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My Story

Welcome to our CaringBridge site. It has been created to keep friends and family updated about Cassidy.

Be sure to read the latest in the journal, view the photo gallery, and drop us a line in the guestbook.

Cassidy was born with a rare genetic condition called Conradi-Hunermann Syndrome. It affects her spine so she has scoliosis and kyphosis for which she has two VEPTR's (titanium ribs) to help keep her spine straighter. She has limb length issues. Her right side is shorter and she wears foot on foot prosthesis.  Her vision has now been corrected in her right eye. She had a very severe cataract in that eye that has now been replaced with a lens. We call it the bionic eye! She also has some patchy alopecia (otherwise known as bald spots). Cassidy also has some hearing loss in her left ear. This has been corrected with a hearing aid that she wears most days (it even has bluetooth in it!).  She has had 31 surgeries to date with more to come, usually one every six months. If you are interested in reading our journal on our other page please feel free to do so. You can find it at; www.caringbrige.org/wa/cassidyhuff Thanks for checking up on us! Please feel free to email me with any questions. Much love!

Feed

Shannon Reynolds posted a new journal entry, "Recovering well".

Hi Everyone, Cassidy is recovering well. We have spent the last few days at home relaxing and catching up on sleep! It's been nice for all of us. There's something to be ... Read more

Paula Franzen signed Cassidy's Guestbook.

Hey Cassidy!  It's Mrs. Franzen.  Glad to hear the surgery went well.  Sorry you had to have a second one.  Hope to see you back at school soon!!! Read more

Angela Gordon signed Cassidy's Guestbook.

Hey Cassidy,It's Mrs. Gordon!  Just wanted to check on how you are doing and I hope you are recovering well.  See you soon! Read more

Shannon Reynolds posted a new journal entry, "Surgery went well".

Hi Everyone, Cassidy's drainage surgery went well. She now has two JP drains in that will stay in her back until next Tuesday. She has steri strips on the top of the ... Read more

Shannon Reynolds posted a new journal entry, "Back to surgery".

Hi Everyone, Tomorrow we are going back to Seattle Children's for surgery.  We have a 1pm check in with a 2:15 surgery.  Cassidy has been complaining of pain and ... Read more

Shannon Reynolds posted a new journal entry, "We are HOME!".

Hi Everyone, We made it home yesterday afternoon! Cassidy is still in lots of pain. She is spending most of her time in her room resting. At least she's eating and in her ... Read more

Jen Ankcorn signed Cassidy's Guestbook.

Exciting day to be healing up so well and meet Russell W. Love and prayers for continued healing Cassidy! Hugs and hope for strength for the family in supporting you Read more

Shannon Reynolds posted a new journal entry, "She had a good day!".

Hi Everyone, Cassidy had a good day today.  She is still in PICU tonight but we were just told that they are treating her as if she is on the floor.  This is good.  Not ... Read more

Shannon Reynolds added a new photo.

Shannon Reynolds added a new photo.

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