Brooke Mulford's Journal
Written Nov 12, 2013 8:59amBrooke is on the scan table having her MIBG scan right now. Can't believe it's been over two months since I posted last. The first weekend in November Brooke an I went to Paul Newman's Hole in the Wall Camp in Connecticut for an oncology family weekend. We had the most wonderful time (rock climbing, zip lining, crafts, ect...) until Sunday morning after breakfast when we went back to the cabin to pack up and Brooke fell about 6' off of the top bunk and had to be taken by ambulance to Connecticut Children's Hospital. They did X-rays of her spine and saw some suspicious areas that looked like possible new tumors. There was also blood in her urine so they decided to do a CT scan of her abdominal area to check for kidney damage and also her spine to get a better look at the suspicious areas. CT showed that the kidneys appeared to be okay but there were 3 areas on her spine that he thought could be tumors (T3, T5 & L3 - her relapse tumor is on L4). I called Dr. Weser, her old oncologist at CHOP who was also the doctor at camp that weekend and told him what they were saying and he thought that what they were seeing might be old stuff (sclerosis) from her prior treatments and previous disease burden in that area. He told them to call CHOP radiology and have them look at those areas and CHOP thought the spots in question were old. Praying that it's all old stuff and that her disease is stable or better.
videos of Brooke's big moment
Written Sep 2, 2013 10:18amHi all,
Busy day here but wanted to quickly post some links to video from this past week.
Tuesday Brooke was interviewed live for the Jimmy Fund Telethon (the clinic at Dana-Farber where Brooke receives her treatments) and they featured her story as well.
Here is the link to the story:
And the really fun one is Brooke throwing out the Ceremonial First Pitch for the Red Sox on Friday night. She did awesome and got a standing ovation from a sold out crowd! It was an unforgettable moment for both of us!
Here is her getting Hi-5's from the players after the pitch:
Then we were interviewed live from our seats in the 4 inning:
Next week Brooke will be having scans at CHOP so please pray for stable or better! If her cancer has spread she will have to come off this trial and I will have to find another one for her.
Loving the Red Sox!
Written Aug 30, 2013 1:28pmBrooke will be throwing out the ceremonial first pitch tonight at the Red Sox game! I have to admit I'm becoming a fan!