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In Honor of Caden

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Caden’s Story

Welcome to our CaringBridge website. We've created it to keep friends and family updated on Caden. Please note: CaringBridge has a link for donations. All donations made here go to CaringBridge to support their website. Donations do not support Caden's cancer treatment. If you want to show your support for Caden directly, please go to www.team-fc.com or the Caden Shrauger Benefit Fund at Big Sky Western Bank.


Caden Shrauger - a happy, smart, kind, and loving little boy growing up in Bozeman, Montana. From birth, he could be found spending his summers camping at the lake, often entertaining his older half-siblings and all others he encountered with his silly antics. Winters were spent exploring Montana’s snowy landscape and learning to ski. At age 3, he started pre-school and was especially proud of becoming a big brother in October 2011.


In March 2012, three months shy of his 4th birthday, Caden began complaining of occasional leg pain. Then, he developed a low-grade fever and began complaining of neck and hip pain. The fever and pain persisted and Caden became very lethargic. Blood work showed very high indicators of inflammation and anemia. X-rays, ultrasounds, and a bone scan all appeared normal. Nothing was lining up to provide a clear diagnosis and his fever and pain continued. An MRI then showed abnormalities in the bone marrow of his hips, legs, and spine. His right adrenal gland was also slightly enlarged.


On March 30, 2012, Caden was flown 700 miles from home to Seattle Children's Hospital. The initial fear was leukemia, but a bone marrow test pointed toward another type of cancer – Neuroblastoma.


On April 3, Caden was diagnosed with Stage 4, High Risk Neuroblastoma, a solid tumor cancer of immature cells within the sympathetic nervous system; it is difficult to treat. Caden began an aggressive course of treatment on April 7, 2012. Six rounds of high dose chemotherapy were administered over 5 months. On July 30, the primary tumor site and adrenal gland were removed. Slowly, between the associated side effects of vomiting, exhaustion, mouth and throat sores, blood infections, NG feeding tubes, and viruses, Caden’s strength and cheerful, funny nature returned. He began to walk, even run, and play with his sister again.


Scans in late August 2012 revealed that although the cancer was not worse and had been reduced some, it did not respond as well as hoped, nor enough to proceed with the anticipated autologous bone marrow transplant. Caden then completed a seventh round of chemotherapy and traveled to San Francisco for specialized intravenous radiation therapy (I-131 MIBG therapy). This treatment significantly reduced the amount of cancer present, and Caden moved forward into transplant and traditional radiation therapy in early 2013.


In March 2013, he began six months of immunotherapy, including five rounds of difficult inpatient antibody infusions and six rounds of therapy trying to turn the cancer cells (immature nerve cells) into benign, matured nerve cells. Finally on September 11, 2013, after 17 months of treatment, scans showed that Caden had "no evidence of disease". He and his family lived in an RV in the hospital’s parking lot for over a year and returned home to Montana.


Less than two months later in November 2013, a small amount of neuroblastoma was found in his marrow, and he was then considered "relapsed". His blood was collected for a trial in Texas using his T-cells; the cells are engineered in a lab to fight neuroblastoma. During the time while the cells were engineered and FDA requirements of the trial were worked out, he did six rounds of the medication that can mature the neuroblastoma cells into benign ones from home. During that treatment, he had two sets of "no evidence if disease" scans but the final one again showed a few neuroblastoma cells. When preparing to go to Texas for chemo and his T-cell infusion, his scans showed "no evidence of disease" and he became ineligible for that trial but eligible for another trial available through Primary Children's in Salt Lake City. In July 2014, Caden started on a low intensity drug called DFMO that will hopefully provide a good quality of life and keep his disease at bay.


We all long for the day when a cure is found.


FC

Latest Journal Update

It's Scan Time

Four months have passed already and it's time for scans.  It's the longest we've been away from Seattle since all of this started, and man, did it fly by!  In many respects, it's so wonderful to get that sort of break from the stress that goes along with scanning.  In another respect, it's daunting to think that Caden's body hasn't been checked for cancer for four whole months.  By outward appearances, he's doing very well.  He turned 7 on June 30th and is a busy, sometimes naughty, little boy, enjoying his summer.

While scans are now being spaced further and further apart (as long as they remain clear), we still need to go to Salt Lake City every three months and see his local pediatrician monthly as part of the clinical trial Caden's on.  He just passed the one year mark for this roughly two-year trial!  We were in Salt Lake City last month, and Caden's grown some, so they increased his dose of DFMO.  He's still on a reduced dose for his size due to the hearing loss, but he's now again at the dose he was on when he had the hearing loss.  We're hoping he's big enough to not have that happen again.

Tomorrow, Caden has a checkup with a pediatric electrophysiologist (cardiac specialist) regarding his heart condition (WPW).  Tuesday, he'll have his IV placed, labs, a checkup with Dr. Park (we think it's been over a year since she's seen him!), bilateral bone marrow biopsies and aspirates, and his MIBG injection.  Wednesday, he'll have a hearing test and the long MIBG/SPECT CT scan.  We'd appreciate your prayers for safe travels, staying healthy, smooth procedures, calmed nerves, and of course, clear scans!  We'll update when we hear results.

Thank you for all of the love and support!  We are so lucky to have such wonderful friends and family.  The Get Poked For Caden blood drive went very well with 64 people donating resulting in 76 blood products (they had a high demand for plasma, so some people donated both!) and 5 people donating elsewhere.  We are humbled by the quiet  selflessness of blood donors, true heroes.  Thank you for all that have donated to the Ben Towne Foundation in honor of my marathon fundraiser coming up in less than two months.  The training has gotten tough!  Your generosity is uplifting.

FC
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Comentarios

10 Comentarios

Nancy Brill
By
Thank you for taking the time to do an update. I wish you safe travels and very clear scans for Caden!!
Always in my thoughts & prayers!
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1 person hearted this
Sue Koslovsky
By Sue Koslovsky
We understand what you are enduring.Our little granddaughter, Kate, 6 years old, is going through her scans in Cincinnati, Ohio. We pray for Caden' s clear scan results. Please keep our little Kate in your prayers. This is a journey of uncertainty, but we have to have faith in GOD and HIS plan for all of us. May you have safe travels, and calm nerves! Sending love and positive thoughts to all of you. Love from Kate's grandparents.
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Jennifer Green
By Jennifer Green
Praying for clean results from all of the scans, for safe travel and for calm nerves.
Jennifer Green
C.O.L.E.'S PRAYER TEAM
www.colesfoundation.org/
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Angel Battles
By Tracey Battles
My prayers are with Caden, you and your family. I stand in agreement with every prayer prayed for Caden. Caden is blessed to have you as his mom, as your wonderful spirit shines bright. By HIS stripes, Caden is healed. Thank you so very much for sharing. Blessings Abound.
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susan backstrom
By susan backstrom
PRAYING AGAIN FOR CADEN FC AND YOU WILL SEE ... I DECLARE.... NO EVIDENCE OF DISEASE..... I STILL INSPIRE PEOPLE WHO COME TO BETHEL REDDING FOR HEALING FROM CANCER USING CADEN'S STORY. YOUR SON IS A HISTORY MAKER A WORLD CHANGER ... A SON OF GOD AND YOURSELVES WITH A TESTIMONY GREATER THAN YOU CAN IMAGINE. SENDING LOVE
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Katharine Schwartz
By Katharine Schwartz
Thoughts and prayers for perfect scans for your little guy!
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Tricia Giles
By
Thanks for keeping us informed. Sending prayers for safe travel and clear scans!
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Janet Coughlin
By Janet Coughlin
Again, I appreciate the updates...prayers being sent for safe travels, health, smooth procedures, calm nerves, and most of all clear scans.
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Rita Holmes
By Rita Holmes
It was wonderful to see you all in MA and Caden was certainly full of energy then!
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1 person hearted this
Cathy Ostroski
By Cathy Ostroski. C.O.L.E.'s Prayer Team. www.colesfoundation.org
May God hear our prayers and bless you with safe travels, smooth test procedures and a healthy/positive set of results.
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1 person hearted this