My Story

Hi My name is Jenna and I have 16 medical conditions, the main one is a rare life threatening bone disease.  i have developmental delays, and an iq under 70. Some people find it hard to believe because I have high social skills and people sometimes don't believe us when we tell them and they judge me.I love mail.  If anyone wants to send me happy mail I made an amazon wish list.I thought it was much safer than having my address on the net.   I know people ask what I like so that is why I thought I would put it on here.  I am not asking for gifts it is only if anyone wants to, Please don't feel like you have to though. Happy mail makes me smile so this is only for people who would like to help me smile. http://www.amazon.ca/gp/registry/wishlist/2M4MCDE8QMNRP/ref=topnav_li  I also have a facebook group:  which has my address in the file section if anyone wants to send me mail and help me smile:  https://www.facebook.com/groups/563981963686939/  my facebook site: http://www.facebook.com/jennasbravefight



Health update:  I just had majour surgery and they found a tumor in my overies but it is not cancerous.  My body is so riddled up with arthritis for my age.  I have been diagnosed witn non epeleptic seizures. I am being tested for bipolar, aspergers and other things.  I have ocd tendencies, and spd. 

As I said before I am from BC. Canada and I was born in raised in Kamloops BC. Canada.  I was born with a rare life threatening bone disease and wasn't suposed to  live this long. It is called Chondrodysplasia Punctata with Stipled Epithesis.  I have developmental delays and an Iq under 70.  some people find it hard to believe cause I have very high social skills, some people dont believe me when we tell them. That means that I have calcium deposits on all of my bone joints. Where there was inlarged deposits that is where it did the most dammage. My disease is debilatating and degenerative. It is also life threatening, and very painful. I was born with Tibia Torrsa of the hip and mild Scolios. When I was born my spine was fused at the top and at the bottom. I also have a mild hearing loss in my right ear. My joints wear out and the ones they can replace they will. I had a Titanium joint operation in 2004, in both of my jaws. It was done in the States, in North Carolina. UNC hospital chapel Hill I wasn't able to eat for five years untill I had my operation that is. I have some developmental delays but I am very high functioning. These are the other medical conditions that I have been diagnosed with. Intertestial Cysitis, a very painful bladder condition. Fibromyalgia, witch is painful, Osteo Arthritis, and really bad Osteoporosis. I have lost 30 percent of my bone mass. They are both very painful. I have a very painful bladder condition which is Intertestial Cysitis. I have Carpal Tunnel Syndrome. I also have a Reflux disease, GERD. I have Burcitis and Tendinitis in the hip, leg and groin area. They all affect the muscle and they are very painful and it is harder to walk to now because it is painful. I also have a very painful nerve disease, Trigemnial Neuralgia from a severed nerve when I had a my operation in NC.  I was just diagnosed with bad asthma. I have bipolar and suspected Autsim. I have recently found out that my leg is now damaged, because it keeps swelling, and I have to use crutches from now on and a wheelchair.  I have non epeleptic seizures.  Everyday is a challenge for me, but every morning I wake up with a smile on my face and read to conquer each and every challenge that comes my way. I am a fighter and I will win all my fights against all my conditions, no matter what!  I am not suposed to have lived this long but I have.  We don't know how much longer I have, but everyday is a great day. My dad has Congenital heart failure, and had cancer three times. This about me: I love Hockey, Football baseball and Soccer.  My fav. Teams for hockey are: Columbus Blue Jackets, St. Louis Blues, La kings, Chicago black hawkes.  I also like  Edmonton Oilers Colorado Avalance and the New York Rangers.    I am a Big Big Big Kamloops Blazers fan! I have met Rick Nash, and he gave me his signed jersey.  I get free tickets everytime, Columbus comes to Vancouver.  I love the Green Bay Packer.  I also enjoy watching the New Enlgand Patriots, ,Chicago bears, and Minnesota Vikings.  I am a big Tom Brady fan and Aaron Rodgers fan .  I love the LA team for Soccer and David Beckham.  I also like the Pheonix Suns and Steve Nash.  I love Baseball the Boston Red sox are my favourite team.  I love kids craft kits, Science Kits, Activity books, and coloring books.  I love Curious George, Care Bears, Disney Cars, Toy Story, Tinker Bell and Elmo  I love Lego's and Knex I love Thomas the Tank Engine.  I love building things.  I love anything to do with Space, Planets and glow in the dark.  I love Music.  I love Books and I love to read. I love stuffed Animals, Lady Bugs, Dolphins and Monkeys. I love Music and Movies . I enjoy writig poems, encouraging others.I love R5 One Direction, Jonas Brothers, Big Time Rush, and Jesse Mccartney.  My wish list is on my site but those who want to send me actual cards an mail please email me for my addy.
 My email: fighterchamp9@aol.com



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Kathi Bates signed Jenna's Guestbook.

Wanted to drop by & say hello! I was so sorry to hear about your fall...praying you are much, much better now. Continuing to send our thoughts & prayers your way! Read more

Sarah DiGerolamo signed Jenna's Guestbook.

I am glad you had a busy summer, but I am so sorry about your fall. I do hope no bones are broken.   I love the new ... Read more

Jenna Fowler added a new photo.

Jenna Fowler added a new photo.

Jenna Fowler added a new photo.

Jenna Fowler added a new photo.

Robert Murphy>Jacob's Dad< signed Jenna's Guestbook.

Our prayer for you, your family, and HomeGrant them peace, most precious gift of all Keep the worried world far away and small When they return, may quiet fill their ... Read more

Jenna Fowler posted a new journal entry.

Hi everybodyCanada Day was aweome I got see my friend Nick who was here from Edmonton with his little boy Dylan and his wife Lisa, and i got to give them a beautiful quilt ... Read more

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