. May God continue to surround you ... Read more

Sarah Nixdorf signed Jenna's Guestbook.

hope you have a great 2014, we yanked through our Christmas with family around of course, GMA's health is getting better. Life at the Nixdorf household is turning back to ... Read more

Jacob's Dad -> Robert Murphy www.caringbridge.org/visit/jacobmurphy/journal signed Jenna's Guestbook.

Blessed New Year prayers for you. We continue to surround you in our prayers. May God continue to guard, keep, and bless you.Your Extended Family in Christ ... Robert ... Read more

Jacob's Dad -> Robert Murphy www.caringbridge.org/visit/jacobmurphy/journal signed Jenna's Guestbook.

              ✞ HAVE A BLESSED CHRISTMAS ✞ Hugs from our family to you and yours.  Know that we continue to surround you all in prayers."May the Lord bless ... Read more

abigail kirby signed Jenna's Guestbook.


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