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My Story

Welcome to our CaringBridge site. It has been created to keep friends and family updated about Cassidy.

Be sure to read the latest in the journal, view the photo gallery, and drop us a line in the guestbook.

Cassidy was born with a rare genetic condition called Conradi-Hunermann Syndrome. It affects her spine so she has scoliosis and kyphosis for which she has two VEPTR's (titanium ribs) to help keep her spine straighter. She has limb length issues. Her right side is shorter and she wears foot on foot prosthesis.  Her vision has now been corrected in her right eye. She had a very severe cataract in that eye that has now been replaced with a lens. We call it the bionic eye! She also has some patchy alopecia (otherwise known as bald spots). Cassidy also has some hearing loss in her left ear. This has been corrected with a hearing aid that she wears most days (it even has bluetooth in it!).  She has had 31 surgeries to date with more to come, usually one every six months. If you are interested in reading our journal on our other page please feel free to do so. You can find it at; www.caringbrige.org/wa/cassidyhuff Thanks for checking up on us! Please feel free to email me with any questions. Much love!

Feed

Shannon Reynolds posted a new journal entry, "Long night".

Hi Everyone, Cassidy is doing well. We had a long night. Her hip is really bothering her and so are her ears. Her nurse, Kerri, was amazing last night. She stayed on top ... Read more

Shannon Reynolds posted a new journal entry, "She did well for surgery!".

HI Everyone, Cassidy is out of surgery and doing well in the PICU.  It's been a long exhausting day for everyone.  We checked in this morning around 11am.  Soon after ... Read more

Shannon Reynolds posted a new journal entry, "Surgery time again".

Hi Everyone, Well here we are again.  Wednesday is surgery day.  I am going to avoid posting the time for now just know we are not the first case of the day.  This ... Read more

Galen & Carole Marcille signed Cassidy's Guestbook.

Happy birthday Cassidy!! May you have a great day celebrating. May the Lord bless you real special today. Read more

Shannon Reynolds posted a new journal entry.

Happy 12th Birthday Cassidy! What an amazing young lady you are becoming! We love you so much and are so proud of you. I'll update more this evening. Much ... Read more

Angie Skoog signed Cassidy's Guestbook.

Shannon, I just read your very touching update on Cassidy.  Cassidy, you truly are a trooper!  I can say that for you too, Shannon.  Your family will be in my prayers.... Read more

Jodi Naugle signed Cassidy's Guestbook.

My prayers for all this to go well and for Cassidy to get pain relief soon. Enjoy reading your updates and being bale to see her progress. thank you for taking the time... Read more

Galen & Carole Marcille signed Cassidy's Guestbook.

Thanks for the update. We will keep Cassidy & you in prayer. And be praying for relief of pain. Read more

Jennifer Simon signed Cassidy's Guestbook.

what exciting (and trying) times your family is having.  Glad you all have each other to get through the trials and enjoy the good times together. :) Read more

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