Britney Kleikamp's Journal
Written Nov 23, 2013 9:56pm by Becky KleikampOn Monday Britney started having more intense back pain again. Not in the same place as last time though, this time it is her rib area on her back left. As a result, her Drs. have increased her pain meds. in the IV quiet considerably. She also is having more spells of confusion and episodes of not even being able to communicate(talk) with us...it is very heart wrenching. At times she still says she cannot breath so they upped her oxygen from 2L to 3L and doubled her injections I give her in her IV to help her breath and for anxiety. They have also increased her steroid (for brain swelling) from 2xs a day to 4 and she is now on other pain meds also. The Drs. are focusing on trying to keep her comfortable as best they can, but it is hard as the tumor plays games with her mind where she cannot tell us what is wrong and she uses the wrong words and we just have to be patient and work through it to try to figure out what we can do to help her. The last two days she has also been sleeping more during the day which is probably due to tumor growth. Hospice RNs are now also coming 7 days a week. Britney still has her awesome appetite though when it comes to eating, however, it is also very hard as she doesn't remember eating so she wants to eat continually and gets frustrated when I have to tell her she needs to wait a little while. I don't know if it is harder on her or me.
Friends of ours are also having a spaghetti feed fundraiser for our family to help with the expenses of taking care of our sweet Britney. I've copied and pasted the following that was put on facebook for friends/family/others that do not use facebook:
Britney has been diagnosed with an inoperable cancerous brain tumor. We are having a spaghetti dinner to raise money for the Kleikamp family during this difficult time. Britney's mother is not working right now and is taking care of Britney full time. The family could use your support! The cost is a donation of $10/adult, $6/ages 6-12, and children 5 and under are free. Tickets are available at any Norway School office, the First National Bank of Norway (both locations), and will be available at the door. Santa and Mrs. Claus will be attending and pictures will be available for a $5 donation. There will be free face paining and entertainment will be provided by Ian Cavalieri and the NHS Knight Moves Vocal Jazz.. It will be at Norway High School on Saturday, December 14th from 4 to 7pm.
Jeannette Sword also is helping with this fundraiser and had this on facebook: Thanks for all of the support. I will post on this event if there are things that need to be done. If you have raffle items I will contact you and/or you can drop them off at the Elementary school in Norway (she works here) and I will make sure they get where they need to be the night of the dinner...Thanks again!!!!!! Please come and support us!!!!!
Again, thank you for all of the support Britney and our family has been given. It is greatly appreciated and we love each and everyone of you for sticking by our family through this struggle......there are no words that would even come close to how much each and everyone of you mean to us.
Written Nov 9, 2013 11:12pm by Becky KleikampFirst of all, a big THANK YOU to Integrated First Respond, Great Lakes Ambulance and Andy Hay. When we left St. Vincent Hospital yesterday afternoon and pulled out onto Mason Ave., we noticed an ambulance behind us. It was IFR from Iron Mountain. A quick text and phone call to Andy Hay and they followed us all the way home and helped us get Britney into the house with their 3 paramedics and cart. Words cannot express the amount of gratitude in our hearts at that moment when they helped get our daughter into the house in the least amount of pain possible. THANK YOU again!
We ended coming home last night from St. Vincent Hospital after being there since Monday. The Drs. did NOT find any broken vertebrae's in Britney's' back....I think they were as much amazed as we were. She was in a considerable amount of pain on Monday after hurting her back trying to get in the car. So, once the MRI came back showing no fractures it was then time to focus on pain management. Britney ended up getting a PICC line and after trying a few different pain meds the Drs. were able to send her home with an IV with minimal pain in her back. She also gets injections into the IV every 4 hours for her breathing. Hospice was able to get Britney hooked up to oxygen today. We are hoping this will help with her breathing problems. They were doing breathing treatments every 6 hrs. on Brit while in the hospital with a nebulizer, however, you cannot do those treatments at home so hoping the oxygen helps her relax some. We weren't sure how she would feel coming home to a hospital bed but she has been in it ever since with no complaints. We are going day by day now trying to do the best we can taking care of Britney. Green Bay Oncology will also be doing home visits 1x a week now so that we don't have to haul Britney anywhere. Hospice will be coming in pretty much every day to check on Brit too. Again, thank you for all the love and support.
Written Nov 7, 2013 5:26pm by Becky KleikampToday is Thursday and we are still at St. Vincent Hospital....The Drs. are doing very well at managing Britneys' pain. They have her on a 100 mcg Fentanyl IV drip with a button she can push every 8 minutes to deliver another 25 mcg if needed. Her back pain is under control!!!! They also tried Ativan (for anxiety) pills to help with Brits breathing issues... We didn't see much improvement after the first dose. We actually lucked out as Brit had just gotten up to potty (which is when her breathing gets alot worse) and the Dr. walked in and got to see Brit struggling to breath and hyper ventilating and her hands and feet started to go numb so she changed the Ativan to IV and it worked!!!! She can now breath comfortably. She has been very "chatty" and awake the last few days. However, starting early lastnight she started slowing down quite considerably. Her speech is slerd and she is sleeping ALL the time now again. We wake her for medicine and she is very confused. The Drs backed down on the Ativan some hoping it was maybe from that but we have seen any improvement with the sleepiness. There is not a definate way to prove if it is from the tumor but her symptoms are exactly like they were when she was having her seizure. The difference is she is no longer in pain and she can now breath with ease so I will take the sleeping all day over the extreme pain and difficulty breathing she had earlier in the week. It is very difficult to watch our sweet girl suffer like this....The Drs today put a PICC line (IV) in her right bicep so that they can send her home with the two IV meds. She is also getting a Fentanyl nebulizer treatment every 6 hours to trick the brain into thinking she is breathing ok...all seem to be very effective. The nurses are no longer able to draw blood and get IVs started as her veins are just too fragile now. They will be able to use the PICC for bloodwork and her meds so no more needles!!!! The plan is to be able to go home tomorrow! The hospital is coordinating with Hospice to be at the house when we get home with a hospital bed, meds, and whatever else we will need to maintain our girl. Again, thank you for all your support.