Close

CaringBridge Is Funded by People Like You

Make a donation to CaringBridge

Honor Cassidy with a tax-deductible contribution to CaringBridge today.

Click here to make your donation.

Cassidy’s Story

Welcome to our CaringBridge site. It has been created to keep friends and family updated about Cassidy.Be sure to read the latest in the journal, view the photo gallery, and drop us a line in the guestbook.Cassidy was born with a rare genetic condition called Conradi-Hunermann Syndrome. It affects her spine so she has scoliosis and kyphosis for which she has two VEPTR's (titanium ribs) to help keep her spine straighter. She has limb length issues. Her right side is shorter and she wears foot on foot prosthesis.  Her vision has now been corrected in her right eye. She had a very severe cataract in that eye that has now been replaced with a lens. We call it the bionic eye! She also has some patchy alopecia (otherwise known as bald spots). Cassidy also has some hearing loss in her left ear. This has been corrected with a hearing aid that she wears most days (it even has bluetooth in it!).  She has had 33 surgeries to date with more to come, usually one every six months. If you are interested in reading our journal on our other page please feel free to do so. You can find it at; www.caringbrige.org/wa/cassidyhuff Thanks for checking up on us! Please feel free to email me with any questions. Much love!

Latest Journal Update

Good day!

Hi everyone,


Cassidy had a good day at home today. She was able to be surprised by her best friend from Wenatchee who happened to be in town for an appointment. Sleeping in your own bed, homemade food and visits from friends make for a great first day at home.


We are so thankful to have wonderful people in our lives. I will update again this weekend. We are planning on sleeping in and resting. Please let me know if you want to stop by.


Much love,


Shannon.
heart
3 people hearted this

Comments

1 Comment

Makenna Schwab
By Kenna 💗 — last edited
So happy I could stop by!!
Love you guys!!
Love Kenna