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Cassidy’s Story

Welcome to our CaringBridge site. It has been created to keep friends and family updated about Cassidy.

Be sure to read the latest in the journal, view the photo gallery, and drop us a line in the guestbook.

Cassidy was born with a rare genetic condition called Conradi-Hunermann Syndrome. It affects her spine so she has scoliosis and kyphosis for which she has two VEPTR's (titanium ribs) to help keep her spine straighter. She has limb length issues. Her right side is shorter and she wears foot on foot prosthesis.  Her vision has now been corrected in her right eye. She had a very severe cataract in that eye that has now been replaced with a lens. We call it the bionic eye! She also has some patchy alopecia (otherwise known as bald spots). Cassidy also has some hearing loss in her left ear. This has been corrected with a hearing aid that she wears most days (it even has bluetooth in it!).  She has had 31 surgeries to date with more to come, usually one every six months. If you are interested in reading our journal on our other page please feel free to do so. You can find it at; www.caringbrige.org/wa/cassidyhuff Thanks for checking up on us! Please feel free to email me with any questions. Much love!

Latest Journal Update

HOME!!

Hi Everyone,


We are HOME!!  Cassidy is doing well.  We left the hospital around 12:30 and traffic wasn't too bad on the way home. 


 I should back up a few hours and let you know the events of the morning.  We had a good night and had visits from the Ortho residents at about 5:45am.  After sleeping for a while longer we got up and started our day.  I packed our things, made a trip to the car and waited.  Waiting and patience was the name of the game.  Cassidy was ready to go!  I made a trip to get bacon for her and stopped to get her meds as well.  While I was waiting for her meds my phone rang, it was Cassidy.  She called me twice.  I figured it was because she was telling me that we had our final orders and we could leave.  I started walking back and ran into a friend, received another text from Cassidy and tried calling her back.  Nothing.  So I raced back to the room.  Cassidy received a visit from a Seahawks player!  David Gilreath, wide receiver came to see her!  I missed it but she had pictures on her phone and an autograph!  How cool.  :)   And we were ready to leave. 

Our drive home went well.  We had lunch ready for us when we walked in the door too.  Nice to have a partner that is not only wonderful but also an amazing daddy that worries and loves to take care of his family.  We have spent the afternoon and evening chilling on the couch and catching up on our dvr shows.  Cassidy is managing her pain well and is looking forward to resting more and sleeping in her own bed tonight. 

Since tomorrow is Halloween Cassidy would love to see people.  We would like to reverse trick-or-treat.  If you remember a few years ago we did this and Cassidy was thrilled to see everyone.  Please come after 5:30 tomorrow night, we would love to see you. 

Thank you to each and everyone of you that prayed, signed the guestbook, sent messages, called or emailed.  It truly means so much. 

Much love,

Shannon