Casey has fought long and hard for 21/2 years. He has overcome what seemed to be insurmountable complications during his fight. He truly is a warrior and we are so proud to have him as our son.
On a previous clinic day at CHLA we learned from Casey's primary oncologist that she has decided to end chemotherapy treatments a little sooner than we had thought. Dr. Sun explained her reasoning. She said that Casey has been cancer free since December of 2012 and that continuing chemotherapy for another 6 months will not make a difference in his treatment. She also said that she wants to stop the chemo so that Casey's body can recover and heal from all the treatments he has endured and to ready him for a heart transplant if necessary. Of course we hold on to hope that once his body has a chance to heal that his heart function will improve but that will remain to be seen as time goes on..
All that being said, as of Monday 4/27, Casey has had his last I.V. (vincristine) chemotherapy. The last two rounds of I.V. chemo have been strong doses as Dr. Sun is ending the treatments aggressively. As a result Casey's white blood cell count is very low at 400 and his immune system is completely suppressed. He has been very lethargic and is taking is easy. He has developed sores inside his mouth so Susan took him to CHLA yesterday (Thursday 5/7) to be checked out as a precaution. They drew blood for labs to check his levels and to see if he has an infection but he does not. As a precaution, a pill form antibiotic has been prescribed for the next 5 days.
When the labs came back and they saw how low his white blood cell count is the doctors decided to stop the chemotherapy immediately. With his WBC so low they would normally hold chemotherapy until his cells recovered, but since it will take a couple of weeks for that to happen Casey's chemotherapy has officially ended by default...YEAH!!! THANK YOU JESUS!
It wasn't until last night that this really registered with Casey and us when Susan brought his evening meds to him and there was only 3 pills in the dish. Usually he would take 7 to 8 pills four times per day. On a typical day Casey would take 30 to 35 pills total during the course of the day... Casey looked up at Susan and said "that's all I have to take now?" With a smile on her face she replied "yes baby your chemotherapy is all done now". It was a happy moment for us all.
Casey has endured this marathon journey he/we have been on for 21/2 years without wavering and now his body will have a chance to recover. Even though treatment of his heart condition will be ongoing, now that he is off of chemotherapy we are hoping and praying that with help from the Good Lord above that his body will completely heal. We are excited and looking forward to this next chapter of our lives..
The pictures are from when Casey was first diagnosed in November of 2012 to current...
Thanks and many blessings to all who have supported Casey and us on this journey, we are forever grateful !