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Casey’s Story

Welcome to Casey River Fisher's webpage. On November 26th 2012 we admitted Casey into CHLA (Children's Hospital in Los Angeles). On November 29th at approximately 3:00 pm Casey was diagnosed with (ALL) Acute Lymphoblastic Leukemia. Up to this point in Casey's life he was an innocent fun loving 8 year old. Now with the diagnoses of cancer his life will be changed forever. As Casey's parents we are going to keep his spirits high but no child should ever have to go thru something like this.

To those who don't know here is a little history of what is going on with our son Casey.Approximately one month ago Casey started to have a fever in the evenings. After multiple blood analysis and ruling out simple causes of his elevated white blood cell count, on Monday the 26th of November after an appointment with Casey's pediatrician, Dr. Jabaji decided it was time to take the steps to find out what was going on with his blood and contacted Children's Hospital in Los Angeles. Upon contacting the hospital the doctors advised us to admit him immediately. Casey was admitted to CHLA Monday night at 9:00 pm.On Wednesday the 28th Casey had a bone marrow biopsy and by Thursday the oncology team gave us the diagnosis that he has (ALL) Acute Lymphoblastic Leukemia.
 
On Friday the 29th Casey had his first chemotherapy procedure which involved a Lumbar puncture (spinal tap) to administer the first drugs as well as take a sample of the spinal fluid for analysis, also during the procedure they put a PICC line in his arm for drawing blood and administering chemotherapy drugs. After the procedure he then was taken for an MRI and after all he had been thru fell asleep in the MRI machine. Our son's case is a rare one for a few reasons. #1 is that he not only has a high white blood cell count also the eosinophile cells in the white blood cells are extremely high. The normal baseline for eosinophiles should be 3.5% of the white blood cells and Casey's count was 85%. #2 The high eosinophile count in his blood did some damage to the lining of both ventricles of his heart and created blood clots in both ventricles. #3 When they did a bone marrow biopsy they found staph infection in his bone marrow. With this development in his heart the treatment has been slowed because the clots have to be addressed first with a blood thinner and closely monitored because if they break loose the clots can cause and embolism. One bit of good news is that the analysis of the spinal fluid to see if the cancer was in his brain were negative, there were no cancer cells in his brain.Friday night after the MRI the doctors began to give casey the blood thinners to get his blood ready before giving any chemotherapy drugs, as they must work in coordination with each other.
 
Today is Saturday, the blood thinner is still being administered and by this evening the next round of chemotherapy drugs will be given as well.The Oncologist told us that by the 4th or 5th day of chemotherapy the cancer will melt away and signs of cancer will diminish. Even though this is exciting news the whole process including maintenance after 6 months will take 3 years.The doctors as well as this awesome hospital are amazing. The Oncologists, Hematologists, Cardiologists, Infectious disease, along with other specialists make a team who all collaborate together to come up with a plan of how best attack each case.

Long story short this has been a whirlwind week and we are definitely staying positive for a great outcome for Case. We want to thank everyone for the outpouring of thoughts and prayers and the continued support. Alan, Susan and especially Casey !

Latest Journal Update

Home Sweet Home

Before Casey was discharged from the hospital he had a bone marrow biopsy because the oncologists suspected that the leukemia could be coming back due to an elevated eosinophil percentage in his blood. They suspected this because when Casey was diagnosed he presented with a super elevated eosinophil percentage of about 65%. That being said, we have been concerned that he could potentially relapse. And the first few nights at home Casey's started to have low grade fevers which made us even more concerned.. The prognosis of a relapse of course is bad, but even more so with Casey's heart condition. The initial results of his bone marrow biopsy were negative. The bone marrow blood was also sent out for an MRD scan (minimal residual disease) that can find 1 cancer cell in a million cells. This is the true result that determines if there are blast cells in his system or not. During Casey's last visit to the hospital Casey primary oncologist Dr. Sun said the MRD results are negative for leukemia... Yeah!!!

And even though it was a tough day for Casey having to get poked twice to get the blood draw, the lab results showed that the eosinophil percentage has decreased to half the amount. So this is all good news, and the only reason we can think of as to why his eosinophils spiked up was because of all of the new heart medication he is on and that over time his body is normalizing once it gets used to the new drugs.. Dr. Menteer, Casey's cardiologist said that he thought oncology was wrong all along.. And thankfully we are finding out that Dr. Menteer is right.

Casey has been doing fantastic since he has been home and just got fitted for new leg braces yesterday..


As always we are so blessed to have so many awesome people surrounding us in support and prayer.

Thank you isn't nearly enough to describe the gratitude we extend to you all..
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Comments

4 Comments

evelyn garcia
By Mel "Fisher Strong"
The first time we met Melony McGuire was at the Megan’s wings 10th annual fundraising 5K run/walk. I only knew of Melony as one of Casey’s friends who had come to join the event in support of childhood cancer and Megan’s wings.
Just a few weeks later our son Casey, who has been battling leukemia for 2 years, got really sick with pneumonia and had to be hospitalized. Unbeknownst to my wife and I Melony felt compelled to do something for Casey and on a weekend she sold lemonade to raise money for Casey.
A week had gone by and my wife and I got a message from Melony’s mother that they would like to come up to Casey’s room in the ICU to see him. When Melony arrived she presented Casey with a bucket full of money and it really put a big smile on his face to know that he is loved by so many. Melony managed to network with her school (Hermosa Elementary) and sold a whole lot of lemonade that day, and presented Casey with $310.00.
Now Melony has taken her desire to help to another level. She has organized a 5K run in honor of Casey and we are just completely blown away. The run is this Saturday December 6th at 8 am at Hermosa Park in Rancho Cucamonga.
As Casey’s parents it was very heartwarming to see this beautiful young lady with a heart of gold doing such wonderful things for our son. Melony is truly a special person and Melony’s Mother Evelyn Garcia must be beaming with pride at her daughters drive and will to help others.
Having a child that is sick we see it firsthand how unfair it is when children are robbed of their innocents. In some cases they don’t get to live the normal life of a kid or lose their life from this evil thief in the night called cancer.
Sue Althouse
By Sue Althouse
Fabulous news:)
Nancy Reynolds
By Nancy Reynolds
Happy Thanksgiving to the Fisher Family who has continued to stay so strong! Hugs and kisses and so much to be thankful for! Neil and I and the kids wish you the best and happiest thanksgiving! XOXOXOX
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kay dean
By Kay Dean
Thank you for the update, this is great news. Stay positive and in prayer!