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Brendon’s Story

This is Brendon. Before Brendon was born he suffered a STROKE. It is important for us to share his story so we can raise awareness that CHILDREN can suffer a STROKE. Please share Brendon's story to help in our mission.  Brendon's Smile...Raising Awareness for Childhood Stroke Foundation was created to raise awareness and educate EVERYONE about stroke in children.  For more information visit www.BrendonsSmile.org.



Brendon was born a SURVIVOR and we are so blessed to have him in our lives.

At 19 months of age Brendon was diagnosed as having suffered a stroke while in utero. As a result of the stroke he has been diagnosed with Cerebral Palsy, Right Hemiparesis, Muscular Scoliosis, Speech Apraxia and Aphasia. Brendon currently wears braces on both feet and a splint on his right hand. Brendon is two years old and is only able to say a few words. He struggles with his inablility to vocalize and gets very frustrated with himself. He tries with everything he has to tell the people he loves what he is thinking. Brendon has a gorgeous smile and spirit that you can see by looking into his eyes. Through all of his frustration he manages to keep on smiling. Ask any one who knows him...he lights up a room. His spirit keeps us going!

It's important for every parent to know that doctors may not recognize the symptoms of stroke in children. Brendon should have been diagnosed much earlier than when he was. As a new mother I was told I was overly "paranoid." Due to lack of a diagnosis by several doctors and specialists Brendon was deinied the treatment he so much deserves.

You are invited to share Brendon's journey with us.

It is my goal to share with you every step of Brendon's journey so you understand what it is like to advocate for a child you love and to raise awareness. I don't want another child to be denied what is their's!

Please e-mail us at BrendonsSmile@yahoo.com for any suggestions you may have on helping us spread the word.

Thank you!

Jessica & Stephen Spear

Latest Journal Update

Dr. Nico's Commencement Address to the Washington University 2015 OT Graduates

I seriously cannot contain myself any longer; I must share...

Before I move on to this excellent commencement speech I must share that Dr. Nico Dosenbach was the very first recipient of the "Brendon's Smile Foundation Childhood Stroke Research Award". This inaugural award was presented to him in March 2015.

The vision Dr. Nico (as we all fondly refer to him as) has, the very basis of his research, is one that I have had since day one of starting this foundation. The beauty of it is his GREAT mind validates my hopes and dreams for our children who have endured strokes.

During one of my many conversations with him, I have had the pleasure of discussing the mission of Brendon's Smile and my passion for our children, he used the word "cure". In my years of working with all of the brilliant neurologists he is the first to use that word. While this may not be the case for my son I believe it to be the case for someone else's child in the future.

In another conversation with Dr. Nico, which he shares in the video, I reassured him that he would do a phenomenal job...and he did.

I am honored for his shout out...yet, listen to his message to these new incredible OTs, it will give you hope for the direction we are heading for all children impacted by TBI (and eventually all people). I couldn't be more proud to have the opportunity to support the work that is being done for our children!

Way to go Dr. Nico, I am so proud!

Congratulations Washington University 2015 OT Graduates!

Click on the link and start at "minute 30" to hear the introduction of Dr. Nico and then his fabulous commencement speech:

http://www.ot.wustl.edu/news/watch-a-live-stream-of-program-commencement-2015-on-may-15-155