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Brooke’s Story

1/5/09, Brooke was diagnosed at Children’s Hospital of Philadelphia (CHOP) with stage IV high risk Neuroblastoma, a very aggressive pediatric cancer.  Her cancer started in her adrenal gland & spread through her entire body (every single bone in her body from her skull down & 80-90% of her bone marrow was packed with cancer).  Her prognosis was not good.  She went on to endure 6 rounds of chemotherapy, surgery to remove her right adrenal gland, 2 stem cell transplants(lethally high doses of chemotherapy followed by stem cell rescues), 12 rounds of radiation to her skull, abdominal area & both femurs & a 6 month immunotherapy clinical trial ch.14.18. Brooke’s scans on 9/10/09 showed that she was NED (No Evidence of Disease)!  Brooke finished treatment in April 2010. 

Asa result of her treatments, Brooke has high frequency hearing loss and now wears hearing aids, has Thyroid disease from her scans and Horner’s Syndrome.

NB has a very high chance of relapse & potentially serious late effects from the toxic treatments so she was being monitored closely & having scans done every 6 months.  12/5/12 she relapsed with a tumor on her spine (L4).   Brooke is now back in treatment & participating in a phase 1 clinical trial at CHOP.  Statistics are abysmal…but Brooke is a fighter & I pray that we can keep her disease stable or better & hope that a cure is found in time for my baby.

Update:  12/5/12 Brooke relapsed with a small tumor on L4 of her spine.  It was picked up on her routine 6 month scans.  She participated in a clinical trial at CHOP for 5 months involving Irinotecan, Temodar and the trial drug Temsirolimous.  She remained stable on this trial but it also made her very sick with terrible migraines.  From July 8th-Dec 30th she participated in a clinical trial at Boston Children's/ Dana-Farber Cancer Institute involving a Dendritic Cell Vaccine.  Brooke did great on this trial and had very little side effects, wonderful quality of life and her disease continued to be stable.  As much as I wish she could stay on this trial longer the protocol is only for 6 cycles so we will be off in search of a new trial (most likely heading to Texas Children's Hospital in Houston for our next adventure). 

 

Latest Journal Update

Heartbroken

Brookes MIBG Thurs showed massive progression through her entire body.  The Neuroblastoma has spread everywhere (skull, both shoulders, spine, hips, pelvis, both femurs and possibly her liver).  She had additional CT scans last night and a bone marrow biopsy this morning.  Her morphine was increased this afternoon and that has helped a lot with the pain. My heart is completely breaking.  Thank you everyone for all your texts, emails, Facebook messages and voicemails.  Your love, prayers, words of encouragement and support mean so much to me I'm not answering phone calls right now (it's just too difficult to talk right now) and I'm doing my best to read every message and so is Brooke.  Just please understand if we don't respond to each one.  Please continue to pray for a miracle and ask your churches and friends and family to consider doing so as well.  I forgot to mention in Wednesdays journal entry that we moved the week of Christmas. If you would like to send Brooke a card our new address is:
Brooke Mulford
1099 Corbridge CT
Voorhees, NJ 08043
 Thank you so much
Amy
heart
15 people hearted this

Comentarios

58 Comentarios

Kenna Anderson
By Kenna Anderson CNCF
All I picture, Brooke, is your beautiful smile and sweet disposition! I thank God daily for you and ask for his healing hand upon your body. My prayers are with your whole family as you all gather around Brooke and give her your love and strength. May God bless you with healing, strength and His love to get you through each day! You will remain in my daily thoughts and prayers!
Marjorie Farmer
By Marjorie
Dear Amy , My prayers to our Savior ask that God's will be done. Remember that you have followed God's way in this earthly life and surrounded Brooke with strong Christian faith. She is Christian and you are both God's children. He lends His children to us for the time we spend on earth and He will raise us up to our true home with Him. We will see Him, face to face and walk with His son, our Brother and Savior, Jesus Christ. Overwhelming peace and comfort will be ours and His grace will surround us with love unsurpassed. Know that you have given this to Brooke by teaching her the Faith and giving deep ,caring love all of her life here. Jesus knows this and it is through Him that we will see our God in our true eternal home. My prayers are with you and my hope for you is that His miracles will continue and
Brooke will suffer little pain. Yours in Jesus' name
Marjorie Farmer
By Marjorie
God will take care of you both. Keep the Faith and know He is there with you. Take time for the 23rd psalm of David. I will give Him thanks and praise Him for His presence with you and know that He will spare Brooke from suffering. She is His child, as we all are. May Jesus strengthen you and stay by you. In Jesus name we pray.
Jeanne DeBenedictis
By Jeanne DeBenedictis, Escondido, CA
Oh dear Amy and Brooke... My heart breaks for you both, but I am praying in faith and believing God for good things. He has answered miraculously so many prayers lifted up to Him on your behalf. May HE once again astound us all with His unfailing love and miracle of healing, strengthening and Love... I don't need an answer, I just want you to know that you are loved and cared for my innumerable thousands of saints and angels, pleading to God on your behalf.. Love one and another and hold on to your hope xoxox Jeanne
Fay Smith
By Fay Smith
Dear Amy,
I know I have not contacted you much since we sat together at the Women of Faith Tours with Suzanne Hoover or saw one another at Calvary Chapel Bellmawr where I got to meet Brooke, but there has rarely been a day that the two of you have not been in my prayers. I have been attending a Ladies Bible Study group at Calvary Chapel's new church facility in West Deptford twice a month and had put Brooke on the prayer list there also a few months ago. I have continued to follow how Brooke has been doing through Suzanne, but in addition to my prayers I felt that I should personally let you to know that both you and Brooke have been on my heart for a long time and in my prayers since I met you in 2013.
Brooke is such an amazing young girl who touches hearts wherever she has gone...and in such a definite way has allowed the LORD to shine through her to everyone around her. Brooke's outlook and attitudes and love for the LORD have made a definite impact on me too, because she has never stopped fighting the fight, or complained about her circumstances, which people much older than she is do all too frequently for much, much less than Brooke has endured in her 11 years with us. What a blessing she has been to so many! BROOKE, YOU ARE TOTALLY AWESOME!! A superstar!!
I continue to pray for the miracle Brooke needs and for the FATHER'S loving arms to surround both of you. GOD is always our hope... "a very present help in trouble" (Psalms 46:1), and encourages us to "come boldly to the throne of grace, that we may obtain mercy and find grace to help in time of need" (Hebrews 4:16), and HIS word reminds us "the prayer of faith shall save the sick and the Lord shall raise him up..." (James 5:14-15). And so we continue to hold fast to our hope in HIM and to continue to trust in our FATHER'S hand upon Brooke.
Amy, you are an amazing example for mothers everywhere as you have continued to keep Brooke's ongoing battle your loving focus as you stand beside her, encouraging and supporting her all along the way. I continue to pray that HE will strengthen you, support you, minister to the pain of your mother's heart, and to help you to know HIS presence during this very difficult time. HIS promise is always that HE will never leave us or forsake us, so I know HE is with you even, and especially, now.
Yours in Christ,
heart
1 person hearted this
Greg Dunn
By Love you more than words can say, Millie and Greg
Dear sweet Amy and Brooke,
We admire both of you. Amy you are an amazing woman and mother. Your strength is incredible. Brooke you are such an amazing girl, such a fighter with a beautiful smile. Your love is an inspiration to all. You have done so much good and have been a testimony to many. It is a blessing, honor and privilege to have you in our lives. You live life to the fullest. It's been awesome to see the adventures you have had. We hope every dream and wish will come true. This has been a long, hard journey. We think back to the time we were there 7 years ago and how devastating it was. God pulled Brooke through when her body was full of cancer and He can do it again. We pray for God to sustain you and give you supernatural ability to endure as we await His miracle.
"May the God of hope fill you with all joy and peace as you trust in Him, so that you may overflow with hope by the power of the Holy Spirit." ROMANS 15:13
Jennifer  Lloyd
By Jennifer Trader
Amy and Brooke ,
Thinking of you both and praying for a miracle. You two have conquered so much, you both are so brave and strong. Sending love, encouragement, and tons of prayers your way.
JOY ANDREAS
By Joy Andreas
Amy, I am so saddened by Brooke's latest struggles... I don't usually write in these comments, but please know that I pray for your and Brooke's never ending strength and courage to see you through this major setback... Love and prayers go out to you... "God, we need a miracle here"...
Lorraine Golding
By Lorraine Golding
Amy, asking for continuous prayers for Brooke from my friends and family for
a miracle to heal dear Brooke. May God keep you in his care.
Lorraine Golding
By Lorraine Golding
Amy, asking all the my friends for prayers as I have done in the past, to
pray for dear Brooke and yourself for a miracle in healing her.
May God keep you in his care, Lorraine