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Cassidy’s Story

Welcome to our CaringBridge site. It has been created to keep friends and family updated about Cassidy.

Be sure to read the latest in the journal, view the photo gallery, and drop us a line in the guestbook.

Cassidy was born with a rare genetic condition called Conradi-Hunermann Syndrome. It affects her spine so she has scoliosis and kyphosis for which she has two VEPTR's (titanium ribs) to help keep her spine straighter. She has limb length issues. Her right side is shorter and she wears foot on foot prosthesis.  Her vision has now been corrected in her right eye. She had a very severe cataract in that eye that has now been replaced with a lens. We call it the bionic eye! She also has some patchy alopecia (otherwise known as bald spots). Cassidy also has some hearing loss in her left ear. This has been corrected with a hearing aid that she wears most days (it even has bluetooth in it!).  She has had 31 surgeries to date with more to come, usually one every six months. If you are interested in reading our journal on our other page please feel free to do so. You can find it at; www.caringbrige.org/wa/cassidyhuff Thanks for checking up on us! Please feel free to email me with any questions. Much love!

Latest Journal Update

Evening update

Hi Everyone,

Cassidy had a great afternoon and evening. I can't tell you how much she lit up when we had visitors today and loved moving to the floor. Having one of your best friends down the hallway that had surgery yesterday helps too! We spent the afternoon visiting with friends and had pizza delivered too. And our nanny brought up ice cream!! The dean of students from Cassidy's school came by for a visit as well as our camp friend Paige. And our favorite child life specialist Erin came to visit. Our amazing friend Levi even sent a video of a new song to us.

Cassidy has been up moving around, drinking lots of fluids, and eating too. Plan for tonight is to stay ahead of the pain , rest and be comfortable (which should be easier as vitals are every four hours instead of two). If all goes well tonight then tomorrow we can head home!

Please continue to keep Cassidy in your prayers. We will be up for visitors in the morning and after we get home too. Message or text me if you want to swing by the house.

Much love,