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Brendon’s Story

This is Brendon. Before Brendon was born he suffered a STROKE. It is important for us to share his story so we can raise awareness that CHILDREN can suffer a STROKE. Please share Brendon's story to help in our mission.  Brendon's Smile...Raising Awareness for Childhood Stroke Foundation was created to raise awareness and educate EVERYONE about stroke in children.  For more information visit

Brendon was born a SURVIVOR and we are so blessed to have him in our lives.

At 19 months of age Brendon was diagnosed as having suffered a stroke while in utero. As a result of the stroke he has been diagnosed with Cerebral Palsy, Right Hemiparesis, Muscular Scoliosis, Speech Apraxia and Aphasia. Brendon currently wears braces on both feet and a splint on his right hand. Brendon is two years old and is only able to say a few words. He struggles with his inablility to vocalize and gets very frustrated with himself. He tries with everything he has to tell the people he loves what he is thinking. Brendon has a gorgeous smile and spirit that you can see by looking into his eyes. Through all of his frustration he manages to keep on smiling. Ask any one who knows him...he lights up a room. His spirit keeps us going!

It's important for every parent to know that doctors may not recognize the symptoms of stroke in children. Brendon should have been diagnosed much earlier than when he was. As a new mother I was told I was overly "paranoid." Due to lack of a diagnosis by several doctors and specialists Brendon was deinied the treatment he so much deserves.

You are invited to share Brendon's journey with us.

It is my goal to share with you every step of Brendon's journey so you understand what it is like to advocate for a child you love and to raise awareness. I don't want another child to be denied what is their's!

Please e-mail us at for any suggestions you may have on helping us spread the word.

Thank you!

Jessica & Stephen Spear

Latest Journal Update

Thanksgiving Blessings

This evening, before Thanksgiving dinner, Brendon requested to say a blessing and some words. My regret was that no one thought of filming the prayer or the words, which he prepared.

Brendon brought tears to my eyes with the words he spoke. Not only were his words so well thought out, there was barely a hint of aphasia or stuttering. WOW!

The Lord's Prayer was what he began with. Then he opened his Bible and said, "I am so thankful to God for all that we have. We should all be thankful for what He has given us. For example, God said, 'Let there be light! And, he gave us light!' Then he gave us water, and kept going, giving us EVERYTHING we have. Thank you God. Amen."

The pauses were long, so well thought out and with much intention. Our dinner was getting cold. I didn't care. I would have let him speak on... FOREVER.

When Brendon finished, Adelyn asked if there were any chips, "I'm just not feeling like turkey, today."

I am so grateful for Brendon, Adelyn, Stephen and my family parents to have to celebrate this beautiful day of giving thanks.

God Bless all of you today and always. May you be given the gift of appreciating your blessings, no matter how great or small.

PS: Babies, even unborn, and children have strokes, too!