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My Story

Welcome to our CaringBridge site. It has been created to keep friends and family updated about Cassidy.

Be sure to read the latest in the journal, view the photo gallery, and drop us a line in the guestbook.

Cassidy was born with a rare genetic condition called Conradi-Hunermann Syndrome. It affects her spine so she has scoliosis and kyphosis for which she has two VEPTR's (titanium ribs) to help keep her spine straighter. She has limb length issues. Her right side is shorter and she wears foot on foot prosthesis.  Her vision has now been corrected in her right eye. She had a very severe cataract in that eye that has now been replaced with a lens. We call it the bionic eye! She also has some patchy alopecia (otherwise known as bald spots). Cassidy also has some hearing loss in her left ear. This has been corrected with a hearing aid that she wears most days (it even has bluetooth in it!).  She has had 30 surgeries to date with more to come, usually one every six months. If you are interested in reading our journal on our other page please feel free to do so. You can find it at; www.caringbrige.org/wa/cassidyhuff Thanks for checking up on us! Please feel free to email me with any questions. Much love!

Feed

Shannon Reynolds posted a new journal entry.

Hi Everyone!I have a long update to post so please bare with me.  First I should let you know about our appointments we had in January.  This was decision time for our ... Read more

Angie Skoog signed Cassidy's Guestbook.

Shannon, I just read your very touching update on Cassidy.  Cassidy, you truly are a trooper!  I can say that for you too, Shannon.  Your family will be in my prayers.... Read more

Jodi Naugle signed Cassidy's Guestbook.

My prayers for all this to go well and for Cassidy to get pain relief soon. Enjoy reading your updates and being bale to see her progress. thank you for taking the time... Read more

Galen & Carole Marcille signed Cassidy's Guestbook.

Thanks for the update. We will keep Cassidy & you in prayer. And be praying for relief of pain. Read more

Jennifer Simon signed Cassidy's Guestbook.

what exciting (and trying) times your family is having.  Glad you all have each other to get through the trials and enjoy the good times together. :) Read more

Shannon Reynolds posted a new journal entry.

Hi Everyone, We have been so busy these last few weeks!  Ella had a slumber party, Cassidy went to 6th grade camp and we ended this last weekend with two concerts.  One ... Read more

Makenna Schwab signed Cassidy's Guestbook.

Congrats Cass You totally deserve this. You are amazing girl and a huge inspiration for a lot of people especially for me. Keeping going you are super tough. I know you ... Read more

Shannon Reynolds posted a new journal entry.

Hi Everyone, Today is Ella's 8th birthday!!! We are so proud of the amazing young lady she is becoming. Ella is in 2nd grade this year and doing so well. She is an ... Read more

Sara Koppes signed Cassidy's Guestbook.

Congratulations, Ms. President! Wonderful news! You deserve to be so proud, Shannon! Love this story! Sara Read more

Jon and Karon Hill signed Cassidy's Guestbook.

Great!  We're not that surprised though because those of us that know her realize her potential. Read more

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