Catie again celebrates her birthday a month earlier. She cant wait to be 5 and grow up. God Bless her. So she will be 5 before July 18th. Her scans showed all her organs normal which is great.

Bone Marrow is now at 700,000 cancer cells per million (feb/march during bone marrow harvest showed 53 per million. December bone marrow was negative with no cancer cells present.

MIBG scan
Left theamur lesion progressed and a new one just about the same size just below it.

Both tibia's still have lesions. Now right knee cap shows lesion and the left shin shows another.

5 sections in her jaw bone may be bone cancer as well.

She is now transfusion dependant. Which means she will have them ongoing to make her as comfortable as possible. We still are looking for other options and awaiting to hear from PA.

We were told Catie seems to have more than 2 weeks but exceeding 2 months with this progression doesn't seem possible.

There still hoping and looking for options but there's not many. We still may have to use her bone marrow stored if we try anything else, which may or may not take because of the amount of cancer she has now vs the amount of cancer in her stored bone marrow.

We are hoping to have more answers soon. Catie is now on pain meds every 6 hours and visiting clinic every 2-3 days. She has been great through all this until this morning she was in and out of it. It really had the worst fear running through me.

I wanted to inform you all now and I will update in a couple of days. We do have hope and we do have faith and we do have god in our lives. We are all just praying.