Thank You for stopping by. Please don't forget to sign the guest book....Carrie Sue

My Story

Welcome! My Name is Carrie and I have Pancreatic Neuroendocrine Cancer (carcinoid Tumors) with Carcinoid Syndrome. I am 33 years old and was diagnoased in August of 2004. Want to know more about me read my full story. Thanks for letting me share this with you. ~Carrie~

Journal

Friday, May 29, 2009 2:15 AM, EDT


Hello Everyone ~  How are you doing?  Well its been a long time since I wrote!  Well a lot has gone on in 3 months.  I got some CT Scans and the tumors SHRANK!  YIPPIE!!  So Dr. Kulke decided to keep me on Temodar and Octreotide LAR Depot.  He said my blood work looks fine!  They are keeping a close eye on the blood work certian markers because of the temodar and if there is any problems they will stop the treatment.  Soooo it is on the chemo pill 7 days off 7 days, which now I have been on this regimn for 19 months!  Can you believe this August will be my 5 year mark with this cancer, I can't believe it.  I thought when I got diagnosed that I'd never see this.  But here I am and not just me, I'm here to celebrate survivorship with my true love Dan.  Oh how I love him......awwwww!   Dan you are the best through and through just hope you know it.  My cancer has responded more to chemo and treatment since I meet him a year ago!  Now noone is going to tell me any different love and positive attititude has a LOT to do with this. 
Yes I have had a difficult past month of so, but it has made me a stronger person on the inside.  I've become a better person, I've learned alot about myself and life in general.  Life is too precious to let it slip through your finger tips and when you have someone that loves you like Dan loves me life matters no matter what kind of disease we have.  I can truly say cancer has changed my life, fully.  I am no longer the same person I was before the diagnoses.  I'm stronger now, I see thing differently and look at things in a way that I exam  it for a while, sounds funny but I do.  We don't know how long we have on this earth, so take it in when you can!  When something needs loving, love it.  When someone needs a hug, hug them.  When a friend needs a shoulder to lean on, give them yours to lean on.  Open your heart, now is the time to do it!!
Dan and I have known each other for a year now, however our first anniversary is June 4.  I can't wait.  I can't believe its been a year!  Time flies when your having fun!  We have found out we love to bowl!  trying to get him to join a bad bowlers league! LOL! 
I applied to a local community college,  I am going to college this fall for computer media.  I'm so excited!!  They are willing to accomidate me for my trips to Boston and give me extra time when I feel tired from chemo, really really accomdating. 
We are taking our cruise in January of 2010,  When it is nice and snowy here We'll be in the warmth of the caribbean waters!!.
Oh I am officially DIVORCED!!  as of May 28th!!  Legally done........Dan I'm yours.....hehehehehehe!!!  no I'm not pushing......am I?  He is sweet though.
Dan went to Dana-Farber with me Yesterday and he made me relaxed it was nice, he had me laughing my head off and Dr. Kulke came in smiling and said are you laughing?  I was like you never seen me laugh?  Dan had me in stiches all day, It was such a relief just to have him with me, keeping my mind off cancer, he just doesn't realize how much he does for me and how much I care and love him.  It nice to have that and I hope everyone in this world has the chance to feel this in there lifetime, its wonderful!  Well my friends I leave you with one of my quotes:

"Pure love is more powerful than any drug.  The affects are breathe taking." CSS

Love and Hugs to you All
Carrie Sue

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HOSPITAL INFORMATION

Dana-Farber/Brigham and Women's Cancer Center
Inpatient mail c/o Brigham and Women's Hospital
75 Francis Street
Boston, MA 02115
United States