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Cassidy’s Story

Welcome to our CaringBridge site. It has been created to keep friends and family updated about Cassidy.Be sure to read the latest in the journal, view the photo gallery, and drop us a line in the guestbook.Cassidy was born with a rare genetic condition called Conradi-Hunermann Syndrome. It affects her spine so she has scoliosis and kyphosis for which she has two VEPTR's (titanium ribs) to help keep her spine straighter. She has limb length issues. Her right side is shorter and she wears foot on foot prosthesis.  Her vision has now been corrected in her right eye. She had a very severe cataract in that eye that has now been replaced with a lens. We call it the bionic eye! She also has some patchy alopecia (otherwise known as bald spots). Cassidy also has some hearing loss in her left ear. This has been corrected with a hearing aid that she wears most days (it even has bluetooth in it!).  She has had 33 surgeries to date with more to come, usually one every six months. If you are interested in reading our journal on our other page please feel free to do so. You can find it at; www.caringbrige.org/wa/cassidyhuff Thanks for checking up on us! Please feel free to email me with any questions. Much love!

Latest Journal Update

Amazing ride!

Hi Everyone,


Cassidy has recovered well! She's been on quite the tour lately. We went to NYC and she performed on stage at Lincoln Center and then last month we were in Hollywood and she performed on the Dolby Theater stage! This is for SeriousFun camps like Camp Korey. It's been so much fun and we have been able to do and see so much. Cassidy and Ella were both able to see a finale show of American Idol, met so many people, performed on stage with Carole King and many others. Truly an inspirational ride we have been on.


She's hosted a show at the Triple Door and been a guest tweeter for Seattle Living Room Shows. These girls are having a blast with all of the end of school year activities as well. Ella has been doing well in softball and we've seen her on the stage lately as well as the lead in the school play!


We have a great summer planned, and lots of fun things coming up. I'll keep you posted. For now I'll post a photo or two.


Thank you for your continued support, thoughts and prayers.


Much love,


Shannon.