Carmen Crilly
   WELCOMEmy storyjournalguestbookphotoslinkstributesauthor sign inhelp
 
 
    See All Photos
 
 

Carmen was diagnosed with Krabbes disease as she turned 5 months old, and passed away when she was just 10 and a half months. Her life was short, but so, so sweet. Please click on 'read story' to learn more about Carmen and on 'links' to see her on youtube or to look at her shutterfly photo book.


"Deep in their roots all flowers keep the light" - Roethke

    Read Story
 
  MONDAY, DECEMBER 01, 2008 09:22 PM, CST
Subscribe to journal update notification

I am finding the approaching holidays difficult. My life and family look so different than they did last year. I miss Carmen. Bad. I see other little girls around the age Carmen would be today and I find myself wondering what she’d say to me…how I’d do anything to hear her laugh again and know what it would sound like to hear her call me ‘mommy’. But I think that I’m missing those unattainable imaginary moments as a form of escape. This time last year Carmen’s health really started to deteriorate, and those memories are very painful. I cry going up the stairs to my room on the way to bed because my arms feel empty without her. I close my eyes and for a second believe if I open them I’ll see her leaning on her pillow on the couch next to me. I hope when I turn the corner in my room I’ll see her lying sideways on my bed with her little legs sticking straight out and crossed at the feet, facing all the windows because she loved the sunlight.

I know all about perspective. I know that the holidays and families don’t really look the way they’re portrayed on tv. I know that I’m not the only person hurting from loss. I know that this is not ‘the most wonderful time of the year’. I know I’m not the only mom to go through the holidays without her child. I know I am strong and capable and that I face things straight on. I know I don’t like to appear vulnerable. And I know I like honesty…and lately I’m tired and sad and hurting immensely. I’m crying more easily than ever. These holidays are not going to be easy for me, especially on the days when we’ll be juggling our new family arrangement and I won’t have any of my children with me. I feel as though I’m digging my heels in the closer we get to Christmas and to January 21st, the one year anniversary of Carmen dying. Though I know there are friends out there who are going through the same kind of grief, this pain is lonely.

I will get through. I will cry, probably more than I ever have even though it doesn’t seem possible! I will watch videos of Carmen and trace the outline of her smiling cheek with my finger. I will lean in and rub noses with her picture on my fridge. I will submerse myself in the devastation of never seeing Carmen laugh or smile again after the afternoon of December 16th. I will remember strange and horrible things and marvel at what the human body can go through. I will mourn my Carmen. And I will hug and kiss Ella and Mick a little too much and a little too long. And I will cry buckets over not being able to do the same to her.

    Read Journal
 
  GUESTBOOK SIGNED 3 TIMES TODAY

Please feel free to leave us a message! Our journey with Carmen taught us the true importance of friendship and support, and we'd love to hear anything you have to say.

thanks, Catherine, Bill, Ella and Mick

    Visit Guestbook
 
     10012 VISITS FROM FAMILY AND FRIENDS

PLEASE GIVE THIS SEASON
This season, please give to CaringBridge.

In this season of gatherings, family and reflection, please give to CaringBridge. Your gift helps connect family and friends when they need it most.


HELP SOMEONE ELSE WHEN THEY NEED IT MOST
     Tell a Friend about CaringBridge.
    Help CaringBridge provide this free service to others who need similar support.

TRIBUTE DONATIONS TO CARINGBRIDGE
    Read the caring tributes in honor of Carmen.
    Make a donation in tribute to Carmen to provide CaringBridge to all families who need it.

HOSPITAL INFORMATION
Hospital for Sick Children
Toronto, ON
Canada