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My Story

This is Brendon. Before Brendon was born he suffered a STROKE. It is important for us to share his story so we can raise awareness that CHILDREN can suffer a STROKE. Please share Brendon's story to help in our mission.  Brendon's Smile...Raising Awareness for Childhood Stroke Foundation was created to raise awareness and educate EVERYONE about stroke in children.  For more information visit www.BrendonsSmile.org.



Brendon was born a SURVIVOR and we are so blessed to have him in our lives.

At 19 months of age Brendon was diagnosed as having suffered a stroke while in utero. As a result of the stroke he has been diagnosed with Cerebral Palsy, Right Hemiparesis, Muscular Scoliosis, Speech Apraxia and Aphasia. Brendon currently wears braces on both feet and a splint on his right hand. Brendon is two years old and is only able to say a few words. He struggles with his inablility to vocalize and gets very frustrated with himself. He tries with everything he has to tell the people he loves what he is thinking. Brendon has a gorgeous smile and spirit that you can see by looking into his eyes. Through all of his frustration he manages to keep on smiling. Ask any one who knows him...he lights up a room. His spirit keeps us going!

It's important for every parent to know that doctors may not recognize the symptoms of stroke in children. Brendon should have been diagnosed much earlier than when he was. As a new mother I was told I was overly "paranoid." Due to lack of a diagnosis by several doctors and specialists Brendon was deinied the treatment he so much deserves.

You are invited to share Brendon's journey with us.

It is my goal to share with you every step of Brendon's journey so you understand what it is like to advocate for a child you love and to raise awareness. I don't want another child to be denied what is their's!

Please e-mail us at BrendonsSmile@yahoo.com for any suggestions you may have on helping us spread the word.

Thank you!

Jessica & Stephen Spear

Feed

Jessica Spear posted a new journal entry, "Summer Stuff".

Brendon had an enormously busy week; he participated in two camps. He went all day to Camp Invention and then in the evening to Upward Basketball Camp. It was a great week ... Read more

Jessica Spear posted a new journal entry, "Knowledge and Understanding".

When you first hear the words "your child had a stroke..." most people will reply, "I never knew a child could have a stroke!" This only to learn that they are now thrust ... Read more

Jessica Spear added a new photo.

Jessica Spear added a new photo.

Jessica Spear posted a new journal entry, "Another Hurdle".

Have you ever heard the phase it’s just like riding a bike?  The hard part is getting to the point where it turns into something so simple; once we can ride we forget ... Read more

Jessica Spear posted a new journal entry, "Growing Strong".

Brendon's Smile is planning on growing and reaching out, above and beyond.  I would first would like to share that the 1st Annual World Pediatric Stroke Awareness Week ... Read more

Jessica Spear posted a new journal entry, "Endings with New Beginnings...".

Here we go...the beginning of Brendon's final week of primary school. For some strange reason these past several days have been a little emotional for me. I guess it has ... Read more

Jessica Spear added a new photo.

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