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caitlyn’s Story

Welcome to Caitlyn's CaringBridge website. We've created it to keep friends and family updated about Miss Caitlyn. Get started by reading the introduction to our website, My Story.

Visit often to read the latest journal entries, visit the photo gallery, and write us a note in our guestbook.



WELL OUR STORY BEGAN ON MARCH 22,2009. WE BROUGHT CAITLYN TO OUR LOCAL E.R. WITH LEG PAIN AND A FEVER. SHE WAS SENT HOME ON ANTIBIOTICS FOR AN EAR INFECTION. A DAY LATER (MARCH 24) SHE STARTED RUNNING A FEVER AGAIN SO HER PEDIATRICIAN ORDERED BLOODWORK. AFTER RECEIVING THE RESULTS WE WERE TOLD THEY WERE QUESTIONABLE AND THEY WANTED US TO BRING HER TO UPSTATE UNIVERSITY HOSPITAL BECAUSE THEY HAVE THEIR OWN PEDIATRIC UNIT. WHEN SHE ARRIVED THERE ON MARCH 24 THEY ORDERED MORE BLOOD TESTS, MRI, XRAYS... THEY DECIDED TO SKIP THE MRI INITIALLY AND PERFORMED A HIP ASPIRATION SURGERY (MARCH 25) TO TEST FLUID IN HER HIP JOINT. (WHERE SHE WAS COMPLAINING OF PAIN) THE TEST CAME BACK NEGATIVE FOR INFECTION. THEY THEN TESTED HER FOR A WHOLE SERIES OF THINGS AND RULED OUT MOST. THEY FINALLY TOLD US AFTER A FEW DAYS THAT THEY WERE GOING TO DO THE MRI AFTER ALL.(MARCH 27) THIS CAME BACK TO SHOW THAT SHE HAD WHAT THEY THOUGHT WAS AN INFECTION ON HER THIGH BONE OF HER RIGHT LEG CALLED OSTEOMYELITIS. AT THE TIME WE WERE SEEING AN ORTHOPEDIC DOCTOR. THEY GAVE HER ANTIBIOTICS AND SENT HER HOME 2 DAYS LATER.(MARCH 30) ABOUT 7 DAYS LATER HER SYMPTOMS (PAIN & LIMPING) ALL RETURNED SO WE CALLED THE DOCTOR. SHE BROUGHT HER IN AND DID MORE BLOOD TESTS. SHE SAID THAT AS LONG AS SHE WASNT RUNNING A FEVER THAT SHE WAS PROBABLY JUST SORE FROM THE DIAGNOSIS AND SENT US HOME TO WAIT FOR RESULTS. THE NEXT DAY SHE STARTED RUNNING A FEVER SO WE CALLED THE DOC. AGAIN. THEY MOVED HER FOLLOW-UP APPT. TO A DAY EARLIER THAN IT WAS SUPPOSED TO BE.(APRIL 8) WHEN THE ORTHO. DOC. SEEN HER SHE WANTED HER TO GO BACK TO UPSTATE TO HAVE ANOTHER MRI AND MORE BLOODWORK DONE. SHE WAS THEN ADMITTED INTO UPSTATE FOR THE SECOND TIME. THEY GOT THE RESULTS BACK FROM MRI AND SAID THAT THE "SO CALLED" INFECTION THEY HAD FOUND IN HER LEG BEFORE IS NOW ALSO IN HER PELVIC BONE AND THEY SEEN A POSSIBLE SPOT IN HER NECK. SO THEY NOW WANTED TO PERFORM A BONE BIOPSY TO TEST IT AND SEE IF THE ORIGINAL DIAGNOSIS WAS CORRECT OR IF IT COULD BE SOMETHING ELSE. SO WE WAITED 48 HOURS FOR THE BIOPSY RESULTS. THEN THE DOCTORS CAME BACK TO TELL US THAT IT WASNT ANY KIND OF INFECTION AFTERALL. IT WAS CANCER!! AND ITS CALLED NEUROBLASTOMA. AND IT WAS IN STAGE 4!! NOW EVERYTHING WAS TURNED UPSIDE DOWN AND WE WERE AT A LOSS AS TO WHAT THIS WAS AND WHAT IT WAS THAT WE HAD TO DO FOR HER TO GET BETTER. IT WAS A WHOLE DIFFERENT PERSPECTIVE ONCE WE KNEW THE DEFINITE DIAGNOSIS. OUR PLAN WAS TO CONTINUALLY LEARN AS MUCH ABOUT THIS DIAGNOSIS AS WE COULD. AND THEN JUST TAKE THINGS ONE LONG DAY AT A TIME. CAITLYN FOUGHT NEUROBLASTOMA FOR 1 YEAR, 2 MONTHS & 15 DAYS BEFORE SHE RELAPSED. THEN SHE FOUGHT FOR ANOTHER 7 MONTHS & 20 DAYS BEFORE EARNING HER ANGEL WINGS. SHE GAVE IT EVERYTHING SHE HAD & THEN MORE. WE ARE EXTREMELY PROUD OF ALL SHE WENT THROUGH & OF HOW BRAVE SHE ALWAYS WAS. <>

Latest Journal Update

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I am your mother, but you, my child, I cannot hold. 
It'll get easier with time, or so I'm told. 
People may forget that I am your mother. 
I'm part of a secret club we only share with one another. 
But that doesn't diminsh my love for you. 
I think of you the whole day through. 
I wonder what you're doing, my Precious Little One. 
We are connected by an Infinite bond which cannot come undone. 
I will not let Death tear us apart. 
I promise to always keep you alive in my heart. 

missing you always cait
xoxoxoxoxoxo