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Mi historia

Welcome to our CaringBridge website. We've created it to keep friends and family updated on Caden. Please note: CaringBridge has a link for donations. All donations made here go to CaringBridge to support their website. Donations do not support Caden's cancer treatment. If you want to show your support for Caden directly, please go to www.team-fc.com or the Caden Shrauger Benefit Fund at Big Sky Western Bank.


Caden Shrauger - a happy, smart, kind, and loving little boy growing up in Bozeman, Montana. From birth, he could be found spending his summers camping at the lake, often entertaining his older half-siblings and all others he encountered with his silly antics. Winters were spent exploring Montana’s snowy landscape and learning to ski. At age 3, he started pre-school and was especially proud of becoming a big brother in October 2011.


In March 2012, three months shy of his 4th birthday, Caden began complaining of occasional leg pain. Then, he developed a low-grade fever and began complaining of neck and hip pain. The fever and pain persisted and Caden became very lethargic. Blood work showed very high indicators of inflammation and anemia. X-rays, ultrasounds, and a bone scan all appeared normal. Nothing was lining up to provide a clear diagnosis and his fever and pain continued. An MRI then showed abnormalities in the bone marrow of his hips, legs, and spine. His right adrenal gland was also slightly enlarged.


On March 30, 2012, Caden was flown 700 miles from home to Seattle Children's Hospital. The initial fear was leukemia, but a bone marrow test pointed toward another type of cancer – Neuroblastoma.


On April 3, Caden was diagnosed with Stage 4, High Risk Neuroblastoma, a solid tumor cancer of immature cells within the sympathetic nervous system; it is difficult to treat. Caden began an aggressive course of treatment on April 7, 2012. Six rounds of high dose chemotherapy were administered over 5 months. On July 30, the primary tumor site and adrenal gland were removed. Slowly, between the associated side effects of vomiting, exhaustion, mouth and throat sores, blood infections, NG feeding tubes, and viruses, Caden’s strength and cheerful, funny nature returned. He began to walk, even run, and play with his sister again.


Scans in late August 2012 revealed that although the cancer was not worse and had been reduced some, it did not respond as well as hoped, nor enough to proceed with the anticipated autologous bone marrow transplant. Caden then completed a seventh round of chemotherapy and traveled to San Francisco for specialized intravenous radiation therapy (I-131 MIBG therapy). This treatment significantly reduced the amount of cancer present, and Caden moved forward into transplant and traditional radiation therapy in early 2013.


In March 2013, he began six months of immunotherapy, including five rounds of difficult inpatient antibody infusions and six rounds of therapy trying to turn the cancer cells (immature nerve cells) into benign, matured nerve cells. Finally on September 11, 2013, after 17 months of treatment, scans showed that Caden had "no evidence of disease". He and his family lived in an RV in the hospital’s parking lot for over a year and returned home to Montana.


Less than two months later in November 2013, a small amount of neuroblastoma was found in his marrow, and he was then considered "relapsed". His blood was collected for a trial in Texas using his T-cells; the cells are engineered in a lab to fight neuroblastoma. During the time while the cells were engineered and FDA requirements of the trial were worked out, he did six rounds of the medication that can mature the neuroblastoma cells into benign ones from home. During that treatment, he had two sets of "no evidence if disease" scans but the final one again showed a few neuroblastoma cells. When preparing to go to Texas for chemo and his T-cell infusion, his scans showed "no evidence of disease" and he became ineligible for that trial but eligible for another trial available through Primary Children's in Salt Lake City. In July 2014, Caden started on a low intensity drug called DFMO that will hopefully provide a good quality of life and keep his disease at bay.


We all long for the day when a cure is found.


FC

Fuente

Pam Shrauger posted a new journal entry, "DFMO Cycle 1, Day 1".

Caden took his first dose of DFMO this morning! I didn't post anything sooner because I felt kind of jinxed after the past two attempts to start this trial. We learned on ... Lea más

Crystal Turner signed Caden's Guestbook.

So wonderful to hear the GOOD news.  I know it has to always be taken with a grain of salt but they have not found any significant evidence, and that is a miracle. ... Lea más

Love, Grammy (Mom) signed Caden's Guestbook.

Yippee! Can't wait to find out what your travel itinerary to MA is so I can start planning! Lea más

Pam Shrauger posted a new journal entry, "No "Evidence" of Disease????".

Just a quick update as I’ve spent the majority of the evening working through the logistics of everything related to these results and it's been a tiring week…  At ... Lea más

Pam Shrauger added a new photo.

Pam Shrauger posted a new journal entry, "Inconclusive".

People often ask me what’s next for Caden.  For once, I felt like it was pretty straight forward: if he has evidence of disease, we’ll go do the T-cell trial in ... Lea más

Lorrie signed Caden's Guestbook.

Hi Pam,Every prayer  for you  and extra prayers for Caden.   Please know that the Upton prayers are with you where- ever you go and for what-ever you end up  ... Lea más

Pam Shrauger posted a new journal entry, "In Seattle".

Caden and I made it to Seattle this afternoon.  He has labs, CT scan, MIBG injection, and bone marrow procedure tomorrow.  Thursday is the long MIBG scan.  Late ... Lea más

Jill Stephens signed Caden's Guestbook.

Happy Birthday Caden!!!! Hope you have a great day filled with everything you have wished for!!! Corey, Jill, Drew and Addison Lea más

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