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Holly Land
Holly Land
Hi Melissa!  My name is Holly.  I was recently given your book Thankful for the Fight by a colleague and I went home and read it cover to cover.  You see, it was very meaningful to me because my son was also  diagnosed with cancer when he was just 16 months old.  He is now  5.  He had leukemia but it wasn't one of the 90% cure rate ones.  The type of leukemia he had was very rare and there were only a handful of cases in the country.  There was no protocol and the only thing they could tell us was that without a bone marrow transplant, he only had a 20% chance of survival.  With the transplant, they couldn't be sure since there was such limited data!  I, too, took to journaling and blogging to chronicle our journey.  If you would be interested, we can be found at caringbridge.org/visit/brettland.  I am by your story and I am interested in learning how, I,too, can spread the word about pediatric cancers and help children like ours. I pledge myself tone come one of Cannon's prayer warriors from this day forward!
Eileen Kamp
Eileen Kamp
Mumma Bear and Cannon.  I have been following Cannon for quite a while now and have never piped in until now.  Our son, Wyatt got hearing aides for the first time when he was about 18 months old.... similar health background to yours... Stage IV NB, dx. 4 mths, etc.  Anyhow, he is now almost 7.  It was definitely a change to get used to having things in his ears... but he got used to them.  A few hours a day at a time... now he is putting them in himself and wearing them all day.  A fun thing he likes to say as if it is like putting Play Doh in his ears... it looks like it and feels a little like it. (They usually let him play with some of the extra play doh stuff while they are doing it).  I think the mold making only takes a few minutes... first time is always hard, but gets easier.  Wyatt also likes to pick out the colors he wants his mold to be.  Some like them clear so less noticeable, but we leave it up to Wyatt and he usually chooses three colors and gets excited to change them every 3-6 months.  His friends in Kdgtn said they look cool and look like melted crayons:)  If you ever want to chat about the hearing aide stuff or any of the other stuff... feel free to contact us:)
Take care and best of luck with the molds!
Eileen Kamp
eileenk.art@gmail.com
www.caringbridge.org/visit/wyattkamp

Carol Minnich
Carol & Mark "Snip" Minnich

Melissa,

I read every one of your posts.   I love how you give us many of the serious details ..... and then interject bits of humor to make me smile.  ALL people need some humor .... that's what keeps us sane!  

Sending positive healing thoughts to Cannon.....

AND "good vibrations" and prayers to you, Mumma Bear.   You are  a Spectacular Mum.   I know that in my heart, even though I never met you.   Mike hit the jackpot when he met you (I know this will make Mike smile.....he knows it's true).

Take a DEEP breath Melissa ..... one day at a time....

Love & A Warm Aloha,

Carol
Richard Solomon
RIchard Solomon

Dear Lord:

Please protect Cannon and keep him healthy. Also continue to give his parents strength. He is a beacon of hope and courage for all of us and we pray that you spare him from any more pain or health issues. Please let him live a normal and long life with good health and happiness.

Amen


Diana Stillwell
Ms. Diana (Nuc Med)
Melissa, I love hearing about your happy days. They are well-deserved and you obviously are making the most of them. I wish I was right there to enjoy the smells of your house and eat some of the shephard's pie (haven't had that in ages). It warms my heart that Cannon is enjoying life and not confined to a hospital room and that your family is in a happy place. Thank you for sharing.
XOXO, Diana
Eileen Kamp
Eileen Kamp
Mumma Bear and Cannon.  I have been following Cannon for quite a while now and have never piped in until now.  Our son, Wyatt got hearing aides for the first time when he was about 18 months old.... similar health background to yours... Stage IV NB, dx. 4 mths, etc.  Anyhow, he is now almost 7.  It was definitely a change to get used to having things in his ears... but he got used to them.  A few hours a day at a time... now he is putting them in himself and wearing them all day.  A fun thing he likes to say as if it is like putting Play Doh in his ears... it looks like it and feels a little like it. (They usually let him play with some of the extra play doh stuff while they are doing it).  I think the mold making only takes a few minutes... first time is always hard, but gets easier.  Wyatt also likes to pick out the colors he wants his mold to be.  Some like them clear so less noticeable, but we leave it up to Wyatt and he usually chooses three colors and gets excited to change them every 3-6 months.  His friends in Kdgtn said they look cool and look like melted crayons:)  If you ever want to chat about the hearing aide stuff or any of the other stuff... feel free to contact us:)
Take care and best of luck with the molds!
Eileen Kamp
eileenk.art@gmail.com
www.caringbridge.org/visit/wyattkamp

Richard Solomon
RIchard Solomon

Dear Lord:

Please protect Cannon and keep him healthy. Also continue to give his parents strength. He is a beacon of hope and courage for all of us and we pray that you spare him from any more pain or health issues. Please let him live a normal and long life with good health and happiness.

Amen


Holly Land
Holly Land
Hi Melissa!  My name is Holly.  I was recently given your book Thankful for the Fight by a colleague and I went home and read it cover to cover.  You see, it was very meaningful to me because my son was also  diagnosed with cancer when he was just 16 months old.  He is now  5.  He had leukemia but it wasn't one of the 90% cure rate ones.  The type of leukemia he had was very rare and there were only a handful of cases in the country.  There was no protocol and the only thing they could tell us was that without a bone marrow transplant, he only had a 20% chance of survival.  With the transplant, they couldn't be sure since there was such limited data!  I, too, took to journaling and blogging to chronicle our journey.  If you would be interested, we can be found at caringbridge.org/visit/brettland.  I am by your story and I am interested in learning how, I,too, can spread the word about pediatric cancers and help children like ours. I pledge myself tone come one of Cannon's prayer warriors from this day forward!
Carol Minnich
Carol & Mark "Snip" Minnich

Melissa,

I read every one of your posts.   I love how you give us many of the serious details ..... and then interject bits of humor to make me smile.  ALL people need some humor .... that's what keeps us sane!  

Sending positive healing thoughts to Cannon.....

AND "good vibrations" and prayers to you, Mumma Bear.   You are  a Spectacular Mum.   I know that in my heart, even though I never met you.   Mike hit the jackpot when he met you (I know this will make Mike smile.....he knows it's true).

Take a DEEP breath Melissa ..... one day at a time....

Love & A Warm Aloha,

Carol
Diana Stillwell
Ms. Diana (Nuc Med)
Melissa, I love hearing about your happy days. They are well-deserved and you obviously are making the most of them. I wish I was right there to enjoy the smells of your house and eat some of the shephard's pie (haven't had that in ages). It warms my heart that Cannon is enjoying life and not confined to a hospital room and that your family is in a happy place. Thank you for sharing.
XOXO, Diana
Holly Land
Holly Land
Hi Melissa!  My name is Holly.  I was recently given your book Thankful for the Fight by a colleague and I went home and read it cover to cover.  You see, it was very meaningful to me because my son was also  diagnosed with cancer when he was just 16 months old.  He is now  5.  He had leukemia but it wasn't one of the 90% cure rate ones.  The type of leukemia he had was very rare and there were only a handful of cases in the country.  There was no protocol and the only thing they could tell us was that without a bone marrow transplant, he only had a 20% chance of survival.  With the transplant, they couldn't be sure since there was such limited data!  I, too, took to journaling and blogging to chronicle our journey.  If you would be interested, we can be found at caringbridge.org/visit/brettland.  I am by your story and I am interested in learning how, I,too, can spread the word about pediatric cancers and help children like ours. I pledge myself tone come one of Cannon's prayer warriors from this day forward!
Eileen Kamp
Eileen Kamp
Mumma Bear and Cannon.  I have been following Cannon for quite a while now and have never piped in until now.  Our son, Wyatt got hearing aides for the first time when he was about 18 months old.... similar health background to yours... Stage IV NB, dx. 4 mths, etc.  Anyhow, he is now almost 7.  It was definitely a change to get used to having things in his ears... but he got used to them.  A few hours a day at a time... now he is putting them in himself and wearing them all day.  A fun thing he likes to say as if it is like putting Play Doh in his ears... it looks like it and feels a little like it. (They usually let him play with some of the extra play doh stuff while they are doing it).  I think the mold making only takes a few minutes... first time is always hard, but gets easier.  Wyatt also likes to pick out the colors he wants his mold to be.  Some like them clear so less noticeable, but we leave it up to Wyatt and he usually chooses three colors and gets excited to change them every 3-6 months.  His friends in Kdgtn said they look cool and look like melted crayons:)  If you ever want to chat about the hearing aide stuff or any of the other stuff... feel free to contact us:)
Take care and best of luck with the molds!
Eileen Kamp
eileenk.art@gmail.com
www.caringbridge.org/visit/wyattkamp

Carol Minnich
Carol & Mark "Snip" Minnich

Melissa,

I read every one of your posts.   I love how you give us many of the serious details ..... and then interject bits of humor to make me smile.  ALL people need some humor .... that's what keeps us sane!  

Sending positive healing thoughts to Cannon.....

AND "good vibrations" and prayers to you, Mumma Bear.   You are  a Spectacular Mum.   I know that in my heart, even though I never met you.   Mike hit the jackpot when he met you (I know this will make Mike smile.....he knows it's true).

Take a DEEP breath Melissa ..... one day at a time....

Love & A Warm Aloha,

Carol
Richard Solomon
RIchard Solomon

Dear Lord:

Please protect Cannon and keep him healthy. Also continue to give his parents strength. He is a beacon of hope and courage for all of us and we pray that you spare him from any more pain or health issues. Please let him live a normal and long life with good health and happiness.

Amen


Diana Stillwell
Ms. Diana (Nuc Med)
Melissa, I love hearing about your happy days. They are well-deserved and you obviously are making the most of them. I wish I was right there to enjoy the smells of your house and eat some of the shephard's pie (haven't had that in ages). It warms my heart that Cannon is enjoying life and not confined to a hospital room and that your family is in a happy place. Thank you for sharing.
XOXO, Diana