My Story

Brooke is currently 29 months Post unrelated cordblood transplant- Thanks for checking in on us,Brooke loves for me to read the guestbook entries to her!



Brooke was diagnosed 2 days before her 3rd birthday with Pre-B ALL on Jan 17th,2006.She completed her 2.5 yr chemo treatment on May 9,2008,relapsed June 10,2008.She received a gift of a unrelated cord blood transplant on December 9,2008.

Back in June of 2005, she had a febreil seizure,then she kept having ear infection continously,she was in daycare at the time.We kept taking her back to the docter and they would give her antibotics.December 25th,she wasn't up to opening presents.She was getting fevers.We took her to ER they gave her tylenol w/ codeine and sent us home,and said to finish her antibiotics she was already given.January 16th,2006,I was called to pick her up from daycare.She was pale,no energy,complaining that her legs were hurting couldn't walk,fevers,little red spots under her skin(petechies).We got an appointment with an after hours pediatrician she has never seen.He did a finger poke.Her blood level was a 4,put her on oxygen she was having trouble breathing,we were taken by ambulance to the hospital and went straight to PICU.After several tests,she was diagnosed with Leukemia,On January 17th,2006,I was 7 months pregnant.She completed her protocol for her chemo treatments on May 9th,2008.Her Bone marrow test showed 4% questionable cells.We followed up on June 10th the day after my birthday we received the call that she had relapsed we were told when we were ready to face it to come in,we were admitted the next day for another more intense treatment plan that really took a toll on her body she developed a fungal infection on her organs she had high fevers for over a month straight and also during her treatment was sent to PICU  over her treatment for non stop bleeding from both ends where it couldn't be controlled and she was not responding we thought we lost her, but she pulled through,after many complications she made it to receive her Bone Marrow transplant on December 9th 2008.We had a 3 month stay in the transplant unit.
During transplant she had GVHD of the skin,BK Virus,Bloody Urine,Hemoratisits(sp?) of the bladder,enlarged kidneys,stints placed to prevent blockage from the kidneys to bladder.
High potassium,Liver issues,Infection in Broviac had to be removed new port placed.In August of 2009 She developed GVHD of her Liver biospy confirmed.Immunosuppress drugs started back with steroids,cellcept added,tacrolimus.
December 2009 1 year followup showed 100% Donor cells,no sign of cancer-
Currently being weaned off of steroids,and cellcept,tacrolimus(immunosuppress drugs)
TAKING IT ONE DAY AT A TIME!!!

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tiffany martin posted a new journal entry.

Hello everyone, Wow it has been a long time since I updated,sorry... Today is Brooke's 3 year anniversary since transplant. She is doing great,her recent clinic visit ... Read more

tiffany martin posted a new journal entry.

Hello everyone, Wow it has been a long time since I updated,sorry... Today is Brooke's 3 year anniversary since transplant. She is doing great,her recent clinic visit ... Read more

tiffany martin posted a new journal entry.

Hey Ya'll, Brooke has been doing great, she started taking her medicine a month ago. She also got her mickey tubie out of her stomache. Since then we have been enjoying ... Read more

tiffany martin posted a new journal entry.

Hey ya'll, Just wanted to update, since I haven't done so in awhile. Brooke is doing great, I've started the application process to send her to camp for a week in the ... Read more

tiffany martin posted a new journal entry.

Hey ya'll, Brooke and I got to go on a very special blimp ride in venice,fl. We rode the metlife blimp. It was so pretty! We saw dolphins,schools of stingrays. Brooke had ... Read more

tiffany martin posted a new journal entry.

Brooke started school yesterday - she is loving it and was very excited to go back today. Hailey wants to start with her to. I told her next year you'll be going to ... Read more

tiffany martin posted a new journal entry.

Hey all, Brooke had clinic today for the second time this week. We have been on pins and needles the last couple of days. Her livers levels were high, we were concerned ... Read more

tiffany martin posted a new journal entry.

IDue to the rash on brookes skin she can't start school tomorrow. We are at clinic she got a pokie done on her finger.Due to her skin she Is also waiting to get a pokie in ... Read more

tiffany martin posted a new journal entry.

Hey Ya'll, Hope all is well, Just wanted to update on Brooke, I went to register her for school today!!!! Then I got in my car and was talking to my sister in law and ... Read more

tiffany martin posted a new journal entry.

Hello all,SOOOO Sorry for lack of update!!!Brooke's doing great!! She goes back to clinic on the 10th we haven't been back since the 15th of Dec.Since then she doesn't ... Read more

tiffany martin posted a new journal entry.

Hey all,Just a quick update-Brooke is doing great,We were taken to our room around 330am this morning.After we got settled in and her info updated  I finally got to go to ... Read more

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