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Brighton’s Story

Thank you for visiting Brighton's website, it means so much to him. We appreciate everyone's thoughts and prayers as we begin this long journey. Our son, Brighton, was diagnosed with T-cell Lymphoblastic Lymphoma (Non-Hodgkins) on 7/5/10. This is Brighton's story of his journey.......

Brighton's journey began on July 5, 2010, but his story began sometime in June 2010. Brighton was coughing a lot during the night, we figured he had seasonal allergies. We propped him up at night with a couple of pillows to make it easier for him to breathe.  After about a month of the coughing during the night, Brighton started coughing during the day and would cough so hard that he caused himself to vomit.  We still thought it was probably seasonal allergies.  On June 29, 2010, as Brighton was taking a nap next to me on the couch, I was watching his breathing.  It was very rapid and then I noticed that the left side of his chest was a lot larger than the right side.  He also was wheezing a lot, especially when he slept.  I called the doctor the next day, but our doctor was gone on vacation.  I was referred to the Express Care office.  Brighton and I went that day to Express Care, but after his examination, the doctor told me that he had asthma.  Brighton was given a breathing treatment, meds for the asthma and for an infection because of the wheezing.  I explained to the doctor that he had a big lump on his left side of his chest.  I told her that he and his brother had been wrestling around and Brighton was accidentally kicked in his chest.  She told me that his chest was just bruised from the kick.  She did mention that he could end up with pneumonia, so keep an eye on him.  Later that night, I still did not think it was just a bruise, so I looked up symptoms for children/pneumonia and children/cancer.  I showed it to my husband, but Brighton did not have all the symptoms, so we decided to wait until our doctor was back on Tuesday.  We were told that if Brighton stopped eating, was lethargic, or had a fever, we needed to go to the emergency room by a friend who is a doctor.  On Saturday, he didn't feel like going to a 4th of July party, so I stayed home with him, while Joe, Grayson, and Mic went to the party.  The next morning we went to church, but Brighton did not want to go into his classroom, so he went with Joe and I.  That day, Sunday- July 4th, he hardly ate anything, maybe a piece of cantaloupe and a slice of bologna and wanted to sleep with me in my bed.  The next morning, July 5th, Brighton woke up with a fever.  I told Joe that I thought Brighton may have pneumonia, and we needed to take him to the emergency room. (I was very worried about pneumonia because I have a friend who's little 4 year old daughter had died recently from pneumonia.)  We went to the ER around 9:30, had blood drawn, X-rays, CT Scan and then were told that our son had a large mass in his chest.  We were told that we would be leaving the hospital to go to another medical facility, either by ambulance or helicopter.  Since neither Joe nor I would be able to ride in the helicopter, we chose to go by ambulance.  Brighton and I went by ambulance, while a good friend, Annie (she set Joe and I up on our first date) drove Joe down.  We were taken to KU Med Center in Kansas City and this is where his journey began..........................

Latest Journal Update

4 long years...

It is late July 6, early July 7 and I am laying here awake when I should be asleep.  Four years ago Brighton was going in for his biopsy and exam to determine which type of cancer he had.  Well, we are heading to KU Med at 6:00 in the morning to have his port taken out.  What a wild strange ride we have been on.

it feels strange to be at this point.  It is all that our family has known for four years.  I am sure that Brighton does not really remember too much before he was diagnosed.  We keep asking him if he is excited to get his port out and he says no, he is scared.  He is worried about the "operation."  He is such a brave little man.

It has been almost 5 months since we have posted... I guess that means live has been busy.  Brighton has gotten to be quite a little baseball player this summer.  His team has not won many games, but they are having a blast.  Both Brighton and Grayson have taken swimming lessons and spent lots of time in the water.  Both a swimming like fish.  Also, we went to an overnight scout camp and survived.  I am planning another weekend camping trip coming soon.

Not everything has been peaches and cream.  Last month Brighton was sick and having pain in his lower right abdomen.  A CT scan was inconclusive, so he had his appendix removed.  He got better and so we came home after three days in the hospital. Life is good again.

Again, we cannot thank our friends the Korbes enough.  They took care of Mic and Grayson while took care of Brighton.  Amazing people, and amazing friends.  We also want to thank our friends that stopped in to say howdy to Brighton.

WOW!  We are waking up in like 3 hours... I had better get to sleep.  Good night and God Bless you all.

Joe


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Comments

5 Comments

Joe & DeAnna Jordan
By Joe & DeAnna Jordan
Hey Joe, Y'all have (are) been thruogh more than I can imagine and it is so nice for how Brighton is doing. I hope you have a great summer. God bless you each, Joe
Judy Powell
By Judy Powell
What a wonderful end to the treatments!!! It's great to hear that Brighton is having a great summer. He is a normal little guy & that is the best news ever. Blessings to all of you.
Debi Smith
By Debi Smith
We give thanks to The Lord for His healing power and the strength He has given each of you to go through this journey. May The Lord continue to bless your lives and keep you safe and healthy.
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Tara Azwell
By
You and your family have had quite a journey. I has been such a long time with many ups and downs. I can only imagine how hard it has been on your whole family. We hope that life begins to look a little more "regular family stuff" for you all now. As active as you all are, I am sure that it will not be a quiet life. Our thoughts are with you. You are fortunate to have each other. Your children have learned so many important lessons about keeping on keeping on even when life through you lemons. Knowing the "tough Taylors" have been a pleasure. Tara
Major Mickey Hale
By Major Mickey Hale
What an answer to prayer! Hugs and love!