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Cassidy’s Story

Welcome to our CaringBridge site. It has been created to keep friends and family updated about Cassidy.

Be sure to read the latest in the journal, view the photo gallery, and drop us a line in the guestbook.

Cassidy was born with a rare genetic condition called Conradi-Hunermann Syndrome. It affects her spine so she has scoliosis and kyphosis for which she has two VEPTR's (titanium ribs) to help keep her spine straighter. She has limb length issues. Her right side is shorter and she wears foot on foot prosthesis.  Her vision has now been corrected in her right eye. She had a very severe cataract in that eye that has now been replaced with a lens. We call it the bionic eye! She also has some patchy alopecia (otherwise known as bald spots). Cassidy also has some hearing loss in her left ear. This has been corrected with a hearing aid that she wears most days (it even has bluetooth in it!).  She has had 31 surgeries to date with more to come, usually one every six months. If you are interested in reading our journal on our other page please feel free to do so. You can find it at; www.caringbrige.org/wa/cassidyhuff Thanks for checking up on us! Please feel free to email me with any questions. Much love!

Latest Journal Update

Recovering well

Hi Everyone,


Cassidy is recovering well. We have spent the last few days at home relaxing and catching up on sleep! It's been nice for all of us. There's something to be said for sleeping in your own bed.


Cassidy's drains are doing well. They have to be emptied twice a day and are more of a hassle for her when she's laying down. We have to make sure they aren't pulling or she's laying on them with a kink.


Right now we don't know when the drains will come out. She has an appointment on Wednesday for her new prosthesis and they will do a drain check then. We have to keep track of everything so I'll be sending that in to the nurse. My guess would be not yet.


I'll update again Wednesday when I know more.


Thank you for your thoughts and prayers!


Much love,


Shannon

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Comentarios

3 Comentarios

Heidi Willey
By Heidi Willey
That's awesome news guys !! Big hugs to all of you ♡♡
Colleen Steele
By Colleen Steele
I'm happy for all of you that you are home and resting in your own beds! Cullen had to do a scrap book for 8th grade and make a page of his favorite quotes. One was from the cartoon Adventure Time, "I want to marry my bed." Praying those drains can come out soon and that better days are ahead. Love, Colleen and Family
Debbie Lane
By Debbie Lane
Totally understand and thanks for the update... we'll send lots of prayers and encouragement.