Welcome to Brooke's CaringBridge site. It has been created to keep friends and family updated about our loving little girl.
God brought me to Children's Hospital of Philadelphia (CHOP) on Sunday January 4th, 2009. I am in great hands and know God is watching over me because of all the prayers you all have been saying for me.
1/5/09, Brooke was diagnosed at Children’s Hospital of Philadelphia (CHOP) with stage IV high risk Neuroblastoma, a very aggressive pediatric cancer. Her cancer started in her adrenal gland & spread through her entire body (every single bone in her body from her skull down & 80-90% of her bone marrow was packed with cancer). Her prognosis was not good. She went on to endure 6 rounds of chemotherapy, surgery to remove her right adrenal gland, 2 stem cell transplants(lethally high doses of chemotherapy followed by stem cell rescues), 12 rounds of radiation to her skull, abdominal area & both femurs & a 6 month immunotherapy clinical trial ch.14.18. Brooke’s scans on 9/10/09 showed that she was NED (No Evidence of Disease)! Brooke finished treatment in April 2010.
Asa result of her treatments, Brooke has high frequency hearing loss and now wears hearing aids, has Thyroid disease from her scans and Horner’s Syndrome.
NB has a very high chance of relapse & potentially serious late effects from the toxic treatments so she was being monitored closely & having scans done every 6 months. 12/5/12 she relapsed with a tumor on her spine (L4). Brooke is now back in treatment & participating in a phase 1 clinical trial at CHOP. Statistics are abysmal…but Brooke is a fighter & I pray that we can keep her disease stable or better & hope that a cure is found in time for my baby.