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Brendon’s Story

This is Brendon. Before Brendon was born he suffered a STROKE. It is important for us to share his story so we can raise awareness that CHILDREN can suffer a STROKE. Please share Brendon's story to help in our mission.  Brendon's Smile...Raising Awareness for Childhood Stroke Foundation was created to raise awareness and educate EVERYONE about stroke in children.  For more information visit www.BrendonsSmile.org.

Brendon was born a SURVIVOR and we are so blessed to have him in our lives.

At 19 months of age Brendon was diagnosed as having suffered a stroke while in utero. As a result of the stroke he has been diagnosed with Cerebral Palsy, Right Hemiparesis, Muscular Scoliosis, Speech Apraxia and Aphasia. Brendon currently wears braces on both feet and a splint on his right hand. Brendon is two years old and is only able to say a few words. He struggles with his inablility to vocalize and gets very frustrated with himself. He tries with everything he has to tell the people he loves what he is thinking. Brendon has a gorgeous smile and spirit that you can see by looking into his eyes. Through all of his frustration he manages to keep on smiling. Ask any one who knows him...he lights up a room. His spirit keeps us going!

It's important for every parent to know that doctors may not recognize the symptoms of stroke in children. Brendon should have been diagnosed much earlier than when he was. As a new mother I was told I was overly "paranoid." Due to lack of a diagnosis by several doctors and specialists Brendon was deinied the treatment he so much deserves.

You are invited to share Brendon's journey with us.

It is my goal to share with you every step of Brendon's journey so you understand what it is like to advocate for a child you love and to raise awareness. I don't want another child to be denied what is their's!

Please e-mail us at BrendonsSmile@yahoo.com for any suggestions you may have on helping us spread the word.

Thank you!

Jessica & Stephen Spear

Latest Journal Update

Letting Go

Sitting back and listening to my son, what his wishes are will guide me in guiding him...

From the beginning of his earthly existence, even before his birth, I dreamed about who he would become...to be an over achiever - walking and talking before the average, the first to know all of his colors among his peers, the first to read in his pre-k class, the first to write a sentence, ...to be a genius, the one to find a cure for the worst ailment on the planet, a leader, a wealthy entrepreneur, an All-Star baseball player, everything comes easy and nothing sets him back...  Such silly thinking, but it happens.  

In all honesty I know my son is going to be who he was meant to be.  I will always love and nurture him.   I will raise him up knowing that he is so worthy of being loved and his dreams for himself are not idle; yet he must work for what he dreams of becoming. 

No one, in their right mind, wants his/her child to struggle, to face adversity.  However, we didn't sign up for this life to have an easy go at it.  If you want it bad enough you will work for it or work around it.   Seems unfair that walking and talking must be something that some children have to work extra hard for but it happens.  Some children never experience the luxury, not for not wanting but because that is how it was meant to be.  When it all comes down to it we are unique in our own way. 

Now that Brendon is getting older and he is finding that some things aren't of interest to him it doesn't mean his path isn't the best for him. 

Yesterday I was kind of at a low, it happens from time to time, in my "Mom Mind" of what I want for Brendon.  Funny thing is, if I haven't learned by now I'm going to keep setting myself up for disappointment.  My son is so amazing in so many ways.  He made a decision that I was shocked by but he seems extremely content with his decision - to no longer ride horses (he can always change his mind).  He wants to try new things that will strengthen him.  I am eager for this next chapter in his life. 

This morning I feel much better knowing that he is following his own path and I am there to love and nurture him.  

I am so proud of him!