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Cassidy’s Story

Welcome to our CaringBridge site. It has been created to keep friends and family updated about Cassidy.Be sure to read the latest in the journal, view the photo gallery, and drop us a line in the guestbook.Cassidy was born with a rare genetic condition called Conradi-Hunermann Syndrome. It affects her spine so she has scoliosis and kyphosis for which she has two VEPTR's (titanium ribs) to help keep her spine straighter. She has limb length issues. Her right side is shorter and she wears foot on foot prosthesis.  Her vision has now been corrected in her right eye. She had a very severe cataract in that eye that has now been replaced with a lens. We call it the bionic eye! She also has some patchy alopecia (otherwise known as bald spots). Cassidy also has some hearing loss in her left ear. This has been corrected with a hearing aid that she wears most days (it even has bluetooth in it!).  She has had 35 surgeries to date with more to come, usually one every six months. If you are interested in reading our journal on our other page please feel free to do so. You can find it at; www.caringbrige.org/wa/cassidyhuff Thanks for checking up on us! Please feel free to email me with any questions. Much love!

Latest Journal Update

We are HOME!

Hi Everyone,

We are home! Cassidy is resting and doing well. She is up for visitors tomorrow. I'm going to rest. I'll update tomorrow.

Much love,

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1 Comentario

Jennifer Boisen
By Jennifer Boisen
Glade Cassidy and you are home. Rest tonight tomorrow will bring greatness.