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Brendon’s Story

This is Brendon. Before Brendon was born he suffered a STROKE. It is important for us to share his story so we can raise awareness that CHILDREN can suffer a STROKE. Please share Brendon's story to help in our mission.  Brendon's Smile...Raising Awareness for Childhood Stroke Foundation was created to raise awareness and educate EVERYONE about stroke in children.  For more information visit

Brendon was born a SURVIVOR and we are so blessed to have him in our lives.

At 19 months of age Brendon was diagnosed as having suffered a stroke while in utero. As a result of the stroke he has been diagnosed with Cerebral Palsy, Right Hemiparesis, Muscular Scoliosis, Speech Apraxia and Aphasia. Brendon currently wears braces on both feet and a splint on his right hand. Brendon is two years old and is only able to say a few words. He struggles with his inablility to vocalize and gets very frustrated with himself. He tries with everything he has to tell the people he loves what he is thinking. Brendon has a gorgeous smile and spirit that you can see by looking into his eyes. Through all of his frustration he manages to keep on smiling. Ask any one who knows him...he lights up a room. His spirit keeps us going!

It's important for every parent to know that doctors may not recognize the symptoms of stroke in children. Brendon should have been diagnosed much earlier than when he was. As a new mother I was told I was overly "paranoid." Due to lack of a diagnosis by several doctors and specialists Brendon was deinied the treatment he so much deserves.

You are invited to share Brendon's journey with us.

It is my goal to share with you every step of Brendon's journey so you understand what it is like to advocate for a child you love and to raise awareness. I don't want another child to be denied what is their's!

Please e-mail us at for any suggestions you may have on helping us spread the word.

Thank you!

Jessica & Stephen Spear

Latest Journal Update


On Tuesday, Brendon was in terrible pain with bad rashes on the bottom of his feet, again.  These have been brewing for about a week and a half.  I am trying to keep up with his skin issues and seem to be losing the battle.  Brendon was sobbing from the pain this afternoon.  They actually don't look as bad as they did this summer but they are painful and therefore preventing him from wearing his brace like he should.  

However, Brendon had therapy this morning before "the crack of dawn" (as Adelyn put it), and he made some improvement over the past two weeks.  He gained some degrees in his range of motion in his right leg (in the hamstring and in the achilles).  I feel really good about this!  Despite his rashes he was more willing to stretch.  Stephen has started working with him. A few times a week they head out for a bike ride, then come back to stretch.  Brendon started floor hockey Wednesday.  After his practice was over the two of them made use to stretch together before leaving the building.  This really motivates Brendon!!!!
Brendon has had some major issues with his speech and had a classmate who was unfamiliar with his speech start to make fun of him on a regular basis.  He was adamant that he handle the situation on his own.  He started with telling the classmate to stop that he didn't like it.  Eventually he asked for an adult in the school to help him intervene so he could explain why he has speech difficulties.  Brendon said the child apologized and has been nice to him every day.  I am proud of him for fighting his own battle and taking care of it on his own.  However, we all know I was waiting to intervene!  ;)

Brendon's annual IEP is scheduled for Monday and we are looking forward to the meeting to discuss his speech and other issues.  I am back at the "drawing board" so to speak to come up with a new game plan for him.

Today I am happy dancing over the 3 - 4 degrees he gained in his range!

Thank you for all of your continued prayers!


1 Comment

Georgia Spear
By Georgia Spear
So proud of Brendon wanting to handle these situations on his own.......he's growing up! You are doing a GREAT job, mom, so hang in there!! We love you all!!!