Brighton Taylor's Journal
Written Nov 13, 2013 8:42amWell, another stay at KU Med. Brighton has been there since Monday, but we are probably going home today. It started with him feeling yucky Friday night and Saturday. We didn't really think much about it since he wasn't running a fever, just a little stomach bug. Well, Sunday he ended up with a fever of 102.5 so it was a trip to the ER. they found out that he had strep and was also neutropenic. They gave us a heavy dose of antibiotics and sent us home since we were going to KU for treatment anyway.
They did not give him his spinal (that is next Monday) but they gave him his chemo, de-accessed his port and sent him and Kris home. After a stop at McDonald's and a short trip down the road they were called back to KU so he could be admitted for his low WBC count. Brighton was TICKED! He did not want to be poked again. Can you blame him.
Brighton has not been running a fever so they are giving him some more doese of IV antibiotics and sending him home today. He seems to feel better because he is so darned grumpy. Looking forward to being home with him tonight.
Thank you for all of your prayers. They are amazing. Read an article on yahoo today about a 13 year old girl that lost her battle over the weekend. Please pray for the family of Caitlyn Jackson.
Written Aug 29, 2013 11:02pmHas it really been April since our last post? Bad Daddy. Okay... So much to tell you all. Brighton has been doing really great. He is in the last few months of treatment... It has been over three years. WOW!!! He is in first grade now and all grown up. He loves school and hanging out with his friends. He was ready to get back to school. I think that he got bored during the summer and so he got into A LOT of trouble at home. When he gets bored he gets mischievous.
So... Not much else happened over the summer except My brother Tim and his wife Stephanie had their second son Winston. Darn he is cute (has to be the Taylor genetics).
The rest of the family is also doing well, Mic is now a middle schooler (Lord help us) and is out for cross country. She sure is growing up fast. Grayson is now a second grader and out for soccer. We have a new team since his old coach left and went competitive. We miss Brian, but we also like our new coach. We'll see how the year goes. He says that he likes it but he seems to bore easily and does not always show much interest in practicing.
Kris and I are back at school and trying to stay caught up on everything. She really amazes me with everything that she gets done around here. I am really blessed. I have decided to take over as Grayson's cub scout den leader. It will be an experience. Brighton also joined scouts, but he will be in a different den since he is a year younger.
It has been a LOOOONG journey to get where we are. Sometimes I cannot believe everything that we have gone through. We could not have done it without your prayers and support. Thanks for everything that you have all done for us. Hopefully we do not wait 5 months to post again... God bless!
Written Apr 30, 2013 9:00am
Well, it HAD been a pretty uneventful past two months. Yesterday I took Brighton in for a hearing check (passed with flying colors) and then we were off to KU Cancer Center for our monthly chemo. During our trip up there Brighton started feeling yucky and did not want to eat his McDonald's. Strange...
His port was accessed and he did a great job with that. He was feeling pretty warm to me and at this point I knew that he was running a fever. The nurse took his temp and it was 102.6! Dr. Pannicker told us that we would have to be admitted to the hospital for at least 48 hours so they could give him antibiotics. CRUD!
He was not real happy about that, but he was a champ. When we get to KU Med they tell us that they need a blood sample from his arm. UGH! Brighton was AMAZING! He did not need anyone to hold him down. He did however tell the nurse that she was torturing him. It made her feel bad, but she was so proud of him for sitting still. She has had to access him before where it took 4 people to hold him down.
Kris came up and spent the night with him last night. She called me just a minute ago and said that the peds Dr. said that there was some noise in his left lung and possible pneumonia. Needless to say I am slightly more concerned now than I was a couple of hours ago. We should know more if the antibiotics help and his fever stays down. Please pray for a speedy recovery and no pneumonia.
I will update when we know more information.