Well Carter went 15 days without an infusion Sunday we took him in because he was breathing kinda fast and his hbg was at 3.6. Which was a pretty big shocker because we have seen him that low before and he was not acting like he had a hgb of 3.6. He was running around and playing, being his happy little self. Today we went in and it was at 8. So who really knows how accurate the test really is. We are trying to work things out so we can go home in a couple of wks and maybe just come up here every 2wks. We all are really missing home and ready to get back to somewhat of a normal life. Dr. Peter's emailed us last wk and it looks like he won't be coming back to cmh after all. I guess we will still continue to wait for him to resurface at a new hospital. Carter has started a new fav thing, Blue's Clue's he is always running screaming "clue clue" He is picking up new words everyday. He really is a special little guy, he's got a smile that will light up a room.
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