×

CaringBridge Needs Your Help

Honor Brooke with a Tribute donation to CaringBridge and you'll help even more people surround each other with love and support when it's needed most.

Donate Now

Brooke’s Story

Be humble in the presence of God's mighty power, and he will honor you when the time comes.  God cares for you, so turn all your worries over to him.   
1 Peter 5: 6-7

Welcome to Brooke's CaringBridge page! Please visit often to read entries, view photos or write a guestbook note!  (or send a note: Want to send Brooke a note? Her home address is: P.O. Box 154, Chapman Ranch, TX 78347

When your child is diagnosed with cancer, your life stops, changes course, and begins instead toward a path to do anything & everything to help your baby.

Brooke is our baby; this is her story... Brooke is 6 years old and loves pink, ponies, cats and dogs, and dinosaurs. She wants to be a veterinarian when she grows up. Brooke was always a healthy child with ear infections as her biggest hurdle. She had a great summer in 2010 and even learned how to swim! By August, a few, sporadic things began to occur. First she had a couple of strange, unexplained fevers. We thought perhaps it was her ears, or a bladder infection, but those tests came back negative. Then she had a couple of intermittent times she made a "volcano" (what she calls getting sick to her stomach)...again with no real pattern or explanation. In late September, she started having a strange limp and her right knee was becoming swollen, and it was getting harder for her to walk. By the time she had stopped walking completely, and not even crawling because of the pain, the pediatrician's initial diagnosis was Juvenile Rheumatoid Arthritis and he immediately wanted her to stay home and wait to see a pediatric rheumatologist. Meanwhile, Brooke had begun rapidly losing weight with less appetite, and at 3, she was barely crawling, or pulling up and holding her back, but she only complained of knee and tummy pain. A sonogram, nuclear scans, MRI/MRU and later tests revealed a large mass in her abdomen pressing on her left kidney, spine, and internal organs. They told us it may be a kidney stone...

On November 18, 2010, our lives forever changed. Brooke was diagnosed with stage 4, high risk Neuroblastoma, which is a form of nervous system cancer that had spread to her bone marrow.

We have faced this battle armed with prayer warriors, friends and family ready to help pull her through. Financially it has been incredibly challenging as we have gone from a two income, one home family to a family separated by thousands of miles trying to maintain two places to live and receive health care for Brooke on one salary.  We spent an entire year living at the Ronald McDonald House in New York for the surgery of the mass and to battle the bone marrow cancer through clinical trials.  While daddy has been home most of the time working and maintaining insurance coverage, Brooke and her mom have been home for only a few weeks in the past two years as we now have Brooke at the Helen DeVos Children's Hospital in Michigan seeking new hope in a ground breaking NMTRC genomics trial and personalized medicine against her aggressive type of recurrent stage IV cancer.  We are still praying for remission daily!!

Although now she is 6 and a half, Brooke continues to bravely fight this battle and our family has set up a special charitable account, the "Brooke Hester Donation Fund" at any Wells Fargo branch. 

Our faith is strong and we BELIEVE in the power of prayer!

Thank you for supporting our Brooke through her journey!

http://www.BrookeFightsBack.org


To learn more about Brooke's foundation, please visit 

http://www.BrookesBlossoms.org

or find her on facebook at 

http://www.facebook.com/BrookesBlossoms

pinterest page

http://www.pinterest.com/BrookesBlossoms

or Twitter

@BrookesBlossoms

Latest Journal Update

His love IS

First the news - the torrential downpour... 
then the fog
then the ice
then the sun
then the snow
snow
snow
and more snow

we were walking 
inside a gas stop
there was one flake
Look mommy!
yes... I see...
my mind drifts
as I know the forecast...
the road
ahead
the accurate
prediction

Driving forward
blazing saddles
full speed ahead
into the vast
known
unknown

a child
a babe
a girl of seven
four long years ago
today

exactly
four long years ago
today

diagnosed with cancer
stage IV

at the tender age
of 3

hope in the hopelessness
of her situation
always abounds
always abounds

her smile radiant
her soul more radiant
a snow angel on Earth
no fear
just faith

love surrounds
our family
our circumstance
our child

a safe comfortable ride
loaned by friends
for the journey

big brown bags of groceries
given by friends
arrived before
us
and before
the snowstorm
strikes

warm mittens
hats
scarves
gloves
legwarmers
even a pretty red coat
something for each of us
donated in love
for the winter wonderland
we aren't well
accomodated
to

blood donated today
platelets too
in honor of our 
girl

a bank donation
a donation online
to our family
sixty one
saved
dollars
from a young boy
with a big heart
for Brooke...
her very special
friend
in New Jersey

a doctor
a surgeon
a radiation team
a nursing team
ready for
immediate
action
making a difference
daily
in the lives of babes
ready to take action
before scans 
load
before their eyes even see
what their minds know
from the reports
the operating room
reserved 
these helping hands
saving lives

saving the life of our baby

here for her... 
always here for her
at the drop of a hat
cancer grows ~ again
their determination
grows even more

what more support
what more love
could be 
provided?

safe
warm 
dry
comfortable
cozy
that is our one room family
in the hospitality house
away from home
familiar faces here
now like family too

together
the four of us
a few more days at least
through tomorrow's surgery
possibly simple
possibly intense
surgeon doesn't know
until he gets inside
deep inside
tucked deep inside
between
stomach
liver
and blood vessels
possibly culprit
for the nausea
a significant 
tumor
once a normal
functioning
node
now cancer
hoping to be plucked
safely out of her
and sent off in hope
to be
analyzed intensely
more intensely than she
has ever had
hopefully will become
her sixth
analysis
of her own cancer
hopefully will generate
new individual therapy
new answers 
new hope

tomorrow
on pins and needles
we will wait anxiously
for her to
awaken
post surgery
for the surgeons hands
to be guided 
gently
inside our baby
yet again

forgotten how many now...
how many surgeries
how many treatments
how many transfusions
how many drugs
how many days gone
from home
lost count

but remember the countless
acts
of love
kindness
support
each
one
special
to get us through
and the 
smiles
peace
and joy
they bring

each gift of the heart
and the warmth
it brings

frigid outside
a world blanketed
in crystals
glistening
threatening
piling up
salted down
piling up some more

warm as the summer sun
inside with her
she beams love
and light
all who meet her
know
life is more than
worth
the fight

happiness abounds
not therapy
not sickness
not get well soon
but have a great day
because it is
when she IS
herself
today she IS
herself

no pain
no illness
today

just patience during
blood and platelet 
transfusions
from compassionate
donors

silence now
in the dark
listening to her sleep
she smells like 
frankinsense
lemongrass
and
lavendar
anointed 
with love
and hope
for her cure to be found
abounding
surrounding
astounding
His love IS
in our lives

as He cares for us
through the hearts
the hands
the love 
of others.

Our family IS
beyond
grateful

Daddy will stay
until he 
has to go
to provide for us
then we will be
separated

again

for weeks 
unknown
but still holding
steadfast
to hope.


prayers are
beyond
appreciated....

In loving Memory of Abigail
whom we will
Never
forget
http://www.youtube.com/watch?v=ZCuLyuXyCsE

















heart
141 people hearted this

Comments

33 Comments

Vicki Lodden
By Your Michigan Friend, Vicki
Prayers, hope, love, compassion, healing...all things are possible through HIM.
Sandra Fryar
By Sandra Fryar
Our love and prayers are with Brooke and the family daily.
Love you Aunt Sandy
Lisa Stephan
By Lisa & Rileigh
Praying for Brooke
shirley andrews
By shirley andrews
Praying this morning for all of you.

Your NC friend
emily welk
By Emily Welk
So thankful Brooke is feeling like herself today. Prayers for your sweet girl, her medical team, and all who love her!
Stephanie West
By Stephanie West
We are hopeful that Miss Brooke will come out fighting yet again, as she is so strong and courageous and most importantly has Jesus on her side and in her heart! Praying this morning. Hoping your family feels the love and comfort that God gives us through his son, Jesus Christ.
Marilyn Korhonen
By Marilyn
Love and prayers as numerous as snowflakes surround you always, and especially today.
Sandy Yokeley
By Sandy Yokeley
Extra prayers going up today.
Rebecca Smith
By Rebecca Smith
Sending prayers and love to your sweet baby girl and your family💗 Hugs to all💗