CaringBridge Is Funded by People Like You

Make a donation to CaringBridge

Honor Brendon with a tax-deductible contribution to CaringBridge today.

Click here to make your donation.

Brendon’s Story

This is Brendon. Before Brendon was born he suffered a STROKE. It is important for us to share his story so we can raise awareness that CHILDREN can suffer a STROKE. Please share Brendon's story to help in our mission.  Brendon's Smile...Raising Awareness for Childhood Stroke Foundation was created to raise awareness and educate EVERYONE about stroke in children.  For more information visit

Brendon was born a SURVIVOR and we are so blessed to have him in our lives.

At 19 months of age Brendon was diagnosed as having suffered a stroke while in utero. As a result of the stroke he has been diagnosed with Cerebral Palsy, Right Hemiparesis, Muscular Scoliosis, Speech Apraxia and Aphasia. Brendon currently wears braces on both feet and a splint on his right hand. Brendon is two years old and is only able to say a few words. He struggles with his inablility to vocalize and gets very frustrated with himself. He tries with everything he has to tell the people he loves what he is thinking. Brendon has a gorgeous smile and spirit that you can see by looking into his eyes. Through all of his frustration he manages to keep on smiling. Ask any one who knows him...he lights up a room. His spirit keeps us going!

It's important for every parent to know that doctors may not recognize the symptoms of stroke in children. Brendon should have been diagnosed much earlier than when he was. As a new mother I was told I was overly "paranoid." Due to lack of a diagnosis by several doctors and specialists Brendon was deinied the treatment he so much deserves.

You are invited to share Brendon's journey with us.

It is my goal to share with you every step of Brendon's journey so you understand what it is like to advocate for a child you love and to raise awareness. I don't want another child to be denied what is their's!

Please e-mail us at for any suggestions you may have on helping us spread the word.

Thank you!

Jessica & Stephen Spear

Latest Journal Update

Followup from last evening's post...

Followup from last evening's post...

I call DASA Sports today (  This sounds very promising.  While I am a little torn about reaching the point that I always felt in my heart was a possibility, I am thrilled to know there just might be something out there for Brendon.  

When I hung up the phone I told Brendon that I wanted to talk to him.  He yelled at me, "I told you I don't want to talk about sports or camps anymore!" 

I quickly said these words: kayaking, ziplining and rock climbing.  He got a huge grin on his face and said, "Well maybe."  Then he took off running through the house with excitement.  

I later told him some more words of interest: swimming, bicycling, and tennis.  

He is beyond thrilled to learn more.  

This organization can accommodate varying levels of needs, all the way up to high functioning, but not quite equivalent to those "typically" developing.  

I look forward to sharing more as we learn more! :)