Casey "C.J." Bicknell's Journal
Written Dec 9, 2013 11:02amHAPPY ThanksGIVING: This picture of Brittany and Casey tells a thousand words. Casey had a great weekend at home during thanksgiving, together with 18 other Bicknell family members together over a fantastic traditional dinner. We bowed our heads and our hearts to give Thanks for the progress, for life, for health, healing and for strength to come. We are "Thankful" for the kindness and generosity of so many followers. Some of the Bicknell's and visiting friends had not seen Casey in a while and many commented on his progress of how happy and "good looking" he is....(he gets that from his Mom). It sure was Good for both CJ and I to be back home as a family again!
Written Nov 19, 2013 1:20pmCLIMBING the TBI LADDER: Update.
Tues CJ had his first and a long seizure.
Wed he was out of it; did not turn when called; did not recognize Dad; did not follow commands; no sounds;slept 10 hours. A step backwards by 2 1/2 yrs.
Thurs Dad walks into CJ room in the a.m. and he recognized me with a small smile. Peddled his leg bike just 10 mins.
Fri CJ was smiling more, following simple commands, recognizing people and turns to the correct person when asked. OK'ed released to home for the weekend.
Sat CJ really coming around to Mom, Dad & Sister. Smiles became laughs. Vocal sounds return. Moving arms and legs. Back 70%
Sun seemed more CJ like; Alert; responding appropriately.
Mon was DR visit; and orthotic support splint, then back to FINR.
Tues CJ was on his peddle bike1st gear for 30 mins; standing with PT asst; not much doing with TOBii machine.
CJ is back on his plan, climbing that ladder of TBI recovery to get stronger and better with the help of all who is caring for him.
Thank you to the faithful followers of Casey's journey. We do read each and every positive inspiring note!
Written Nov 13, 2013 1:34pm911 on 11-12-13: It was in late afternoon yesterday that CJ just finished his 30 min PT session. He was doing well, smiling and vocal. Then without warning very quickly CJ went into convulsions, his eyes went in different directions, in a far away gaze. His face and eyes were twitching. His tongue was thrusting with a jawing motion and saliva foam around his mouth....CJ was having his very first seizure. It lasted a long 7 mins (1-2 min avg). I was scared, tried to soothe and comfort him, "Dad is right here CJ", but no response. Panic came over me, Please Do Something!
FINR nursing and many support staff were right there very quickly; BP high, HR 160 (83 avg), called 911. Fire Rescue was to FINR in 10 mins and then off to Fla Hosp. There CT of the brain, blood work came back normal (for CJ) and no evidence of a stroke! Dad takes his first breath and calls Mom and Sister. CJ was observed for 4 hours and was released back to FINR with a script of anti-seizure med (keppra). I need to Thank Dr Stabley-Neuro in Stuart who made himself immediately available to the med team at Fla Hosp. Dr Stabley has always been a champion for CJ.
This was the most scared I have been since CJ accident almost 4 yrs ago.
Today, CJ is quite lethargic, away, little responses, no smiles, no following commands. Clearly this knocked him off the ladder and fell hard. CJ is skipping therapy today, a day off and he is sleeping allot.
This was a sharp stabbing reminder of CJ injury, deficits and vulnerability. It also shows me how sensitive we still are to his pain and predicament.
So, Casey, dust yourself off, turn around, grab that first rung and start climbing again.
Love, Dad, Mom & Sis.